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Stomas what can we do

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(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
Topic starter  

Hi Folks,

Its been great to see so many new Ostomates joining the forum, So you are now living with a Stoma! yep "living" with a Stoma. that's the phrase to remember. At the start I wondered what will I be able to do now! well over the years the answer is any thing you want. yes we have to be very careful that we don,t do something silly, we have limits but that's something we get in life any way as we get older! I can tell any ostomate new or old I have done more with one than without. Eric has been very clever in the construction of this site, yes we have the forum to share experience and advice but look at ALL the site, not only is it product reviews it showing us through personal experience what we can do. Just go to the heading "MORE" and click on PERSONAL BLOG, At the start it will be baby steps but when we enjoy life we will enjoy our stoma.


ileostomy 31st August 1994 for Crohns


   
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(@zvitusk)
Joined: 9 years ago
Posts: 397
 

I just learned something new. Thank you for sharing the personal blog info.

Had no idea .



   
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(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
Topic starter  

As Ostomates we face many challenges! But the best way of over coming those is doing our best to live each day to the fullest we can, The videos Eric has done showing the events and trips he has taken part in should inspire this. We don't have to be sky diving and the last place ye would ever get me would be on a Roller Coaster!! but it showing the freedom it has given the guy! to do what he enjoys and enjoyment comes in many forms. Zvitusk you help out by delivering meals brilliant that's pay back for you and rewarding. being well enough to enjoy your family that rewarding, it comes in many forms.


ileostomy 31st August 1994 for Crohns


   
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(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
Topic starter  

PS in Northern Ireland we have one Roller Coaster, the BIG DIPPER at Barrys in Portrush, slipping getting out of the bath would probably get yer heart racing more LOL.


ileostomy 31st August 1994 for Crohns


   
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(@zvitusk)
Joined: 9 years ago
Posts: 397
 

One of the benefits of helping others is that, for the moment, you aren't needy. Being on the giving side of life is so satisfying. 

Also, I am able to leave the hospital on my own two feet. 



   
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VeganOstomy
(@veganostomy)
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Posted by: Zvitusk

One of the benefits of helping others is that, for the moment, you aren't needy. Being on the giving side of life is so satisfying.

This! And helping others can be as simple as holding a door for the person behind you.

 


Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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Dona
 Dona
(@dona)
Joined: 9 years ago
Posts: 832
 
Posted by: VeganOstomy

This! And helping others can be as simple as holding a door for the person behind you.

 Metaphorically & Literally.

Personal note: My husband and I are off to New Zealand on the 29th. I will let everyone know how the long haul flight goes .. 14 hours. This will be my fourth trip by air since my ostomy and I am looking forward to it more that the others as I am much more comfortable in 'my new skin'. Thanks to this site and everyone's help. 

I figure my main thing while flying is to drink enough water! .. no one really understands but you guys just how much is necessary.

If I don't post again until I am back, I wish a wonderful new year to you all. I return in three weeks.  Eric..I know this is off topic! Beg forgiveness, be well).

 


Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


   
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(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
Topic starter  

That's a trip to look forward too, the very best and safe journey


ileostomy 31st August 1994 for Crohns


   
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Robert
(@njewell1)
Joined: 9 years ago
Posts: 763
 

Hey John I have to say I agree with you again Lad . I like the way you phrased it "living with a stoma" it is so true . I was reluctant to get mine at first but afterwards things have gotten a lot better . I am like you I'll not be jumping out of a plane anytime soon (actually you would have a hard time throwing me out) and am not a fan of roller coasters either . My freedom and relaxation has for years been riding my motorcycle . Before everything started me my wife and some friends would ride as much as 200 miles for lunch and then turn around and ride 200 miles back home . All came to a stop before I got my Norman but now we're back on not quite like we used to but at least because of Norman we are able to go again . Hence "living with a stoma" You couldn't have said it better ! And I try to help others as I can how ever it may be like Eric said even opening a door its the little things can make a difference .


Proctectomy , Ileostomy , Ulcerative Colitis


   
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Dona
 Dona
(@dona)
Joined: 9 years ago
Posts: 832
 

Thanks for the Bon Voyage,  John.

I guess South Island New Zealand is the home of adventure sports! Yikes.. we won't be bungee jumping, thats for sure. Driving on the 'wrong' side of the road might be exciting enough.


Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


   
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Robert
(@njewell1)
Joined: 9 years ago
Posts: 763
 

Dona Happy New Year to you and safe travels ! Have a great time !


Proctectomy , Ileostomy , Ulcerative Colitis


   
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VeganOstomy
(@veganostomy)
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Posted by: Dona

Personal note: My husband and I are off to New Zealand on the 29th. I will let everyone know how the long haul flight goes .. 14 hours. 

How nice!! I did 19 hours on a plane to get to South Africa, so you'll be fine - just try not to get bored! LOL

Looking forward to reading about it when you return!


Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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Dona
 Dona
(@dona)
Joined: 9 years ago
Posts: 832
 

Thanks Eric..I do feel good.

And ( like you, I suspect) I never get bored! 

19 hours must be about as long as flights get.. and we would love to travel to South Africa. At least we are headed to summer ( not that its so bad here in San Diego).


Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


   
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(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
Topic starter  

Yep Dona we would love to hear of yer adventure and it will be inspirational to others. Yer going to see the New Year in before us!


ileostomy 31st August 1994 for Crohns


   
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(@zvitusk)
Joined: 9 years ago
Posts: 397
 

Bon voyage. Send pictures.

Live large! 



   
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(@john68)
In Memorandum
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Topic starter  
Posted by: Zvitusk

Also, I am able to leave the hospital on my own two feet. 

Now that is a good feeling! I remember a hospital appointment for an ear problem, just a day thing and ye know what I felt good that it was not crohns


ileostomy 31st August 1994 for Crohns


   
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Dona
 Dona
(@dona)
Joined: 9 years ago
Posts: 832
 

Thanks for all the good wishes.  We will see the new year first I think, but we do loose a day! No 30th for us..or maybe the 31st? We arrive there on New Years day.

Strangely, only three times zones difference at this time of the year due to quirks of daylight savings time.


Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


   
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Marcie
(@shulmjs)
Joined: 9 years ago
Posts: 1510
 

Dona, when I was in Air Line (United) school, they told us that drinking water is very important as being up in the air dehydrates you and will age us earlier.. So, Ostomates, if and when you do travel by air-- Drink more!! 


2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


   
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(@zvitusk)
Joined: 9 years ago
Posts: 397
 

Drink up, me hearties, drink up!

:lol:

Drive safely,  and responsibly.



   
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