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Massage for Crohn's?  

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bluesgal
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October 17, 2017 7:39 pm  

My adult daughter has Crohn's and Rheumatoid Arthritis; she is on a biologic injectable which supposedly treats both conditions, but she is suffering with quite a bit of pain from both diseases + bathroom issues from the Crohn's. Has anyone tried massage therapy for either/both conditions, and if so, what kind of massage (like visceral? relaxation? or ...?). Or acupuncture? We are desperate (especially mom who is having her continual nervous breakdown over her daughter's health). Any guidance would be appreciated. We live in Colorado. Thank you!


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VeganOstomy
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October 17, 2017 8:51 pm  

Massage might be able to help, but it depends on the goal.  I don't believe there's any evidence that suggests it'll help with Crohn's directly, but if it helps to relax her then it could have indirect benefits.

I did several forms of acupuncture and did not find that it helped with pain, but it was relaxing. 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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bluesgal
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October 17, 2017 8:55 pm  

Thank you, Eric

your friendly, nervous-breakdown mother


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FelicityG
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October 17, 2017 10:19 pm  

I've had massage, fire massage and moxibustion/ fire cupping done purely for relaxation. It felt fantastic but I don't think it has much to recommend as a therapeutic long term.

I am fond of hot baths and my heating pad when my arthralgia is acting up. Actually I love my heating pad. Mine mostly affects my hips/ knees.

Crohn's Colitis, Ilieostomy, Proctocolectomy November 2017


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VeganOstomy
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October 17, 2017 10:35 pm  
Posted by: FelicityG

I am fond of hot baths and my heating pad when my arthralgia is acting up. Actually I love my heating pad. Mine mostly affects my hips/ knees.

Yes, many people find at least temporary relief when they use a heating pad. I also used one. 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Zvitusk
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October 20, 2017 5:12 pm  

"Whatever works."

I personally tried acupuncture years ago. I was ill with a failing liver.  My super friendly acupuncturist told me that the procedure would drain the bad "poisons" from my bodies systems. 

All that he did was stick me with 4 pins.

My body reacted so poorly that we thought that  I needed to go to the emergency room. 

But then again,  I was deathly ill. 

Maybe if you have your treatment with an ancient Chinese doctor in old Chinatown,  you might have better results. 

I got a miraculous liver transplant,  instead. But that's another story. 

The main thing is that YOU'RE  to calm down.  Your daughter will have the most benefit from your calmness. 

Beer helps. 

 


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bluesgal
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October 20, 2017 6:16 pm  

I spell my "beer" as in 4-glasses-of-wine! Hard to be calm, but I try. Thank you.


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john68
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October 20, 2017 6:33 pm  

For any one to watch a loved one suffer is a heart breaking experience, but as said above she needs to see you being strong. When so ill we will try any cure/help offered, any one on here knows only too well.

ileostomy 31st August 1994 for Crohns


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Marcie
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October 21, 2017 11:51 am  

Mom, YOU have to relax... FIRST !!!!!!!!! Please try a support group for both of you to join.  Go together, There are support for the care givers also-Let your Sweet Daughter find someone her age to talk with-set her up on this wonderful site. It is a stress release!! Maybe her Dr. can help you both.  (but mine? Forget it! I found a support group paper on their office floor) (Thank God) Stress is a factor of pain.. The more stress? More PAIN!! Wine/beer/etc. is for when YOU feel good and will enjoy it.  I know that she is limited at times, but she is the boss of this NOT you.. Love is respected I'm many ways- there is always WORRY- YOU relax, then she may be able to let out her stress within her body in HER way.. Takes time. Then next step?  Go with the flow------ She has an issue, she is sick, just go with it--Helping others sometimes helps you/her.. Horrible way to live, I feel for you both.. If your waiting for the other shoe to drop? (like I did-and drove me nuts) FORGET IT!! That is an added on stress..  I hope that you all can enjoy the days ahead!! My Best to you both..... Keep that smile!! M.

 

Remember stress can kill you....... 

 

2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


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Marcie
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October 21, 2017 12:00 pm  

Zuitusk, So happy that you on the road again!!  Your so lucky!! May u enjoy many good years! Hopefully more than the ones you were so ill!! As I read what others like you are going through?  I am lucky--But I had a few years of hell myself--I even took a dry run to heaven during my 2 month coma.. Heaven is beautiful-trouble is getting there and staying there..  But I am keeping my smile and adjusted to my NEW NORMAL LIFE..  Would like my old one back-but? We just cant do that can we??  I have special places that I enjoy and just sit and enjoy nature.. Although, I have infusions 3 times a week for dehydration- I really have to try hard to get away from the house and that place.. But when I do?  IT is GREAT!! 

2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


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Robert
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October 21, 2017 1:10 pm  

Hi Bluesgal . Seems like everybody here has good advice . I know its not always easy to take advice when your in a tuff situation and your looking out that window instead of looking in . But like their saying try to stay strong . Things will get better .

Subtotal colectomy and Proctectomy , Ileostomy , Ulcerative Colitis


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Dona
 Dona
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October 21, 2017 1:11 pm  

Hi Marcie, and welcome to the forum.

That is really good advise...its really important to move forward and be happy with the new now and manage stress. . Its not so bad... in fact its really good. Most of us have suffered long and hard to get here, so we might as well enjoy it.

Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


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Marcie
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October 21, 2017 1:38 pm  

Hello Dona, and thank you for the welcome..  I was in a state of shock after 6 months in hospital-comma 2 months death-etc. nursing home to learn to walk etc. (to young for nursing homes-sorta depressing that some day I might be there.. But as of, NOT GOING!! Saw things I didn't like!! I felt great and then, POW! passed out from pain and the rest is history..  Talk about confusing huh? I was in such a state of shock, I was waiting for the other shoe to drop any  minute and while I was waiting, that year was lost as the one before-NO ONE GO THERE !! Not worth it. I feel like it may be better to go with the pouch than seeing my husband and my adult sons run for the bathroom--"got to go" NOW!  The look on their faces is harilous! (sp)  My issue is an adventure-

I have my potty/ vomit bags etc. ready for use.. And I am faster at it than them..  Got to look on the bright side.. Didn't like the last 3 years getting well and accepting this..  80 degrees today in Ct. u.s.a. Off to the quarry/lake to enjoy mother nature..  Who knows, with New England weather? could get snowed in next week.. Well, I am off to enjoy!!!!!! Keep that smile!!!!!! 

 

2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


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john68
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October 21, 2017 1:40 pm  

Never look back, My Dad had a saying "every body gets the same amount of troubles. but some get more in one helping than others" What he meant was the trouble in what every form can be so much in one go it seems impossible. Look forward and take it one day at a time.

ileostomy 31st August 1994 for Crohns


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Marcie
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October 21, 2017 1:50 pm  

John, Dad is right!!  I never want to back to that!!!  If anything else comes along-I know that  can handle it with ease... After all I am one tough Swedish gal !! I prove that for sure!! 

 

2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


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john68
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October 21, 2017 2:05 pm  

Good on ye Marcie, you sound as tough as a Volvo. Ps just my way of a compliment

ileostomy 31st August 1994 for Crohns


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Marcie
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October 21, 2017 4:24 pm  

Ya John, strong woman-crush men-- But at 5'8" and 116 pounds? Never.. How about an Edsal(sp) Ford? Ever see one of those? My dad made me drive one.. I was 17years old. Had to push that sucker down the hill! So Embarissing!!sp) That was one of the worst cars ever made..  The only men that I attracted was the very old ones and they laughed at me and the car..  And I WAS a beauty!! Remember I said WAS............ Still blonde, blue eyes, but at infusion, they say that they hope that they look as good as I do when they are 20 years younger than me now. May look good, and look good on paper-but boy! the insides? still trying to get everything together.. Just got to get some weight on.. I need fighting weight!! for the winter months of flus. AND, So I can crush men.. ha! YEs I got the flu shots etc. I have copd now also-- Come on keep hitting me!!!!!!!!!! (:......

2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


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john68
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October 21, 2017 4:56 pm  

Can,t say I have Marcie, my first Car was a Ford Cortina!! It used to pre- ignite when you switched it off, which means the engine was SO badly worn that the soot in the engine would cause it to start. mean you didn,t leave it in gear as it could head of on its own lol. 5"8 Blonde hair, Blue eyes!! I wouldn,t have even remembered what the car looked like.  YEP a few pounds would give you the extra edge. MORE CHIPS for the tall Blonde

ileostomy 31st August 1994 for Crohns


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Marcie
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October 21, 2017 5:28 pm  

Lost 55 pounds when I got sick.  Had a feeding tube for a few months when I came home--what a mess!! Had a trek also for breathing-thank God they took that out!! Don't know why they put me through another surgery for the feeding tube in my stomach-but I guess it was on the list of things to do..  I WAS eating/drinking after all-but nope! got to get that stupid feeding tube in.. It was hard trying to feed myself this way and the learning process of empting my pouch as I was so weak.. Yup!! lots of missing the toilet and the feeding tube over flowing..in the kitchen.  Still trying to gain weight back-not doing well.  Dairy products like cheese, I love-Quiche, cheese fondue- I eat that up!! but then it goes fast into my pouch (Nellie seems to work over time with these) Everything I eat that is healthy like protein, but, you cant gain weight on just that. .  But that is what stays in the small intestines longer and what I need to get healthy again. NO MORE BATHING SUITS FOR ME!!!  Been a long road, but the future walk looks promising.. (thank God for anti-depressants - I just could not get it together for so long!! Now they have helped me feel like I was over 3 years ago-Me, Myself, and I.. YAAA!  Beautiful day today!! OH how I hate the winter months coming up-after the holidays? I am done!! Guess it will be reading time.. You and others can cheer me up during those months huh? Where do u live by the way?  I bet u miss that car??? AHHH, youth huh?

2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


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john68
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October 21, 2017 5:49 pm  

Marcie ye have been on one heck of a journey!! Glad to see you know brighter days are ahead. After my surgery I was 98lbs it took me many months to get back up, but made it and so will you. A strong mind is just as important as a strong body. Of Course all the gang here will keep you going!! Hard to beat a good YARN!!. I am from Northern Ireland and do ye know what? that car was probably the worst I ever owned, but it still has the best memories. Am sending you a link to your FORD JUST CLICK BELOW.

https://www.google.co.uk/search?q=ford+edsel&tbm=isch&source=iu&pf=m&ictx=1&fir=7-cFg4IW4J2J7M%253A%252Cr1Uj4zG5RWj5ZM%252C_&usg=__cxiGQDcXs4KRXxXgqdfhhKYZaZE%3D&sa=X&ved=0ahUKEwjKvJif1oLXAhXCIVAKHb9WDmUQ_h0IogEwFA#imgrc=7-cFg4IW4J2J7M:

ileostomy 31st August 1994 for Crohns


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