VeganOstomy’s 3rd Blogiversary! (Send Me Your Questions!)

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Wow, has it really been three years since I wrote my first blog post introducing the world to this site?

August 7th, 2013 is when I started this blog, and I have no plans to slow down anytime soon!

Video:

Because hearing other people’s stories helped me to accept my own surgery, I decided to share my experiences as an ostomate as a way of giving back.

Through the years my motivation to help others has grown stronger than ever and I’m so grateful to have the opportunity and support to do it.

You guys have emailed me your own stories, your own struggles, your praise, and your questions.

I enjoy receiving and replying to them all!

Of course, I started blogging a few weeks before my ostomy surgery, so to celebrate my upcoming “Stomaversary” I’m asking you to send me your questions.

I’ll be answering your questions through a video response and share it on my Stomaversary, which is August 21st.

So go ahead and ask about my ostomy life, products I use, my diet, even request a topic you’d like me to cover!

You can leave your questions in the comment section, or through my contact me page.

Looking forward to it!

Oh, and to keep the tradition going, here are my top ten posts this past year:

  1. Dressing with an ostomy: A clothing guide for men. (w/ video) (1st last year, too)
  2. Dealing with Ostomy Pouch Odors – Ostomy Tips (W/ Video)
  3. Ostomy Appliance Won’t Stick? Here Are Some Tips (W/ Video)
  4. Dealing with Ostomy Leaks – Ostomy Tips (W/ Video)
  5. Ostomy Diet: What to Eat in the First Six Weeks (W/ Video)
  6. Dressing with an Ostomy: a Clothing Guide for Women
  7. A Mini Guide to Ostomy Supplies: Stoma Powder (W/ Video)
  8. Healing the Skin Around the Stoma – Ostomy Tips (W/ Video)
  9. Stealth Belt – Review (still the most popular review three years in a row)
  10. The Stuff You Don’t Hear About Ibd (WARNING: graphic content)

And my top five videos (on YouTube):

  1. Ostomy care: Healing the Skin around the Stoma
  2. Ostomy clothing guide for men
  3. Coloplast Sensura Mio #10471 ostomy bag: Product overview
  4. Hollister New Image ostomy system overview
  5. How to Change an ostomy bag: Ostomy Care Tips

While I love doing product reviews, I’m really glad to see that people have been coming to the site and watching videos on how to care for their stoma.

I’m certainly looking forward to the next many years of blogging :)

Be well,

Eric

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35 Comments on "VeganOstomy’s 3rd Blogiversary! (Send Me Your Questions!)"

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Marcie
Member

Hi Eric, Wonderful thing you are doing and created!! Wonderful!!
Question, If there is air/gas in pouch, does this equal to/with the so
called “fill” time to empty? as the out put is the same as gas?
Measurements? Make a leak like a full liquid?
I know no one wants to walk around with a “puff”- but will I get a leak?
Thanks Marcie..

Robert
Member
Robert
Thank you Eric for getting back to my question so fast . I did see your video and article and it was very helpful . I just watched your video about the gel packs . I am currently trying the Par-Sorb do you have any experience with that one ? It does turn things black but does seem to work well although I don’t use it every time I empty I’m still just trying it out . But I have another question for you about lubricants . I am currently using Adapt lubricant from Hollister but I add baby oil… Read more »
Robert
Member
Robert
Good Morning Eric I am almost 1 year to the day of having Ileostomy surgery . I am eating pretty much what ever I want so far with no problems . But I do have to empty 6 or 8 times (depending) in a 24 hour period . So my question for you is . Is that to often ? Or what would be an average amount of times to empty ? I know it probably depends on how much you eat but I don’t eat a whole lot during the day and have actually cut down on dinner from… Read more »
Marcie
Member

Robert. 6-8 times is very nice!! That is the normal from what my Dr. told me. Your doing well !!! I was up to 20 times a day yes twenty times-and still some of the time.. and I am 3 years..But, I have a very high out put. Be happy with this!! Take care of yourself now!! Keep reading these informative avenues on this blog.
We are all a new normal life.. Our own club!! Nice huh? Marcie.

Robert
Member

Hi Marcie Thank you for the support  . Things are a little different now depending on the day 6 or 8 times is a really  good day if I don’t eat . Lol .  Probably 10 + in a 24 hour period is actually more how it is now . But hey its better than 15+ times a day with pain and urgency .

Marcie
Member
Robert, You have to eat!! Most new ostomates don’t because they don’t want to empty–and the list of foods that they give us NOT to eat we get scared.. then we become malnutrition. I did.. but that also came with my other issues- If I drink water? it goes into my pouch within 5 or less minutes. So I have MANY other issues.. Stay away from corn!! chew your salads well, just chew everything well. Sugars not good, but if you read these blogs, go half with water. I have a great support Group also-And this is a new find… Read more »
Robert
Member

And yes you are right we have a different  normal now . But with this forum I am learning .

Marcie
Member
Soooooooooooo Much to learn!! And keep on learning. By the way, I eat steaks, pork chops, (not as much as I did before) Chinese food, pizza, fruits, if u chop up fruits small you can handle the inner linings like oranges, apples pealed- common since my dear. build it up slowly– Mostly WE have to graze eat = small grouping at a time. The beer/sodas will get you tho– that is a gas drink-but if your going to be around the house? treat yourself.. Where do u live Robert? I can find a support group for you. Did you know… Read more »
Robert
Member
Marcie  I do have a a couple beers at home and when we are with our trailer so I have my bathroom . Lol . Food wise yes I eat pretty much everything I want I even like hot foods . It may all affect me in a way but it’s what I eat . I do eat meat n potatoes a lot not much vegetables  . Yes I know about October n ostomy awareness  . I am in So. CAl . There is a support group here I have been . But now I do Eric’s  group vegan ostomy works… Read more »
Marcie
Member
Yes. Eric’s group has helped me.. Better than the hospital and the Dr. office that did this surgery!! What a wonderful idea he had!! This is such a personal subject and I feel that we all are one!! Are u in the U.S.A.??? I am in New England-Ct. I go to my support group sometimes. As there are people that I can go out with and learn not to be afraid of my condition. Thursday I will go to lunch with my president of this group she also was my visitor-came to my house-what a blessing she was!! I was… Read more »
Marcie
Member
Hey Robert, how about the October Feast in Germany? I have been there! Great!! Maybe we can celebrate October Ostomcy and the October feast over there?? The only thing is that they charge u for toile paper and u only get one VERY thin piece!! And trust me, that is a long line… But my traveling days are over with, as I am dehydrated-I go for infusions 3 times a week.=12-14 pounds of fluids pumped into my power port for my organs. Soooooooo refreshing!! bla!!! I got hit hard with my ileostomy – I was so sick !! Didn’t ever… Read more »
Robert
Member
Good Morning Marcie . The Germany thing and October fest sounds good I’ve never been and I have great grand parents that came from there . But I’ll probably never make it especially since you have to buy the TP . Haha . Sounds like you have really been through a lot . More than anybody should have to . The times you spend in the trees sounds nice with the changing of the colors my wife and I like to go camping in the mountains (in our trailer with a bathroom Haha) with the pine trees and smell the… Read more »
Marcie
Member
YEs, the pine trees-the smell is so breath taking!! I to love the walk in the leaves in the fall as they crunch.. and the smell is refreshing. It is 80 degrees here in Ct. today- So we will be off again to the lake up the street. So private (I hope) Although, we live in a very well treed area. Crazy New England weather. Properly get 2 feet of snow next week– You said that you got infusions-for dehydration? That is me. How are you doing without the infusions now? How do u cope? what do u do to… Read more »
Robert
Member
Yes the smell of the pines is great and the smell of bacon cooking outside in the pines it don’t get any better . I stopped doing the infusions about 5 years ago couldn’t afford the copay . I was getting the infusions for my ulcerative colitis to try and get it under control . Then started on oral stuff to fight it one was Immuran which ruined my immune system . Off that for now but my have to start back on it again . I will probably find out Tuesday I have to go for a scope because… Read more »
Marcie
Member
Robert, Camping is want I miss… Not the mosquitoes tho– What is immuran? and why did have u to get this? Is it for dehydration? When u turn 65, get the best insurance u can get!! We pay a good 5,000 a year for ME. One trip to the e.r. w/ ambulance cost more than my whole year.. So it is worth it.. Pays for everything-pouches, and everything that comes with that.. Add this up? Judging by what others are talking about, it is indeed a positive measure for me/you. Lets face it, we are sick, but anything that comes… Read more »
Robert
Member
Good Morning Marcie Well morning here anyway Ha . Imuran is (Azathioprine) My Dr. prescribed that to me after doing Remicade infusions and Prednizone and all the other ones that they give you because your taking another one . Take one then take another because of side affects of the other one it goes on and on . But now I am off of some of them . The infusions for me wasn’t for dehydration but to battle the UC haven’t done those for a few years . But thinking about asking Dr. about doing that again so I can… Read more »
Marcie
Member
Hi Robert!! Hope they put out for all these scopes. We have been through enough already!! I had the biopsies taken last Dec. (another 3 week hospital vacation) also-clear bill of health there FINALLY!! Odd but true.. –one for my record– A Clear light at the end of that tunnel huh? for me anyway-and hope for u too! I think that you have been through to much within this area, And this areas are pissed off and trying to heal-takes time.. Mediations may be just a text book issue for you-Try being nicer to this system of yours-eat easy foods… Read more »
Robert
Member
Good Morning Marcie I agree with you we have been thru enough You more so than Me . I appreciate your concern for me but I think about all that you have been thru and are going thru you have it much worse than I do . I am really sorry to hear about the emphysema sometimes you really gotta wonder about some of these doctors . Fortunately the one my wife works with is really nice and a very good doctor .But the hospital she works for can be another story . I am not one for going to… Read more »
Marcie
Member
Robert, I canceled my Dr, appt. not feeling well-it will pass. So, I have all day to think of you and Norma getting the news-and hope for positive-YOU deserve good news. No more operations!! But if so? and it WILL fix what is driving your health down? then you can handle it. After all we have all handled so much the past years. -what’s one more? Do u really need all those med’s now? Hope u Google them- But Norma can get the down and under of them from doctors. If your taking aspirin (like a friend of mine did-caused… Read more »
Robert
Member
Good Afternoon Marcie Well its over like you said there is light at the end of the tunnel no operation needed . My bleeding is being caused from my UC flaring up . For now have to do suppositories (oh great huh) for a couple months then I go back for follow up and go from there . I’ve done them before but I sure don’t like them much . Most of the other meds I take are for the breathing and for my heart . Although my heart just checked out ok I have a not so good family… Read more »
Marcie
Member
Good news!! No operation which means no major compilations.. What kind of ostomy do u have? You have UC, from little of what I know now, you still have intestines.. ?? You have much to deal with your heart etc. Like you do have shoes hanging over your head and can see them–Maybe your heart may not be not so weak as your family’s- history!! Seems like u have a bit of stress there-I am happy that you have a Dr. for your heart and keeping in contact with him/her. That is a plus!! U’r a good patient.. Along with… Read more »
Robert
Member
Hi Marcie . I have an Ileostomy had surgery for that 9/19/2016 they removed most of my rectum at that time and gave me my ostomy . I had already had my colon removed 7/23/2015 . Yes I have UC actually started with that in 2008 worked while having it as long as I could till there again Norma convinced me to have a total colectomy but that still didn’t help a lot . So here I am now doing better I think my biggest battle is probably physiological but that’s getting better too . Yes I guess I’m a… Read more »
Marcie
Member
Robert, You have had so many MAJOR surgeries-each one about a year apart!! That is way to much of one to handle.. And I believe, from what u told me, one was a long scar healing. !! So u have been through noting but healing’s which is so difficult (DID U had cancer? ) Dr. says that it takes a good year to come out of these operations In the first place. Yes, Physiologically is the problem we all face with on going surgeries-some just don’t realize this-and the surgeons don’t tell you of this do they? Just slap on… Read more »
Robert
Member
Hi Marcie . I guess we all have had tuff times mine sounds bad but to me not near as bad as all the trouble you’ve had . I feel better than the way mine sounds if that makes any since . I did not have cancer before just the UC and along with that I had C-Diff 3 times . Yes my first surgery I had 19 staples till the day I was supposed to go home and they found an infection in it . Doc took out all the staples right then and scrubbed it out hurt like… Read more »
Marcie
Member
Hey You!!! Hope your having or had a great time away.. it id so good to get away– My son took me out to lunch-as I got up at 12 today– We took a nice ride through the old roads and found nice lakes hidden from the normal paths.. Lots of dirt roads and rather bumpy==took my SUV-NOT HIS CAR.. hummmm?? Stupid me I had coffee so, I had him make many stops as Nellie got very active, now she is sore around the bottom of herself-so the anti-cream is out.. My day off from infusion? MY DAY OFF and… Read more »
Robert
Member
Good Morning Marcie . Yes had a good time taking pictures and seeing our daughter . We were only gone about 4 hours but nice ride thru the mountains . Sounds like you had a nice ride too with your son nice off him to take you to see all the beautiful country and get you out for a bit at least you were prepared to take care of Nellie . That’s strange about your weight up and down . And even since you get all the fluid pumped into you 3 days a week plus drinking and eating as… Read more »
Marcie
Member
As far as my soma and the pictures I have seen here on the blog-my opening is smaller– no way could I pass corn.. But I do pass stringy stuff.. and some onions, and doesn’t hurt=unless I ate a lot of it.. (the pan-caking/blockage-little one)That is why I do a meaty meal every other day– OR not every meal — IF I do eat a lot, I lay on my side for bed time.. Yes, I do lay on the same side of my stoma.. Getting cold out– Got 4 inches of rain the other day- and Sunday? a good… Read more »
Marcie
Member
Hi again Robert, What you eat NOW can give you a blockage-want more surgery?? (corn) Your going into a forward straight line now– I read that UC,And crones etc. can or r heredity. I wonder what has been kept from me.. My god son has Crones as of age 19 years old. Cant get in touch w/him of of his mother the nurse– I feel so sorry for this kid.. He is maybe 33 now.. So. as I read all of what these people here are going through-I can only pray that he will have it easier-but things like this… Read more »
Marcie
Member
Robert, I went through the scope last December, not a big deal–small bowel. There are loops and that is normal-but if twisted? Make sure that u ask the Dr. more about this if any loops and how bad they are. BEFORE THE SCOPE!! From what I have experience with MY medical performance’s, is that u have to be a Dr. to go to the Dr. So now u can play Dr. ASK QUESTIONS!! Google everything about your body!! All Doctors say that I am NOT text book!! I agree.. (I was walking talking and then down for a long time)… Read more »