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BetterBowels
(@betterbowels)
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Posts: 24
27/06/2018 9:20 pm  

Hey ladies,

I hate to post two things so close together, but I've had my ileostomy for 2 months now. I became septic and my body probably went through a lot through surgery. Not that I'm complaining (AT ALL!!), but I haven't had my period since before surgery. Should I be concerned? I know I should consult with my doctor, which I will but I'm wondering if I'm not alone in this experience. 


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LK
 LK
(@dlkfiretruck)
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Posts: 529
28/06/2018 2:15 am  

Hi BB...I have had a lot of surgery and yes, it is common to have your system mess up cycles for you after.  Make sure you note changes, dates and experiences and take it to your doctor.  Follow you instincts. We have them for a reason.  It is really important to see the doc. and ask why? Write down your questions ahead of time so you do not let anything slide. When there take out your pen and your list and if you have to to help you remember from anesthetic brain fuzz, write the answers down or take a friends with you.  This is important.  When they give you an answer ask questions about those answers.

Get your rest and be well. You body has a big job to concur.

Linda


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BetterBowels
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28/06/2018 2:03 pm  

Thanks, Linda. I found some research about how surgeries have effected a women. I've already started my list of questions. If this experience has taught me anything, it's not to be afraid to ask. Thanks for the good advice. They were concerned I may have endo, but this of course was pushed aside in the emergency.


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Marcie
(@shulmjs)
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Posts: 1497
28/06/2018 5:00 pm  

Hi B.B. as linda stated, and I know also, a slight stress of mind or body surgery's can affect this "happy" area of our life.  You have only been out of surgery for 2 months.  take it easy-- let your body adjust.  Tell your Dr. so they know, and let them worry about this for a bit and you rest up.. IT IS YOU now girl!! Just YOU !!  Give it awhile.. just let them know by phone if u haven't by now-at least your getting a break huh? :-) Your still healing -- all over... Best to you..

2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


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LK
 LK
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29/06/2018 3:12 am  

Hey again...also remember that when they operated on your bowels, they had to move things around inside of you that may have disrupted your cycle.  In all honesty, I have a very rare  functioning system.  I was 28 when I had to have an emergency hysterectomy.  This was very difficult for me as I had also had 8 miscarriages. I do have two amazing adult kids. My daughter has MS. I want nothing more than to see her without difficulty of any kind, as is with all parents.  I have been sick with one thing or another for 50 years.  May I ask your age?  I am 60 now and somewhat amazed I am still alive.  I have had a variety of surgeries from anything called Extensor Digitorum Brevis Manis,  so rare that I was the 29, 30 and 31st patient that this surgery was recorded in the history of surgeries being recorded..  It was filmed for further teaching.  It was the 9th orthopedic surgeon who told me what I had.  This is just an example to let you know I am rare.  I could tell you many more instances marking up to my 42 surgeries.  You could say, I have life experience.  I also have had the tests to prove what I had so there was no seeking involved.  Only bad attitudes  of some doctors who may have fallen asleep in class.  I also have a well organized system of copies of tests, surgeries and doctors note and lab results.  When I started being told things were rare...I stared writing for copies of notes, this gave me proof and stopped certain professionals from making further insinuations in there tracks.  I only wish I had known how to use the papers and of the ones with findings long before hand.  They turned out to be gold in being taken seriously.  Right down to my heart surgery.  I have a big heart for those suffering when they are not taken seriously.  I can not say enough to make sure you tell your doctor everything going on with you and always ask for a copies of anything you can get. You have that right.  I have to tell them it is just for my own knowledge to get them sometimes.

You are questioning things and that is good. Do not ever settle until you are sure of your choices. Do  not let anyone influence you in a bad way and really...trust yourself and your intuition. Remember, in regards to your possible reversal...parents always mean well and want only the best for their children, mine did not see me suffer when I was alone and had stopped smiling thru the pain and frustration. This is your decision, your choice. You have to live with the results. Always be informed. Do not do anything suddenly unless you have no choice.

  Always remember too, that what you go thru has a cost to you...the patient,  and trust your past experiences to the knowledge of avoiding certain situations ever again. Never forget what you have gone through but do not dwell on it either.  Always move forward. Do not stall. There is always hope. Reach out when ever you need to. You are a strong and brave women.

I wish you all the best.

Linda

Linda


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BetterBowels
(@betterbowels)
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11/07/2018 10:48 pm  

Linda,

Wow! I'm sorry to hear you've been through so much. I'll bet it's made you a stronger person, although I'm not sure hearing that makes anyone feel better. For myself, my brother-in-law commented on my strength in regards to my life of "struggle" and I said, "I'm really tired of being strong." However, at least you're able to help others with all the experience you now have. 

Anyhow, the doctor said all the medication and sepsis probably caused my hair to fall out. Now, I'm losing hair because it's ready for the growth of new hair. And the same for my cycle, however, I regret to announce that mother nature has called yet again. 😑


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LK
 LK
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12/07/2018 5:35 am  

Better Bowels... Thankyou, but I am not sure if it has made me a stronger person or if I just have an attitude problem sometimes. It does bother me when I know someone has been dissed by the medical profession or by friends or family as I have been. It can be hard enough to be your own advocate,  let alone be in pain of any kind physically and have no answers, or do not know what to ask and,  maybe worse, have to hide it because you do  think it is normal and it sure is not.

The other day some of us were discussing  a Gas vent we can add to our bags.  I have always been able to laugh  about things when they go wrong, I think it is healthy to laugh at yourself or your situation. It can be healing.  But when there was input about the gas we can create, probably because we see the accumulation  we never saw before,  having pouches, I laughed out loud so loudly my dog thought something was wrong!  Anything from the size our bags can get to ...powering the  Hiddenburg, and if you don't you know, you likely will find out.  But the laughter I had over their responses was awesome.  I think  the last time I laughed at things like that was when my hubby was still alive.  He always thought that passing gas was  the greatest thing the human human body could do next to having babies.  When he was a teen, he and a friend took the match to some bodily gases  and took care of a hair issue for a few weeks by doing so.  The louder the gas the better to him. And if you could pass the two at the same time you were a genius !  The bigger the bathtub bubbles, the better! I could go on!

For him the heavier the blanket when passing gas in bed was also a great thing.  He once left such an essence I apparently was spitting air in my sleep next to him. He was  crazy like that. But, I loved him dearly and he had this sense of humor that puzzled me. I remember the greatest compliment ever given to me was from my man, he said " honey, n your good days you can give your Dd a run for his strength and energy".  My Dad is like the duracell bunny on steroids. To be compared to my father was mind blowing to me.  I think I want that carved in my tomb stone. 

The way I see it, we all go though things for a reason, it is what we do with it that matters. If I have helped someone, it is free, if I have not that is free too. You too have been going through a lot and your experiences will help too when you share that part of your life. We can all help in one way or another. For me, being free from silence is pretty cool. It may have taken me a bit, but I think we have something special here. I almost gave my computer to my son the night I found Erics sight. It is him we thank for this isn't it? 

The chance to confirm what is normal and what is not is awesome.  Forgive me for being s forward, but may I ask why you have a sad sort of face on mother nature calling? Dare I guess? I have to crash, it is 2;30 .m.

Later....Linda

Linda


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