Robert, thanks, but this big strong woman is a bit angry right now--I eat the sugars, if I over do it, I get the leaks.. well more.. Had 2 this morning.. 1 when I woke up  (1 piece mio-they just don't last more than 2 1/2 days for me) and then another one #2 when I got to Club Med, I had on Nellies dress of a 2 piece, wasen't locked (well it was locked) in or snapped in proper.. So I got into the bathroom real fast and saw this and rang the emergency bell-(no way was I going to walk out and make more of a mess of myself) Nurses came bla bla.. Asked them to get me some wash cloths please, and got fixed up..  Came out and smiling   :-) Then, like every day, 3x a week they weigh me and when they/I saw it was 111 pounds.  I just waved my arms....... Told them I am going to the GI dr. Wednesday.  The head nurse was happy to hear that.. Tummy is puffy a bit-think that is the sugar...

I think that Nellie doesn't like Club Med these past 2 weeks.. huh?

But as long as I can take care of myself that is a good thing-can't complain.. Really--

Dear Marcie ,

I have respect for you. 

Keep on 'keeping on '.

I don't know if we will ever meet  , but I am glad to know you.

I pray for your getting healthier and heavier  and less frustrated with your situation.

You can hear our applause. 

Well Thank you my "z" (o.k. to call u this)??

I have been reading up on my issue-- go into weight loss/illness and I get coupons for slim fast :-(  No wonder I was going nuts over here!  Got to scroll down ALOT!! ) Anyways, I have on my list for the Dr. is Celiac disease, I want him to double check on my pancreas (as I had gall stones blocking that etc last year) digesting of any fats I think is NOT good for  me.. and I am not digesting anything-including fluids.. (no more slip and slides for me) :-)    And always in the back of my mind cancers that are had to detect. Such as the pancreas, bla bla.. Kinda bloated for my weight..--tiny bit--

And get this Eric!!! going to try to get into you vegan meals... Some anyways.. Until then Eric, fruits, salads, cooked veg. and grains but not to much to start off with.  Lower my sugar intake, which is not much anyways.. Not going to crash into anything fast- I am always hungry and always eating.. and then we have my singing NELLIE......

Well all I can say is that I am defentaly part of this crazy world 'cause I'm crazy myself in it and suriving.. :-) 

Thanks for your prayers " Z " Something is wrong, 3 years fighting this and totally loosing this fight-a dying fight !!!  if I don't get help MORE help than pass me on to another Dr. etc.

Gonna go hug my cat.. Mr. Poo, It is a full moon and he is rather scared as always.. come see mommy......................... :-)

What is the possibility of your traveling to a better medical center.  3 years  of struggle because you don't have an accurate diagnosis is rediculous. 

Your records can be sent anywhere in the world via computer. 

Get better doctors! 3 years,  SHEESH!

Well my dear "Z" That takes money--and travel-- I could go to Boston 2 hours.. but that also is a big hospital.. I will be looking up some areas in Ohio- Ohio USA, has a great many hospitals.. After I see GI tomorrow, and I don't get anywhere.. Next year I hit!!

I have been throug so much with this hospital staff.  When I first went to the ER I went down in pain and passed out-then I couldn't remember all my meds when I woke up.. the passed out again woke up in the pyhicratic ward as they said I was not within proper eye to eye contact! Had fever and quantined me-told me my pain was all in my head..  Then feaver gone, I told them If I am not out to here in 4 hours, my lawyer will proceed with leagal procedures.. As I asked for a MD 3 times, and nothing.. I also saw thing that u wouldn't believe!! call girls came in for staff member.. told my Dr's. about this and other things I saw, and told me to stay out of it.. Leave it alone.. (see they know what goes on in these places) I would not take their medications either!!!!! back home and about 3 weeks later well, u can read my all about me on the member--if they took proper care of me in the first place I would nit have gone through so much!! So I am a bit scared of being in a clinic .. away from home.... 

But is things get even more worse? I will call Dr. Phil---------- :-) and let it all hang out of what they did to me and what they did NOT do for me right away- pain all in my head-seriously?????? CAnt sue, I lpoked into that- cost 15,000 $ up front.. and u have to pay a Dr. over 10,000 to go to court and bla bla bla..  Not interested.. Don't have the  money..that is a game of stress. But I do keep in contact with the Vice President every few months-bugging the heck out of him.. what am I to do?  Bad experience.. "labeled" me in that ward for insurance payment too! That label word comes up-the all H- - - - breaks out.. as the above... 

Marcie sorry to hear about your trip to Club Med and the problems when there . Was the problem like you said because of the 2 piece and the bag just not getting snapped on all the way ? I haven't used the Coloplast products so I'm not familiar with them . I use Hollister 2 piece I think you have mentioned using them they are the only ones I've tried but I have no problems so no reason to switch . I think Z has a good idea maybe you need another opinion and yes your records can be sent anywhere in seconds maybe without you ever having to go anywhere . 3 years is just to long for you to continue to lose weight . You have an appointment Wednesday with you Gastro will be anxious to hear what they say .

YEs, I did not snap the 2 piece correct. I even locked it.. go figure huh/  Though that if you locked it. IT  was snapped right.. WRONG !! my fault.. 

Yes the GI, HE will be in shock after this visit--spent most of last night and today on the internet of the loss weight issue.. I am in a servere catogery now-  I am in a malabsorption area....... I'm also a person (as all the Doctors say-text book) so they have to work harder with me.. I am fed up with (your such a NOT text book person) answer-as they leave ..On  this visit I will block the door so they cant leave.. Got my not book of blood work/diseases to look into--  If you read into the upper area of this page, I was treated rather badly-and I feel that more problems went undetected. Although many tests a year ago proved nothing.. With Marcie? got to dig!!! I spend 3 days a week at Club Med, and I don't want my extra 2 days with that attitude..( I have a life too) ???  I have worked hard WITH my Doctors, I have followed everything they tell me!! I have researched what I could. I am not a Dr. but I can see some areas that I can/do fall into--  I am not a person that looks for problem either.. Trust me!!  look at my All about me-- When I do go down? I go down big time!! that is what I am afraid of now-- And then there is nothing they can do..  As this has been going on way to long with "oh-your just dehydrated" Well I am being hydrated!! NEXT??  When that happens.. They have to wait until I come out of  a server aftermath before they Dr. can pin point and care of the major problem which seems to me, was a dozzie!! Surgery to me and WITH me is like opening up pandorea's box.. SURPRISE !!! Like my copd.  This was a written fact 3 years ago-never told me!! Like last year, They Made an appointment to have my stent removed from  my pancreatic after  my gall bladder surgery heck! Don't tell the patient (me) I was in the hospital on that day of surgery they could have done it then.. So another apt. made, and the surgeon  was upset with me that I missed that apt. Said he was waiting for  me.. The nurses said it was a miss-understanding-- Well, I told him what happened-it was not me!!  told him that "I was still in the hospital for that apt. and he could talk with HIS office staff.. and kindly tell the pt. or leave a message on the home phone so my husband could take care of it"  Marcie is on a roll-- Now got bloating.. and uncomfortable.. and thinner.. No burps !!

Evening Folks, I was at my Doctors appointment this morning, Thankfully the bloating which I made the appointment has settled down. The doc give me a good over haul and really had a good feel round the stoma and tummy. said all was in order and bloods where done as well, I also wanted to find out where I was in the queue for the Dietitian, but still no word. She said its taking any where from 6-18 months for some patients to be seen. To may be help speed things up she has forwarded on a letter. Here in the UK our Health Service (NHS) is at breaking point! Its not getting the funding it needs, services have been cut and the staff are over stretched.

John, Glad this Dr. did a good feeling..  Pleased to hear that your bloating is down !! Sorry for such a long wait for the  dietitian tho-- I see mine Jan 11..  She is a specialist in the G.I. department.. I did interview her over the phone 2 times and I felt a "hug" there.. She wants me to do a blog, of my eating's and drinks etc. She said that she can put weight on me.(?) I suggest that u do the same so your one step ahead of the game.. :-)  Saves time. Especially of the long wait for you with this.. That is sad........ Best to you my friend.. Marcie...

At least your doctors are excellent. 

I also wondered what was God's plan that I live in Baltimore,  until I got ill. Best wishes .

Hi my "z" Whos r u talking to about the Doctors?  Getting your snow I see, no biggie.. huh?  We get it tonight.. no biggie.. /  Maybe you and John and Robert should help John out at the pub=beer=bloating.. OR a dash of salt helps the fizz.. 

Bloating can be so in comfortable.. Hope we all can surive the holidays with little as possible!!  Try to keep walking that helps.. no drinking with ice cubes-this lets air in-Just don't want to add to the problem!! 

John so sad to hear that it takes so long for you to get to a dietician.  I got in a month ago (only waited 3 weeks for apt) and then had a 2nd appt on Thursday. It has been one of the best things that has happened to me. With 4 different diets for four different diseases I was having a huge problem figuring out what to eat and what I could eat and not visit the ER.

English doctors are highly educated. 

Their problems with rationing of health care are a different problem. Same with Canada. 

I hope that this is not a can of worms. 

My observation is that many residents now use their smart phone to look up stuff. IT'S NOT WHAT YOU KNOW,  IT'S HOW TO LOOK  IT UP.

Hi Zvitusk, No doubt our medical staff are well trained, have a friend whos Daughter is training for a GP, Its a long hard road but its her vocation, For us over here its the middle men/woman setting rules and budgets and not always fairly. We have a great system here, care from the Cradle to the Grave I believe was the motto when the NHS was set up. Am sad to say it has been very badly abused. As mostly free its been exploited

Hi Ya Robert,

Yep the Doc give me a could over haul, she felt all round the tummy and stoma and said she could feel nothing wrong, she feels like me that its still best to see the Dietitian. Its ironic I have been trying to be more healthy in my eating habits this past while, For years and with the stoma I worked long hours on site and with machines and not a lot of breaks. skipping lunch (silly boy) deadlines to be met ye know craic Robert yerself working on sites! The problem now is the waiting list, its from 6/18 months but the Doc I have is very good and has done a letter to may see if she can shorten that.