Community Forums

@dlkfiretruck Linda, thank you so much for the reply. So you first had a j-pouch and chose a stoma instead? What was the reasoning? You're rig...

@veganostomy My surgeon and I did talk about it the day after I posted this. His thoughts are like mine -- it could be great, it could be awful. We ...

@jtvt Thank you for your reply. I don't have a colon, so the question is to I keep my ostomy or do I do IRA. I think my SMA syndrome is under contro...

@john68 Thank you. Maybe there is still some hope and things will improve.

@veganostomy I imagine it’s related somewhat. Both waves and constant — like the constant can last hours and hours. Sometimes it’s just because I have...

@veganostomy I definitely don’t have a blockage — we checked with a ct recently. Output seems okay and I’ve recently moved from tpn to tube fed and th...

@dlkfiretruck Thank you for your thoughtful reply! I do some massage but it doesn’t help much. The warm blankets or heating pads or bottles don’t seem...

@john68 Yes, it looks good (save for some finicky stitches since I’m a few weeks out), and wafer is good.

@john68 Yes same docs. But he works with a huge team so I’ve had a lot of input on my case. I think I’ve had many opinions by now. My output is not ve...