Community Forums

Notifications
Clear all

Wafer wear

45 Posts
10 Users
27 Reactions
8,728 Views
Chris
(@chris)
Joined: 9 years ago
Posts: 143
Topic starter  

Can I post a pic of a 24 hour used wafer to get opinions on whether or. It it's wearing as expected or not? I just tried a convex with paste and never really inspected what happened before... now that I've been suddenly getting leaks, I'm interested to know if the paste/wafer should be wearing away the way it is..

 



   
john68 reacted
Quote
Robert
(@njewell1)
Joined: 9 years ago
Posts: 763
 

Chris I can't speak for everybody but wouldn't bother me


Proctectomy , Ileostomy , Ulcerative Colitis


   
ReplyQuote
Chris
(@chris)
Joined: 9 years ago
Posts: 143
Topic starter  

Ok I'm just going to do it. It might be gross, sorry if so but I'm really interested if this is normal.

 

1507412972-IMG2413.jpg


   
ReplyQuote
Chris
(@chris)
Joined: 9 years ago
Posts: 143
Topic starter  

That's so gross and I tried to erase it but I can't. I kinda regret it now.

 

sorry



   
Dona reacted
ReplyQuote
FelicityG
(@felicityg)
Joined: 9 years ago
Posts: 257
 

No worries, not disgusting. Wear looks a little uneven but not too bad. Looks like the lower left as you are looking at the pic wore a bit more. Granted I'm a youngster Ilieostomy wise...


Crohn's Colitis, Ilieostomy, Proctocolectomy November 2017


   
Dona reacted
ReplyQuote
(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
 

Here no problem lad, sure don,t we all wear one. I don't use paste but it looks to me you may be over doing it. the edges of the wafer have to much stool on them. Are you getting measuring round the stoma to get fit right


ileostomy 31st August 1994 for Crohns


   
Dona reacted
ReplyQuote
VeganOstomy
(@veganostomy)
Admin
Joined: 12 years ago
Posts: 4703
 

Hey Chris, thanks for posting that photo.

It's a great learning experience for us,so don't feel ashamed.

To me, that looks like more erosion than you'd want, especially after only 24 hours. But it's hard to see if the wafer is eroding or if it's the paste.

 


Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
Dona reacted
ReplyQuote
Dona
 Dona
(@dona)
Joined: 9 years ago
Posts: 832
 

Hi Chris. That does look like a lot of leaking and exposure of your ( precious) peristomal skin to the ( dreaded) output.

When I change ( I use a barrier ring) I notice that there is usually only a little discoloration in one area of the seal. Yours seems like it has leaked evenly. Not sure what that means , just an observation.

Have you tried a ring? Use pressure ( and heat) when you stick it to very dry & warm skin?

I struggled with this too ( we all do) . I can now get a reliable 5 or six days  ( although last week I had a blow out at two .. must be getting full of it...literally!).

I do keep a log of all my changes...very detailed, so I can try to figure it out. I think that has helped. 

Good luck.


Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


   
VeganOstomy and dulouzz reacted
ReplyQuote
Robert
(@njewell1)
Joined: 9 years ago
Posts: 763
 

Chris don't even worry about it we all have it or we wouldn't be here . I don't really know a lot myself still learning  guess we alway will be . But yes looks like a lot of paste . I did use paste before and did have leaks . That was with a flat barrier . Since I went to convex barrier  I don't use anything except the barrier no paste no ring nothing  . Seems to work for me but we are all different . 

 


Proctectomy , Ileostomy , Ulcerative Colitis


   
ReplyQuote
Chris
(@chris)
Joined: 9 years ago
Posts: 143
Topic starter  

Yeah.. I have trouble getting anything less out of the tube. I don't even know why I use paste to be honest. I think I just feel like it's got to be better than no paste. 

I have used rings in the past but suddenly I started getting output seeping below the rings for some reason and making its way out to the edges of the wafer. So I switched to paste.

Maybe I should try just the wafer. This was my first attempt with a convex. This is also called a "light convex". Maybe I need a "not so light convex"

When I clean my stoma with gauze, it reacts and shrinks down VERY small. I wonder if it does that when the wafer is on and seepage occurs than?  This is all very frustrating as I had everything going so well for so long. I've definitely gained a fair bit of weight. I guess I should focus on getting back to my post op weight.

Anyway, thanks for all the info.. though I was kinda hoping you would all say "Oh yeah, that's normal! No problem!Things are looking great!"

Great friends YOU guys are! ;)

I'll keep you posted.

 

 



   
ReplyQuote
(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
 

Hi Chris,

Just a thought would this type of product be of use,

https://www.veganostomy.ca/guide-to-ostomy-stoma-collars/


ileostomy 31st August 1994 for Crohns


   
ReplyQuote
Chris
(@chris)
Joined: 9 years ago
Posts: 143
Topic starter  
Posted by: john68

Hi Chris,

Just a thought would this type of product be of use,

https://www.veganostomy.ca/guide-to-ostomy-stoma-collars/

I thought about those, but my concern is this. My stoma sticks out about an inch to and in and a half. That would be great I if I lived in a normal world. Problem in... I live in a world with drunk surgeons who set up stomas so that the opening is about a quarter of an inch from the skin on the bottom side.
I seem to always have a bit of irritation on the skin when I remove the wafer and so I use the powder every time. I have also used a ring or paste every time.
Is there anyone out there who successfully uses just powder and nothing? Maybe I should try that. I'd be concerned that the edges of the wafer just wouldn't stick and the caulking qualities of the rings/paste give me a sense of comfort. Though it seems that they are just absorbing the output.



   
ReplyQuote
VeganOstomy
(@veganostomy)
Admin
Joined: 12 years ago
Posts: 4703
 
Posted by: Chris

I don't even know why I use paste to be honest. I think I just feel like it's got to be better than no paste. 

LOL. oh, oh. If you don't have the need for paste, don't use it 😀

I have used rings in the past but suddenly I started getting output seeping below the rings for some reason and making its way out to the edges of the wafer. So I switched to paste.

Rings can sometime cause this to happen. You may need to try a few different types to find one that works well with your skin. 

But back to my point above : if there isn't a specific need, don't use the product. 

Maybe I should try just the wafer. This was my first attempt with a convex. This is also called a "light convex". Maybe I need a "not so light convex"

Back to the basics is what I tend to do. 

When I clean my stoma with gauze, it reacts and shrinks down VERY small. I wonder if it does that when the wafer is on and seepage occurs than?  

Stoma shrinkage is a problem and it can lead to leaks.

Wear a clear bag (but use some kind of cover or band while with your family) and see if you can see it doing that under normal circumstances.

Good luck! 


Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
ReplyQuote
FelicityG
(@felicityg)
Joined: 9 years ago
Posts: 257
 

Stoma TV has helped me understand how it works and what it looks like when it is well. Hell, some evenings my husband and I watch the stoma antics. When Oscar is huffing and squeaking away we've just got to see what is going on.


Crohn's Colitis, Ilieostomy, Proctocolectomy November 2017


   
ReplyQuote
(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
 

Yep, all good points, keeping it simple is the best idea, the wafer and bag that's the main kit. then we have all the add ons from rings, pastes and all the other kit to aid and make life comfortable. introduce them one at a time and see how they work. it sounds like a convex is a must so start from their. I know suggested the stoma collar but i see now it some thing else to confuse things.


ileostomy 31st August 1994 for Crohns


   
ReplyQuote
Chris
(@chris)
Joined: 9 years ago
Posts: 143
Topic starter  

Yes.. those are all good points, thanks.

i think I'll get a clear bag. I've been using the vertical stealth belt lately..  and so hiding it won't be a problem.



   
VeganOstomy and john68 reacted
ReplyQuote
(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
 

Good lad, you keep yer head up


ileostomy 31st August 1994 for Crohns


   
ReplyQuote
Robert
(@njewell1)
Joined: 9 years ago
Posts: 763
 

Chris my stoma is like yours . I use only the wipe on skin protector and powder and a cover barrier . And so gar no problems  . 


Proctectomy , Ileostomy , Ulcerative Colitis


   
ReplyQuote
Robert
(@njewell1)
Joined: 9 years ago
Posts: 763
 

Think I need spell check ! From the looks of that last post . 


Proctectomy , Ileostomy , Ulcerative Colitis


   
ReplyQuote
Chris
(@chris)
Joined: 9 years ago
Posts: 143
Topic starter  

Hey Robert. What's s cover barrier?

 



   
ReplyQuote
Page 1 / 3