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Sea Swimming With an Ostomy

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Tony H
(@tony-h)
Joined: 7 years ago
Posts: 259
Topic starter  

Hi i have been having some trouble with leaks lately and I think I have narrowed it down to swimming in the sea , I swim in a wetsuit so there isn't much water in contact with my appliance , 

Could anyone suggest a way to waterproof my appliance and protect it from the salt water , my only option is to go for a swim on the day I change , so instead of daily swimming I get a swim every three or four days , 

I am switching to the new coloplast concave system and I think the coloplast glue is better from experience using them a few years ago so that might help a bit , any way going to give the swimming a miss for a few days for my skin to recover  


   
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cygo
 cygo
(@cygo)
Joined: 2 years ago
Posts: 90
 

Hi,

I paddle board / swim in salt water with out wet suit and do not have issues with leaks.

I also swim in a chlorine pool 3x a week with no issues due to the swimming.

I use Coloplast Sen Sura Mio Convex light barrier and the 4.2 Brava protective seal (ring).

Without the protective seal I will get leaks, with it I seldom do and they are not caused by swimming.  

During appliance change I use the adhesive remover spray / wipes then the powder and barrier spray / wipe.

I apply the protective ring to the barrier first to ensure good seal and then apply to my body.

I hold it in place firmly pressing against it for a couple of minutes.  

hope this helps leaks are no fun.

cygo

cygo
Ileostomy


   
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Tony H
(@tony-h)
Joined: 7 years ago
Posts: 259
Topic starter  

@cygo thanks Cygo , i think it might not be the sea water , I have lost a bit of weight , and I am going to switch back to coloplast and try their new concave wafer , that might do the trick , really annoying as im enjoying the sea swimming immensely ,

tried a few of your suggestions and if I can get the skin to recover I'll go back in ,

thanks again for your help 

Tony 


   
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cygo
 cygo
(@cygo)
Joined: 2 years ago
Posts: 90
 

@tony-h 

Hi Tony,

If I use regular wafers I get leaks, so hopefully changing to the convex wafers helps your situation.

 I also want to mention that I always take a hot shower after removing the old wafer which ensures any adhesive residue is fully removed.

Best of luck, hopefully you’ll be back in the water soon.

cygo

cygo
Ileostomy


   
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VeganOstomy
(@veganostomy)
Admin
Joined: 10 years ago
Posts: 4176
 

@tony-h If you already don't, I'd suggest using a tube that fits around your stoma (I use an empty toilet paper tube) and hold it there in place with gentle pressure after applying a new wafer. This will ensure complete adhesion around the stoma, and I have great success using this method, even when the edges of my wafer are peeling and the only thing holding on is the center of my wafer ???? 

The only caveat being that your skin needs to be healthy and not damaged or weepy in any way, or adhesion would be compromised regardless.

If your skin is already damaged, I tend to find that "regular wear" appliances and full hydrocolloid wafers (no tape borders) help to heal the skin better than extended wear and more aggressive adhesives.

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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Tony H
(@tony-h)
Joined: 7 years ago
Posts: 259
Topic starter  

Posted by: @veganostomy

@tony-h If you already don't, I'd suggest using a tube that fits around your stoma (I use an empty toilet paper tube) and hold it there in place with gentle pressure after applying a new wafer. This will ensure complete adhesion around the stoma, and I have great success using this method, even when the edges of my wafer are peeling and the only thing holding on is the center of my wafer ???? 

The only caveat being that your skin needs to be healthy and not damaged or weepy in any way, or adhesion would be compromised regardless.

If your skin is already damaged, I tend to find that "regular wear" appliances and full hydrocolloid wafers (no tape borders) help to heal the skin better than extended wear and more aggressive adhesives.

 

thanks Eric , excuse my ignorance but what are full hydrocolloid wafers ie which brands , im waiting on the new coloplast concave wafer and getting a few salts samples as well , 

took Cygo's advice and went back to basics cleaned the area in the shower and washed with head and shoulders(well diluted) , used the crusting method , applied the seal to the wafer and used coloplast elastic tape to seal the outside , and now its 36 hours and still ok , no burning , 

thanks Cygo and Eric for the support , hopefully I will be back to my normal routine soon , first time in over 6 years I'm having a bit of a problem so can't complain too much ,

Will get back in the water tomorrow Cygo , wife was in at 7:30 this morning , air temp was 1C feels like -4c and the water temp was 9C 

 


   
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(@john68)
Joined: 6 years ago
Posts: 2018
 

Hi Tony, The full hydrocolloid wafer is all the same as the bit in the middle of the current wafer u are using all the way . I have always used the Convatec natura. They are very good at not putting or peeling at the edges. I have always found they have been kind to my skin. 

ileostomy 31st August 1994 for Crohns


   
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VeganOstomy
(@veganostomy)
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Joined: 10 years ago
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Posted by: @tony-h

thanks Eric , excuse my ignorance but what are full hydrocolloid wafers

John is spot on.

I guess an alternative way of saying it is "a wafer without a tape border".  All the Mio appliances appear to be fully hydrocolloid, including those Coloplast concave wafers you're waiting for.

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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Tony H
(@tony-h)
Joined: 7 years ago
Posts: 259
Topic starter  

thanks John and Eric , two days now and counting , if I can get the third day I will be on the way to healing , cant complain too much , most of the last 6 years have been trouble free , should have samples coming from convatec as well their mouldable baseplate looks promising .


   
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Tony H
(@tony-h)
Joined: 7 years ago
Posts: 259
Topic starter  

4 days in and still no burning, will change tomorrow after a shower and start off again, thanks again for the help guys 


   
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Tony H
(@tony-h)
Joined: 7 years ago
Posts: 259
Topic starter  

Update, tried the new Coloplast and it was a disaster, 6 hours and woke to a leak with output fully under the whole of the wafer, back to Hollister and will try the convatec with the built  seal next month. 


   
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VeganOstomy
(@veganostomy)
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Joined: 10 years ago
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Posted by: @tony-h

Update, tried the new Coloplast and it was a disaster, 6 hours and woke to a leak with output fully under the whole of the wafer, back to Hollister and will try the convatec with the built  seal next month. 

Oh wow, that's not good! That's also surprising, but not all products work for all skin types. I'm glad you did try anyway.

I'd be interested in hearing your experience with ConvaTec, if you decide to try their products.

 

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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Tony H
(@tony-h)
Joined: 7 years ago
Posts: 259
Topic starter  

at least the skin is ok now Eric , I have salts samples (Confidence BE ) arriving tomorrow and still waiting on these ones 

https://www.convatec.com/en-gb/products/stoma-care/surgery-type/pc-stoma-colostomy/natura-convatec-mouldable-technology-baseplate/

 

 


   
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cygo
 cygo
(@cygo)
Joined: 2 years ago
Posts: 90
 

Posted by: @tony-h

Update, tried the new Coloplast and it was a disaster, 6 hours and woke to a leak with output fully under the whole of the wafer, back to Hollister and will try the convatec with the built  seal next month. 

Tony,
I am sorry to hear Coloplast didn't work for you. It is interesting how products work on bodies.
I hope you find your solution soon and are back in the water.
Interested to hear what you think of SALTS brand if you try it.
cygo

cygo
Ileostomy


   
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Tony H
(@tony-h)
Joined: 7 years ago
Posts: 259
Topic starter  

Hey Cygo, all nearly back to normal, I think it was a combination of factors that lead to my problems, 

Went back to basics with the Hollister and measured my stoma really accurately and really cleaned the area properly and took your advice on putting the seal ON the wafer first, warming the wafer and seal sand so far so good,,

The salts bags I got are one piece drainable in black, they look to be great quality, I will definitely try them soon, 

 


   
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BigMike322
(@bigmike322)
Joined: 5 months ago
Posts: 74
 

I haven't tried this yet but Stealth Belt makes a neoprene version that,so made specifically for water activities.  (Surfing, paddleboarding, knee boarding, etc.)  My goal is to get back on a paddle board the first chance I get.  It will be a while for me because I live in the desert but my goal is this Summer; time and leave from work permitting.  


   
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BigMike322
(@bigmike322)
Joined: 5 months ago
Posts: 74
 

Also coloplast worked great for me when I had my original loop ileostomy.  But when I had my new one, they had mostly coloplast supplies and I had all kinds of leaks until they got me some hollisters.  Several of the nurses told me they preferred hollister but coloplast got the contract.  I haven't written off coloplast I still use and love their pouch extenders and I may try their 2 price with the smaller flange in the future.  


   
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VeganOstomy
(@veganostomy)
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Joined: 10 years ago
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Posted by: @tony-h

The salts bags I got are one piece drainable in black, they look to be great quality, I will definitely try them soon, 

Yeah, I was given a sample by a friend at one of the ostomy events I was at, and the Salts Confidence BE have a very professional look and feel.

Posted by: @bigmike322

I haven't tried this yet but Stealth Belt makes a neoprene version that,so made specifically for water activities.  (Surfing, paddleboarding, knee boarding, etc.) 

I haven't used that one, but it's also an option to consider! Thanks for mentioning it.

 

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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Tony H
(@tony-h)
Joined: 7 years ago
Posts: 259
Topic starter  

just an update on my problem , I arranged a visit from the hollister ostomy nurse and it turns out to be a simple problem , I was measuring my stoma wrong , really wrong , I was using around the 33mm mark and should have been at 25mm , 

so she used a thin hollister cera ring and cut to 25mm , she also advised to use Imodium if I am eating food that I know to cause watery output as this can help with the erosion of the ring , so fingers toes crossed , hopefully this will sort it out . 


   
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(@john68)
Joined: 6 years ago
Posts: 2018
 

That’s fantastic news Tony! Always a reason 

ileostomy 31st August 1994 for Crohns


   
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