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SqueakyandLiza
(@squeakyandliza)
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Joined: 1 month ago
Posts: 14
May 14, 2019 6:44 am  

Hi. I'm Liza and am new to this community. I have watched several VO videos and am glad I decided to check out the forums while having a sleepless night.

My story started in March of 2018. I started feeling sick, originally thinking it was the flu or a stomach bug. I couldn't keep food in my stomach. It would just go right through me. Within a couple months, daily vomiting was added to the mix. I had an appointment with my doctor a couple weeks in and she did some blood tests and sent me for an ultrasound of my organs--these didn't give any answers. Then my doctor left her practice so I started looking for a new doc. I found one but was scheduled out over a month for a new patient appointment. All this time I had still been working, and while I was still feeling sick, was a little excited about all the weight I was losing (stupid and vain, I know). So, on June 17, about a week before my appointment with my new doctor, I got a horrible pain in my stomach. If was so bad I couldn't even stand. My hubby and I went back and forth about going to the hospital. I agreed to go but couldn't walk to the car so we had to call 911. Everything is a bit of a blur from there but on June 18 I went in for an exploratory surgery. After some complications in recovery (I stopped breathing) I woke up with an ileostomy. The surgeon speculated I have Crohn's which has since been confirmed by GI doc. The pain I was in was due to my colon being perforated in 2 places which is why they removed it and I was very septic. I had a wound vac until last Friday. They finally removed it and we have gone to "old school" dressings since the wound is so slow to heal. I have some tunneling in the wound I am dealing with.
I have had a really hard time with this. I didn't cry at all for the first several weeks out of the hospital--I think it was shock. I have definitely made up for it since I finally "broke the seal"
After my 6 months of disability insurance ran out, my employer has allowed me to work from home until my wound heals, which I am very thankful for. And my husband has been so amazing taking care of me. I wouldn't be here without him.

Thanks to everyone who stuck with my long story. I look forward to getting to know you guys and the support we can give each other.

My colon didn't make it to 50, but thanks to Squeaky, I did!!

Liza


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VeganOstomy
(@veganostomy)
Admin
Joined: 5 years ago
Posts: 2210
May 14, 2019 9:32 am  

Welcome to the forum, Liza - and thank you for introducing Squeaky to us!

Waking up with an unplanned and unexpected stoma can be difficult to cope with, but things will get easier in time, and it's fine to grieve about your loss. You are here now, and your life will get better. 

Please let us know if you have any questions and we'll be happy to share what we've learned along the way. You can create as many different topics as you like :) 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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IleosTony
(@ileostony)
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Joined: 2 months ago
Posts: 67
May 14, 2019 6:41 pm  

Hi Liza,

 

Welcome to the community. You'll find the people here always kind and eager to help and support.

Tony
Crohn's diagnosed in 1995.
Spontaneous colon perforation and emergency end ileostomy surgery in 2018.
No colon - still rollin'!
No eyesight - life still bright!
Stomaversary - December 4th


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SqueakyandLiza
(@squeakyandliza)
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Joined: 1 month ago
Posts: 14
May 15, 2019 4:55 am  

Thanks Eric! For the welcome and for creating this site and making so many videos to help people. What a great case of making lemonade out of the lemons life gave you. It must be very rewarding to know how many lives you have improved. 

Before waking from my surgery, I didn't even know what an ostomy was, so it certainly has been an emotional ordeal, but in a way it was a blessing to not know what was coming. That would have been so hard in a totally different way. 

Keep up your good work. I look forward to watching more of your videos and reading more of these forums. 


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sjlovestosing
(@sjlovestosing)
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Joined: 1 year ago
Posts: 200
May 15, 2019 7:13 am  

Hi Liza,

Welcome to the forum. What a great attitude you have!  I was "prepared" for my surgery. I did a great deal of research and came to this site before going into the hospital. I think, next to prayer, VO is the most useful tool I have to live as normal a life as I can as a colostomate. Also, as I am sure your already know, we will try to be as helpful and as supportive as possible, and hopefully add a little cheer to your life.

Take care and God bless,

Stella


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Dona
 Dona
(@dona)
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Joined: 2 years ago
Posts: 641
May 15, 2019 2:20 pm  

Welcome Liza,

You have really had a very tough time. Waking up with a stoma has got to be a special challenge. Lots of us had literally years to consider the decision to get a stoma. I hope you are recovering and feeling  much better now. That really helps with the whole transition.  Hate the illness , but NOT the cure.

Glad you have found us, ask questions , and post helpful info for others.

Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


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LK
 LK
(@dlkfiretruck)
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Joined: 2 years ago
Posts: 448
May 16, 2019 3:45 am  

Welcome Liza and Squeaky (cute!)...I almost can not believe you can get away with a name like Squeaky. I almost named "Rose" after a rip roaring, angry volcano! You and your body have been thru a lot and moving ahead the way you are doing is a great step into the healing process. I was about your age when I had my surgeries and also wheeled around a vac-u-pak. When you have to heal from the inside out this way, and after an infection like sepsis, it takes a tole on you physically, and mentally, and can take longer to be on our way. Try not to push yourself too hard during this time and be sure to get the rest your body tells you it needs. Signing in here, and seeking stoma buddies and information is a good step. I was pleasantly surprised to find this site that Eric has thoughtfully put together and continues to add to, with so much in one place.  I look forward to reading what you can contribute for someone else down the road. Keep up the healing, stop and shed a tear when you need to, and contribute here when can. Keep your humor available in all things you experience with Squeaky! Do not be a stranger.  Prayers for continued healing and progress. All the best! ;0)

Linda

Linda


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SqueakyandLiza
(@squeakyandliza)
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Joined: 1 month ago
Posts: 14
May 16, 2019 8:14 pm  

Thanks Tony, Stella, Dona, and Linda for the welcomes. I appreciate all your kind words. I am glad to have found such a great group!!


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