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SqueakyandLiza
(@squeakyandliza)
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Joined: 1 year ago
Posts: 546
June 29, 2020 3:08 am  

I have a question for others with Crohn’s. Since I am still relatively new to my Crohn’s diagnosis, I don’t have much background on what a flare up is like. I know it probably affects everyone differently, but thought I would post this here. 

In November, I had an episode that started feeling like indigestion, and then went to pain in my abdomen, chest and back. I couldn’t even stand up straight- the most comfortable I could get was leaning over with my head on the kitchen counter. I also felt a bit queasy. So we went to the Emergency Room. They did a CT scan and some tests. They also gave me prednisone and a prescription for dicyclomene. They weren’t sure exactly what was causing it, so they attributed it to a Crohn’s attack. After the strong pain meds and high prednisone dose in hospital, I came home and slept several hours and woke up feeling better. 

I had similar attacks in January and March. Both times I took the dicyclomene and a couple Tylenol and slept felt better a few hours later. 

Yesterday the same thing happened so I did the same thing- took dicyclomene and a couple Tylenol and slept and woke up feeling better. Then today it happened again. I took a dicyclomene, but it didn’t do much. I just took another one, along with some Tylenol and just got into bed. It is so hard to get comfortable, being this miserable. 😕

I was wondering if any of you have had Crohn’s manifest in this way - tummy, chest and back pain, with a touch of nausea??  I also feel like the hernia on my left side has gotten worse. It is so huge!!  It literally looks like there is a cantaloupe under my skin. So I’m wondering if the hernia could be causing these symptoms. It does make the pain worse to touch around the hernia. Has anyone with a hernia experienced this??

Thanks for any feedback. 


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VeganOstomy
(@veganostomy)
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Joined: 6 years ago
Posts: 2873
June 29, 2020 9:58 am  

Hi Liza,

I don't have experience with a hernia, so I couldn't say how that would feel, but Crohn's did affect my back, and nausea came as my disease got worse. A scope is the only reliable way to see if you are in an active flare, along with a blood test to see if your inflammatory markers are up.

I hope this gets sorted out for you. 


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Lynne
(@lynne)
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Joined: 9 months ago
Posts: 25
June 29, 2020 2:24 pm  

Liza, it seems logical that a hernia could impact various connected tissues/muscles but I don't have any direct experience with that. I wasn't familiar with dicyclomene but looking it up, I see it helps with muscle cramps/spasms.  Since that helped at first, you might find a bit of relief from some deep breathing/pain reduction apps or videos online. Just a thought. Really I merely wanted to send you some virtual support and let you know I hope you can find some comfort soon!


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LK
 LK
(@dlkfiretruck)
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Joined: 3 years ago
Posts: 798
June 30, 2020 5:46 am  

Liza, I'm with Mimi and anyone else here! Pain is never fun ! I know you have  an appointment & sometimes soon can take a long time to get here!  I wish you all the best and that everything gets sorted out and taken care of so you can be on your way to healing old open wounds and any Crohns  issues & that nasty hernia! 

Your a good positive, helpful source here, STAY strong!


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