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Camping with an ostomy: share your tips

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VeganOstomy
(@veganostomy)
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Joined: 12 years ago
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I know several of you like camping and I've love to hear some ideas on how to make the experience better.

One concern is emptying the bag at night.

I'd love to know what solutions you've found to this.

I know that some people will dig holes to empty their pouch into and some will use closed-ended pouches and "save" their full pouches (in an odor-free bag) to dispose of when appropriate.  Does this strategy work at night?


Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
 

Having never been camping but being from the country and working outdoors have met these needs by carrying a few disposable bags loo roll and finding a large tree!! I imagine a torch would be useful.


ileostomy 31st August 1994 for Crohns


   
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Robert
(@njewell1)
Joined: 9 years ago
Posts: 762
 

Sorry I can't help ya here guys . Camped all my life tents , sleeping bags on the ground back of a truck etc. but now our camping is done in a travel trailer with a loo . Haha . John I can't believe you have never camped Lad I like you have used the bushes trees etc. There is nothing like sitting around a campfire at night and the smell of bacon cooking outside in the pine trees .


Proctectomy , Ileostomy , Ulcerative Colitis


   
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(@john68)
In Memorandum
Joined: 9 years ago
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Hi Robert, Travel Trailer! yer goin soft on me big fella lol. Nope never been may be cause it rains so much in this country!! but am going to give it a go some day. the nearest I got was years ago a few mates went to a concert and we slept in the back of the Pick up Truck! And guess what!! IT RAINED!!


ileostomy 31st August 1994 for Crohns


   
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Robert
(@njewell1)
Joined: 9 years ago
Posts: 762
 

Hey John . I understand with all the rain you get over there it would make it a little tuff  for camping Haha . We don't get much rain around here although I do enjoy it when it does . Did get to see the first snow of the season around here this past weekend . Spent the weekend in Big Bear (its up in the mountains) took my wife up for her Birthday weekend and got to see a little snow . Stayed in a cabin but still it was cold for this desert rat 23 degrees when we left yesterday . Burrrrrr !


Proctectomy , Ileostomy , Ulcerative Colitis


   
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(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
 

Happy Birthday Mrs Robert xox... That sounds class!! 23 degrees if we get that in the summer its on the News and its called a heat wave! We have had a little snow but its been tricky with black ice. Also you say Travel Trailer we say Caravan


ileostomy 31st August 1994 for Crohns


   
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(@zvitusk)
Joined: 9 years ago
Posts: 397
 

It's not the same,  but when my wife and I were returning Saturday night from our family get together  ( over 125) ,I had to use the urban equivalent and emptied my bag in a trash can. My wife was embarrassed but I was relieved. I carried some t/p with me,  JICOE  (Just in case of emergency ).

Urban adventure .



   
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(@john68)
In Memorandum
Joined: 9 years ago
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Urban Warrior!!!! Way to Go Zvitusk !! I think my wife is going to bust a gut laughing!!!


ileostomy 31st August 1994 for Crohns


   
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Robert
(@njewell1)
Joined: 9 years ago
Posts: 762
 

Hey Z whatever it takes right ????? Haha . I actually carry a bucket with a lid and trash bags with us when we go on a long trip in the car . JICOE !


Proctectomy , Ileostomy , Ulcerative Colitis


   
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Robert
(@njewell1)
Joined: 9 years ago
Posts: 762
 

John Lad 23 is a heat wave wow I would never make it there I would freeze . In the summer here our heat wave can consist of 123 degrees + or - . A caravan here can be a group of cars or trucks traveling together . But you are correct with the definition guess its another one of the Irish terms for me to learn . Lol


Proctectomy , Ileostomy , Ulcerative Colitis


   
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Marcie
(@shulmjs)
Joined: 9 years ago
Posts: 1510
 

23 degrees??  That would be a mild heat wave over here in Ct.  In a cold snap-then 50's this weekend..  go figure????  Glad you and your wife had a nice time.. Great to get away!! How did Norman do??????? 

I always carry vomit bags with me when I am out in the woods for Nellie.. :-) 


2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


   
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(@zvitusk)
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Glad you see the humor 

 



   
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Robert
(@njewell1)
Joined: 9 years ago
Posts: 762
 

Hey Marcie I don't know how all you people can live in that cold weather  . Lol .  53 years in the desert for me I can take the heat but I cant take the cold for to long . Haha . Was a normal weekend for Norman he did good no problems at all . The barf bags sound like a good idea . 


Proctectomy , Ileostomy , Ulcerative Colitis


   
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Marcie
(@shulmjs)
Joined: 9 years ago
Posts: 1510
 

, the barf bags, are slim, and I also carry one of those bags that we get in the box of pouches, along with napkins.. Napkins hold better.. :-)  

Ya the cold weather?  This year, was so warm and then bam! Got hit with the cold.. Snowing every day to keep things white.. So that is pretty- It can be a long cold winter at times.. As of the arrival of Nellie, we just take much to the hot weather, or the cold much anymore-mostly the heat.. I don't down hill ski, or ice skate anymore.. So it is reading weather.. Which is a nice break.. 

I also have a decent looking bag which contains:

I large plastic with lid of ricottia cheese, Napkins, a dentist bib,  gloves, plastic bags, I have one in each car. never can tell if I get stuck in a snow storm, traffic-because of one, and I am not in charge of those.. Neater.. and I just hang it behind the head rest of the drivers seat. Coffee cans are good too!! But a bit bulky for this.......... 

 


2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


   
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(@kevin-eh)
Joined: 5 years ago
Posts: 22
 

Anyone have any tips on managing leaks (not the leak, but when they do happen) when interior camping?  1) What do you do with the soiled clothing/sleeping bag? 

2) Do you pack multiple sleeping bags for 'just in case' or multiple sleeping bag liners?
  



   
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VeganOstomy
(@veganostomy)
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Posted by: @kevin-eh

1) What do you do with the soiled clothing/sleeping bag? 

2) Do you pack multiple sleeping bags for 'just in case' or multiple sleeping bag liners?

Multiple sleeping bag liners would be much better than multiple sleeping bags.

Are you currently experiencing leaks? If not, I don't think you have to worry too much about having them while camping.

If it happens, do your best to clean off as much as you can from soiled clothes or liners, then dry them off as best as you can, then I'd put them in a dry bag. This will buy you some time to properly get them washed and dried.

Of course, it's always best to plan for prevention, rather than clean up! Get your appliance sorted out before the trip, and have fun while you're there! 😊 

 


Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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 LK
(@dlkfiretruck)
Joined: 9 years ago
Posts: 1684
 

@kevin-eh  ... Hey there! There is a cleaning product we can buy again in Canada, or dind one you trust best, that is environmentally friendly, cleans stains and disenfects fabrics & other surfaces.  The one I prefer is once again Canadian made in B.C. and can be ordered on line. I used it for eons while camping with a child who had a run of bad nose bleeds and it took out stains on clothing & bedding and cushion covers in a rented trailer.  I've used it when traveling and had a leak on my clothes as well.  The product is " SPRAY KLEEN" IF your interested I can give you contact information because its not yet back on shelves in grocery stores. The original owners were retiring and couldn't find a company buyer,.  But back about 3 years a young lady/ couple,  who like me, missed the product, located the original owners and purchased the recipe, so they are presently making it in there basement while they line up a factory, and continue to try and get it back on store shelves. In the meantime they sell a case of 4 - four liters bottles. You dilute it one cup to 3 or 4 cups water. 

Camping... I was able to buy some of those pads hospitals put under you on the beds before and after surgery. Are you familiar with them ?  If so, get yourself about 6 or them.... As an idea... you can stitch two together on one sides so you have top and under you security saving your sleeping bag and hopefully a lot of work should you leak at night.  As Eric said, clean off what you can and then place that in a bucket with a lid to dispose of later. Spray down the pads with a good cleaner & bucket it and deal with it at a later time. I've gone 3 days with items sprayed, dried & bagged,  resprayed then washed with more "Spray Kleen" in the kachine ss per instructions ASAP.

 This product "Spray Kleen" has never taken colour from my clothing so I use it on anything output gets on. It removes stains from output if I get to it before the first wash.  I carry a small bottle of it diluted as per instructions on the bottle in my go bag.

Hopefully the two hospital pads wrapped around you will be as much bedding you'll have to deal with.  You may want to find a seamstress and have large snaps installed, or you can do it on your own.  I've done snaps  on children's clothing when sewing. Its fairly easy but practice with smaller ones first.   I'd then place a couple large snaps on the middle seam  of the sleeping bag and the middle of the pads so you have maybe 4 or 6 snaps in a row on the  sewn together hospital pads,  then on both sides of the zipper to hold it in place so your not loosing sleep incase of twisting around you.

You can buy a snap gun and snaps at a fabric store or try a shoe repair person or a leather worker, to install snaps for you. It really shouldn't cost much if you go in with areas marked and all that you want snaps on and maybe snaps too. 

You may be able to find these specialty people at a street fair or craft fair.  Look for them in advance so you have a well laid out plan they should be willing to work with you.

Good luck & let us know what you do & how things work no matter the idea! I'd love to hear your success story. Ofcourse the best outcome is no leaks, sorry I can't resist, but either way, you've got it in the bag!! 

Linda


Linda


   
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