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How long does your two piece appliance last?

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Kirsten
(@kirsten)
Joined: 2 years ago
Posts: 56
Topic starter  

Hi all, happy belated ostomy awareness day!

I've been trucking along pretty well the last couple of weeks. No leaks (knock on wood), a couple of hilarious mishaps (gotta laugh or you'll cry, right?) and my peristomal skin is doing much better! Right now I'm happy with my convex phalanges from Hollister, a wafer from Amazon (thanks for the tip!) and duoderm only if I've got broken skin. Trying to keep it simple. I'm changing the appliance every 3-4 days. 

My question for you folks relates to the frequency of changes. My homecare nurse is always so alarmed that I can't get at least 5 and preferably 7 days with each wafer and bag. She's coming by on Tuesday to do a change with me to figure out what I'm doing wrong! 

I think it's a pretty reasonable time frame, but she's sure it's too frequent. 

I have a loop ileostomy and the output is extremely liquid much of the time. I'm taking all the immodium, eating thickening foods, but it just tends to be liquid. I use a belt for support. I'm happy with things as they are. 

Any thoughts?


   
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(@squeakyandliza)
Joined: 6 years ago
Posts: 1041
 

Unfortunately, my average is probably 2 days. Sometimes I get more, but all my one day (due to leaks) brings the average down. 🙁 If you figure out the trick, let me know. 

-Liza
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”


   
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VeganOstomy
(@veganostomy)
Admin
Joined: 11 years ago
Posts: 4415
 

Posted by: @kirsten

My homecare nurse is always so alarmed that I can't get at least 5 and preferably 7 days with each wafer and bag.

Consider this: In some countries, it's pretty standard to replace appliances daily, and "regular wear" appliances aren't really designed or expected to last more than a few days.

I generally get 4-5 days with an extended wear 2pc before things go downhill; over 7 days with a 1pc.

For skin health, it's probably better to change your appliance more often than keep it on too long.

But most of the time, many people will keep them on for as long as possible, only because cost is a factor. 

This is unfortunate.

You don't tend to find anyone *trying* to get long wear time in countries were supplies are provided at no cost.

 

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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(@john68)
Joined: 7 years ago
Posts: 2059
 

I second what Eric has said, Good skin is my aim rather than long time wear. I am lucky enough to get my appliances free. When I know many don’t I makes me feel guilty 

ileostomy 31st August 1994 for Crohns


   
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Robert
(@njewell1)
Joined: 8 years ago
Posts: 721
 

GM Kristen

I used to go 4 to 5 days but sometimes skin would get some and some leaks of course in the middle of the night . I now do 2 to 3 days and have better luck with skin and leaks . I think it depends on what works best for you . BTW I also use a 2 peice (Hollister) . 

Good luck 

Proctectomy , Ileostomy , Ulcerative Colitis


   
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Tigerlily
(@tigerlily)
Joined: 4 years ago
Posts: 434
 

Kirsten, I agree with everything already said. I have a colostomy, and I generally change my appliance every 4 to 5 days; more frequently when my output is more liquid than solid, or when I’m swimming regularly. I don’t think there’s a “norm” for this. Liquid output will degrade the appliance faster than solid output will. The key question, as mentioned above, is what is happening to your skin? That should drive your appliance changes more than anyone else’s presupposed schedule.

 

Laurie

Just a semicolon


   
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LLNorth
(@llholiday)
Joined: 6 years ago
Posts: 568
 

Usually three days - I have occasionally made it to four, but not often; by day four the Cera ring and the adhesive on the plate have really deteriorated and I don’t want to risk leaks or irritating my skin.

Colostomy 4/30/18.
I love the smell of coffee in the morning. It smells like .... victory.


   
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VeganOstomy
(@veganostomy)
Admin
Joined: 11 years ago
Posts: 4415
 

Posted by: @john68

Good skin is my aim rather than long time wear.

I wish this was said more often! Wear time isn't a competition, and skin health is ultimately what determines whether you're wearing your appliance too long or not.

I recall having someone tell me (I believe in a YouTube comment) that I was "doing it wrong", since they were able to get something like 2-4 weeks wear time from their appliance, while I was "only" getting a week. 🙄 🤣

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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Tony H
(@tony-h)
Joined: 8 years ago
Posts: 366
 

using hollister two piece and I normally get 3 or 4 days from the base plate , as soon as I feel any irritation I change it asap , have no  limit on supplies here in Ireland and don't empty bag , just replace it , much easier with the arthritis in my hands ,

 I use eakin seals which help a lot , had a colonoscopy/stoma check last week and my GI even remarked how good my skin around the stoma is (felt really proud) , told the stoma nurse about this site and how it had made such a difference to my quality of life , take a bow Eric ,

I use trio pearls and convatec diamonds in the pouch and they really help with liquid output and odour control and this helps with the corrosive effect on your skin in my opinion 


   
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Kirsten
(@kirsten)
Joined: 2 years ago
Posts: 56
Topic starter  

Thanks, I really appreciate the feedback. I get supplies through home care and I feel really fortunate that I don't have to pay out of pocket for them. I have found that feeling any sensation from irrigation is key to knowing when to change the wafer. I'm very sensitive to adhesives, but I think I have a combination that's working. I haven't had any new pain this week and the skin is slowly healing. I hate wearing the belt, but it really seems to help and I'm getting used to it. 

Progress!! 


   
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