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Crohns on stoma?  

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Raine
(@raine)
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Joined: 8 months ago
Posts: 36
September 19, 2018 3:52 pm  

I was back to the WOC nurse today because of another ulcer.  She was asking how my crohns was doing because she noticed what she thinks could be inflammation on my stoma.  Has anyone else had active crohns on their stoma? Grrrr I have been feeling so good I never considered that it was active disease.   

Raine


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VeganOstomy
(@veganostomy)
Admin
Joined: 5 years ago
Posts: 1942
September 19, 2018 4:32 pm  

Hi Raine, 

I haven't had Crohn's related ulcers on my stoma, but it's definitely something I've heard of. 

Is there any follow-up you have? Like a blood test or scope? You'll want to rule out that it's actually Crohn's before taking the next steps. 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Raine
(@raine)
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Joined: 8 months ago
Posts: 36
September 20, 2018 8:27 pm  

I don't have a scope until December , but I do see my GI doc in November.  And I'll make sure to mention it to him.  I wonder if it could be because my stelara shot is due?  I was hoping it would put me in remission.  🙁

Raine


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