Your daughter is a trooper and so are you for dealing with all of this! I think that the loop ileostomy was a good call, to give you guys time to make an informed decision on whether to reverse or not.

So even if this is rough right now, at some point this will hopefully just be a painful memory and she can go on live her life, like she deserves.

All the best to you and your daughter!

Momof2, 

I’m so sorry for everything your daughter is going through. I hope they can get everything on track. I had one of those vacuum wound pumps for almost a year on my tummy. They aren’t much fun, but they are supposed to be very effective. I was the exception to that rule. I sure hope it works for her!!

@momof2 hi, just checking in. I hope all is going well for your daughter.

Posted by: @momof2

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Hey guys, 

So she did end up having to come in for surgery yesterday.  They were able to get all the fluid, infection and a hematoma (which might be because she is on blood thinners because last admit after the surgery they found portal blood clots).  That's all the good news.  The bad news is she had some sort of weird, rare complication.  Her wound is not healing at all.  So they packed her and put this ginormous drain thing in her bottom.  She will be inpatient for two weeks and then we probably have to stick around for another two weeks.  

They are doing an MRI tonight or tomorrow and taking her back to the OR on Friday.  The surgeon said he might be able to surgically implant some sponge vac thingie (pretty sure that is the technical term) that will pull her tissue together and aid with healing.  He will have to surgically change it out every few days.  The whole process will take a month.  After two weeks though if she is doing well, he might let her go home and see a surgeon closer to home who trained at this center to handle the vacuum thingie charges.  

The great news is that this is not disease.  The disease is gone.  This is temporary.  It will heal and then she could go back to her happy ostomate life.  

The surgeon and I were reflecting on how some might say that it was a shame that she had the diversion for a year only to end up here but we look at it as the diversion got her to a healthy place where she could weather these set backs.  There is no way, as sick as she was that she would have been able to deal with this.  

Oh yeah and the really big plus of the three admits…..she gets visited by stoma nurse every few days and every discharge they give her supplies to take home so she is building quite the war chest of supplies;) 

   wow.........im so sorry she had to go thru all this.      stories like this are why i left the states and had no interest in the surgery.   i had made my peace and was prepared to die rather than let the butchers cut me up.     when i woke up post surgery with an ileostomy i was NOT happy.      but the care i received at Bumrungrad hospital in bangkok was beyond amazing and they helped me get used to this new life of mine.      i cant believe they released her after 4 days.       i wasnt released until 14 days post op and i had zero complications.     sounds like she went thru the wars.    i hope she is feeling better and recovering well.      i had major gas problems and upset stomach from ensure.      maybe try scrambled eggs with extra salt and some plain white bread.     

     fingers crossed shes on her way to a full recovery.