@veganostomy that's what they are thinking but not positive. They won't go opening you up to find out unless a total emergency.. i was also told even if they were to go in that it would just be causing more adhesions.. @chelly ... Chelly, Im so sorry hon! That really sucks!! Stay strong and hang in there! I think it's good they won't just go in to look. Bowel surgery is such a life saving surgery and one surgery, any surgery, makes one subject to scar tissue. If I remember right, Chelly, you've had a few surgeries also ??  I had to completely revamp the foods I ate in order to survive this scar tissue nastiness! If there's anything you eat that you can't imagine giving up or don't know how to make it so you can still eat it... please, ask away. I was told to give up raw veggies! Ugh! I chewed that suggest long & hard & I figured out how to make foods I typically eat so much easier to digest when I do eat them. The whole area under my rib cage is full of blockage causing scar tissues. Just fold your arms & put them on your tummy, that's the area that the most affected from scarring in me. Basically anything above my bellybutton! Lol! There so much that can be done to foods we eat and love! I hope this clears up quickly for you! You're one tough cookie to allow GI Tubes. Linda @dlkfiretruck hello Yes I've had a whole lot of abdominal surgeries In my time. So the surgeon came I'm and he basicslly told me they will.getting me stable and i will need to be on soft food diet the rest of my time.. maybe if you can give me some ideas of meals and or foods that you are doing ok with. @chelly I am so sorry to hear this, Chelly! You have been through enough. I hope you are feeling better and can go home soon. Take good care.   Laurie Just a semicolon @tigerlily hi, Thank you! Im still in here and it's not my regular hospital so they are doing things very strangely than what im.used to. Slow moving. I still have the tube in but for what I see no reason as I'm not vomiting drinking water or eating ice chips. Im.hortibly dehydrated and getting very aggravated about this situation. This hospital is not a good hospital. They are talking TPN? Are you kidding ne for this???? The original.cat scan showed on the way to a blockage. No new imaging was done after. This all makes no sense.      @chelly ... oh dear... do you have a regular gastroenterology or GP that you can call from your bed. You may benefit from his/her input. Sometimes they can be your go between. They won't know where you are so it's okay to do that, and even if they do, it's still okay. You need someone you can trust in a situation like this. Has anything passed into your pouch at all ??? Are you still having pain? Are you needing pain meds still? Sometimes like you, I've had to assess where things were at with my body and figure out for myself if a blockage has cleared. I've felt trapped in the hospital before so I understand how it is when you start to question things if Docs or Nurses in particular get a little over eager!!  You should make a list of questions and get answers about why they think you need TPN if its brought up again. Ive had it where a nurse says one thing & the doctor knew nothing of it, so unless its the doctor saying it to you, you may still be in the clear. Also, you can ask for a patient advocate. They have to send you one . They can make sure that your concerns are being answered. They usually come from the social services in hospital department here in Canada, so who knows where you get them from where you are. But it's a safe person to ask to help you get answers. When you get home we can talk about meals, but I think its better if we start with what foods you like so your not stuck eating my types of foods. There is so much you can do to change foods you eat & still enjoy then. . . Good luck with all this. I've been keeping an eye on your forum. Stay strong & don't be afraid to ask those hard questions, it's your right to get answers and to have a couple days to think about what you want done or not. You are allowed to say no! Oh, one more thing, the GI Tube may be bothersome right now, but it's easier to have it then to have them put it back in. Linda @chelly ... hey there! I'm back checking on you to see how you're doing? I hope that things have changed for the better for you? What do you have available to pass the time away. Do they have magazines back for you to thumb thru yet there? I'll be back to see if you checked in at all. Just know that I am thinking about you & sending prayers for you as well. Hang in there!! Linda @dlkfiretruck hello, Well I'm home now. They said the TPN would be because I can't eat. They dehydrated me in there. Not putting fluid bags up for 3 days till I had to advocate for myself and then it was playing catch up to rehydrate me. It was not my usual hospital and altough they did try it was just not the same. I still don't feel well. No TPN and they said liquid diet for 2 weeks but I've already had to advance to a soft food diet be cause I dont have the means to stay on the liquid diet. I'm just taking slow bites and little portions. @tony-h hello, I've had TPN before and it made me feel so sick. I think they were overdoing it. That was after my total prictocolectomy with end ileostomy. I'm home now and am doing a soft food diet but im.still not the same. I dont know what's causing this but i see my surgeon on The 6th and supposed to have surgery for stoma revision on the 7th. He won't be going inside for the revision though so i dont know how this will play out.  @dlkfiretruck hi, just seeing this now and as you see in my replies above I'm home now. I was watching movies and just reading online on my phone while I was in there mostly. @tigerlily thank you and to all of the others. Your such a supportive and nice group here. All of your kindness is much heart felt. My Surgeon was not at this hospital which made things very hard on me. I was on a list to transfer but it never happened. Still in the dark on what's going on but they somewhat stabilized me. I'm kind of still feeling it here though like somethjng still is not quite right. Will see my surgeon on The 6th but I'm going to see if i can get In sooner with him. @dlkfiretruck came back to answer your question about was anything coming out in my bag. Yes everytime I've had an obstruction I had stuff in my bag. Maybe a partial? Not sure. I did not get too many answers. @chelly hey Chelly great that you are home ,that's the best medicine, esp sleeping in your own bed , TPN was hell for me and I was put on it after getting C DIFF ,  Sorry if I sounded like I was preaching ,reading back it sounded that I might have .  @tony-h no worries, I did not think you were preaching at me. I took it that you were just trying to console me that I needed nutrition if I had to be put on it. It was hell for me too when I was on it. Yes home In my own bed. A full shower too! They would not let me shower with that tube in my nose and then when they took it out they put some heart monitor on me so i could only shower my bottom half. The shower floor was sticky too like they did not clean it well and only hotel size little bars of soap. Thanks for your kindness I don't think anyone understands the impact these conditions (Crohns and UC) have on people , Even post surgery the effect of all the strong meds play havoc on our bodies , It's great to have this site where we know people understand and just listen when we need it , Best of luck when you do see your surgeon . @tony-h no they really don't. I guess unless things happen to them themselves or a family member, it's hard to grasp at how debilitating things really are.
Community Forums
Notifications
Clear all
Topic starter
January 20, 2025 3:41 pm
January 20, 2025 4:45 pm
Topic starter
January 21, 2025 2:16 am
January 21, 2025 9:19 am
Topic starter
January 23, 2025 7:59 am
January 23, 2025 8:25 am
January 23, 2025 8:30 am
January 24, 2025 9:44 am
Topic starter
January 26, 2025 2:31 pm
LK reacted
Topic starter
January 26, 2025 2:35 pm
Topic starter
January 26, 2025 2:38 pm
Topic starter
January 26, 2025 2:43 pm
Topic starter
January 26, 2025 2:47 pm
January 26, 2025 4:00 pm
Topic starter
January 26, 2025 11:45 pm
January 27, 2025 10:08 am
Topic starter
January 31, 2025 5:58 pm
Page 1 / 2
Next