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The Snowball Effect: Advocate for Quality Ostomy Care  


New Member
Joined:2 weeks  ago
Posts: 2
08/02/2018 2:59 pm  

United Ostomy Associations of America (UOAA) is an organization that empowers people to get the care they deserve to live life to the fullest. The poor quality of ostomy care received by some in our community limits those lifestyle choices. For people living in the United States with an ostomy or continent diversion healthcare delivery is unequal.   A person with an ostomy should be treated as seriously as someone living with diabetes. At hospital discharge, it would not be safe or acceptable for an insulin dependent diabetic to be incapable of giving themselves an injection, self managing their diet and blood sugars, and obtaining their supplies. It is not safe or acceptable for any one living with an ostomy to be discharged without knowing how to prevent dehydration and not have access to care and supplies to live a healthy active life. We can't let the words “quality healthcare” become meaningless buzzwords for those facing this life-saving/ life-changing surgery. The time has come to take a stand.

To get the ball rolling UOAA recently revised the Ostomy and Continent Diversion Patient Bill of Rights (PBOR), which has become the foundation to stand on, to SPEAK UP. The PBOR states the details of the care people with an ostomy should expect to receive initially and during their lifetime. It calls for healthcare professionals who provide care to people with ostomies, to be educated in the specialty, and to observe the standards of care. It is a guide for patients and families to be active partners in their care, to know what is reasonable to expect so they can collaborate in their care and get the outcomes they deserve.

UOAA has taken the lead to generate this change by promoting the new PBOR and its use. We are excited by the response and support we are receiving and know we can continue to make big strides.

So the little PBOR “snowball” rolling down the hill is gaining momentum and is poised to impact the barriers for people who live with ostomies and continent diversions in America. Be a part of the change, download the PBOR and the Top Ten Ways to use it at


Shout Out to Eric at Vegan Ostomy for recognizing the importance of our efforts and spreading the word on his website! Step up and spread the word.

Note from VeganOstomy : I've personally approved this post. Eric

Edited: 2 weeks  ago

Zvitusk, VeganOstomy, john68 and 1 people liked
Reputable Member
Joined:10 months  ago
Posts: 280
19/02/2018 3:04 pm  

Other than "liking", what happens now? 

Joined:4 years  ago
Posts: 949
19/02/2018 7:44 pm  
Posted by: Zvitusk

Other than "liking", what happens now? 

Use it as you see fit or spread the word 😀

As the official page states :

Although UOAA’s PBOR is not mandated by law that does not make it less important; it just offers no legal recourse. It should be used as a guide for patients and families to know what is reasonable to ask for and what should be asked for to facilitate the best outcome for the patient. 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~

New Member
Joined:2 weeks  ago
Posts: 2
20/02/2018 1:32 pm  

Excellent question!  Excellent response from Vegan Ostomy: Use it as a guide in your own healthcare and share with new ostomy patients so they know what to expect and request.  In addition, we have created a one-page deliverable on other ways you can use the bill of rights document to help us drive change.

It is available at  I was unable to insert a picture of it to this post but here is a link:  Top 10 Ways for Patients to Use UOAA PBOR




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