Hi guys, A couple weeks ago, I heard from my best friend that her husband had died in an accident. The funeral is tomorrow and the burial and open house celebration of life on Wednesday in California. My hubby and I went back and forth about our plans. This week was a very important one for him at work, so trying to be mindful of that, I told him I would fly down by myself to San Francisco and rent a car to get to Fairfield (about an hour from SF). I was pretty apprehensive about doing my first flight with an ostomy all by myself, plus there was the issue of the wound dressing changes. But Tom has been so incredible over the last 16 months, I didn't want to ask him to take this week off work. Then last weekend, he told me that he was very worried about me flying and dealing with everything by myself. I asked him if he would feel better about it if I drove instead. He said that relieved a little bit of his anxiety about it. So I told him I would drive down to Fairfield (11.5 hours). I was planning on leaving yesterday and taking my time with the drive down. Then last Monday, Tom came home from work and told me he had made arrangements for people to cover for him this week, so he could go with me. I didn't realize how stressed out I was about the whole thing until the relief I felt when he said he would go with me. We are leaving tonight when he gets home from work (about 5 or so) and driving about half way. Then leaving early tomorrow morning to drive the rest of the way to get there by the funeral at 2:30. I sent my friend a message that we were thinking of staying a couple days after if she didn't have other plans. She said she has a lot of people coming from out of town, so she was just going to have her house open to anyone in town for Thursday and Friday - just sort of casual. I told her that Tom and I would take care of making sure there was plenty of food for anyone hanging out those couple days. Tom has graciously offered to be the gofer, to go out and get whatever we want or need. Then we will come home Saturday. Not sure if we will drive the whole 12 hours, or split it and do half on Sunday?? I just wanted to share with you guys everything going on. I am apprehensive about such a long road trip, very sad that my best friend of 35 years is going through a loss like this, and so incredibly thankful for my husband coming through for me, yet again. And I am so appreciative of having all of you to share things like this with. Hopefully there won't be anything monumental to report, but you know if there is, you will hear about it. :) And finally, let this serve as a reminder to cherish your loved ones, because, as most of us well know, life can change in an instant. -Liza Liza, I am so sorry to hear of the reason for your trip. You do have a fantastic hubby there. It is so important to have the support of your spouse. I know mine comes through every time for me as well. Concerning supplies, just make sure you have at least double of what you need - at least that's what I do. Stella Thanks John and Stella, I definitely overpacked supplies. Much easier to do when driving. We are just leaving now, so hopefully will hit our stopping point by midnight. It is very sad indeed. Chris was one of the nicest people I ever met. He had just retired from the Air Force a couple years ago and was working as an ER doctor. I was the maid of honor in their wedding in 1993. He was only 53, which is the same age as my hubby. -Liza Liza, my heart sure goes out to you and your Tom making this big road trip. A sudden loss like that leaves a whole in many hearts. You will be in my prayers for a safe uneventful journey . I am glad to know that you made the first part safely. Remember to protect your stoma from the seatbelt, even a rolled up sock on either side can help with that. Your long time friend is truly blessed to have you and Tom in her life. Honorable mention to "Tom", thankyou for being the "stand up" man you are and for taking such good care of our Liza thru all that the two of you have been thru on this stoma journey! All the best to you both. Linda Linda So far relatively uneventful. We got a little later start than we planned this morning but only by 15 min. In planning travel time, I didn’t think about stops taking a little longer than they used to pre-ostomy. We did get pulled over a little bit ago, but an understanding officer let us off with a warning. My hubby has never had a speeding ticket and is a very conscientious driver, so I would have felt terrible if he had gotten a ticket this morning. We just crossed into California! -Liza Liza, Welcome to California ( thats my state). Good to hear the trip is going O.K. Keep up your liquid intake ( even though you may have to do more bathroom breaks). Thats one thing thats hardest for me to do when traveling. I hope the rest of you trip goes smoothly and you can give the kind of support and love to your friend that only you can. Its wonderful that your husband is with you too. Huge help! Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017. Thanks Dona! What part to you live it. We are close to the Bay Area. Holy cow, is there ever a lot of traffic! I am so glad to be here for my friend! She is being so strong. The only time I saw her cry today was when I first got there and went to give her a hug. Of course I was crying, then, and through the whole service. It is all just so sad. Tomorrow morning is the burial with full military honors. Then open house reception tomorrow afternoon. Ironic thing is her house is being hit by the PGE power outages tomorrow. At least Mary was able to laugh about it. -Liza Liza, I am sure that your friend is grateful for a friend like you. Sometimes the best thing to do is to just be there and to allow your grief to freely flow. Your friend is in my prayers. God bless, Stella Beautifully put, Stella. Liza, here's hoping for an uneventful ostomate day. Tony Thanks guys. I changed my bag this morning just to be on the safe side. Weird for me to change before a leak. 😂 We are on our way to cemetery for burial. 😢 I will definitely have some stories to tell when this is all over. -Liza Well crap!!! I came out to Tom’s car to get my emergency bag to restock it. Someone had broken into Tom’s car and taken it. It is so annoying!! There is nothing of any value to someone else, but important to me. My emergency bag was so cute and I had it in a tote bag I got from Wash DC, from the Smithsonian. I also had my favorite casual dress in there because I wanted something cute to wear if I had to change my clothes. 😕 Luckily it was an old ratty pair of underwear. 😂😂 So now, Tom will drop me off at Mary’s house and go find a Honda dealership and see if they can replace his window. Why does life seem to always kick you when you’re down? -Liza Liza, how terrible! Did you lose any supplies? I'm saddened indeed to hear this. Tony Thanks Tony, Yes, I did lose some supplies, but since I had to do a change at my friend’s house, the bag was a little low. I had one appliance, about half a tube of paste, some scissors, my magnetic mirror and various gauze and wipes and stuff. The hotel staff was very helpful. They called police for hubby, and helped file the report, and when the repair place our friends referred and the Honda dealership were both too booked up, they referred another place. And when Tom came back to thank them for all the help, the hotel GM comped us for 2 of our 4 nights to help make up for the cost of the window repair. Very nice!! We said our goodbyes and just got back to the hotel a little bit ago. Tomorrow morning, we will leave, hopefully by 7am and plan to drive the whole 12 hours tomorrow. -Liza Hi Liza, I hope you do have at least one appliance that you can change to if needed. If you do need supplies, you might try calling local hospitals or clinics to see if they maintain a donation closet. This page has a bit more advice on obtaining emergency ostomy supplies. It's heartening to know that the hotel helped you out and made this ordeal a bit less stressful for you and Tom. Here's hoping/praying your trip home is uneventful in the extreme. Tony Tony, I totally overpacked supplies, so that isn’t a problem at all. 😀 -Liza Sounds like we got home just in time, as there is a major snowstorm in Southern Oregon now, right in the middle of the route we took home. All in all, my first longer road trip with an ostomy went okay. I had 4 changes, including the emergency change for a leak in just over 5 days. I had plenty of supplies with me. Obviously it wasn’t perfect, especially with the car break in, but things definitely could have been worse. I had gotten my emergency bag at our art on the park show over the summer. Well my hubby found out the person who had the booth where I bought it, also sells her bags in one of the local pharmacies and found me a replacement made of the same fabric!! So I got an early Christmas gift today!! Now I just need to stock it up and order a new magnetic mirror from Amazon. 😀 -Liza Glad you at least got the bag back, after a fashion. I sincerely hope whoever took the bag was painfully disappointed that it didn't contain $10,000,000 in gold bars and a fre round-trip ticket to Aruba. Or did it? 🤫 Not a fan of the white stuff. When I was a kid, scarred corneas only made it seem like one giant glare in the world. The first time I went out in it was when I was four years old, having moved to New York from Puerto Rico just two or three months before, and naturally my cousin thought it would be a real gut buster to take a little half blind kid out in deep snow and shove a burningly cold ball of the white stuff down the back of his shirt onto the tender skin of a toddler, said toddler having gone from mildly curious about this sheet of whiteness all over everything to extreme distaste at how cold and pervasive it was. Ah, memories. All that to say how awesome it is to miss out on that storm. Tony Your husband is so nice to have gotten you a new bag, Liza - and also to go with you on the trip to your friend’s funeral. We are in the midst of a snowstorm here- schools are closed, no mail delivery, no travel advised. What a story, Tony - I do hope that your cousin grew to be more civilized - some kids, is all I will say. You were born in Puerto Rico - do you remember moving here? Colostomy 4/30/18.
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”
Crohn's diagnosed in 1995.
Spontaneous colon perforation and emergency end ileostomy surgery in 2018.
No colon - still rollin'!
No eyesight - life still bright!
Stomaversary - December 4th
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”
Crohn's diagnosed in 1995.
Spontaneous colon perforation and emergency end ileostomy surgery in 2018.
No colon - still rollin'!
No eyesight - life still bright!
Stomaversary - December 4th
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”
Crohn's diagnosed in 1995.
Spontaneous colon perforation and emergency end ileostomy surgery in 2018.
No colon - still rollin'!
No eyesight - life still bright!
Stomaversary - December 4th
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”
Crohn's diagnosed in 1995.
Spontaneous colon perforation and emergency end ileostomy surgery in 2018.
No colon - still rollin'!
No eyesight - life still bright!
Stomaversary - December 4th
I love the smell of coffee in the morning. It smells like .... victory.
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