My ALS Ice Bucket Challenge Video and Thoughts (w/ video)

VO ALS ice bucket challenge

I was recording a video this afternoon for an upcoming product review, and I received a notification from Google+.  Interested about why I’d be tagged in a comment from Megan, The Front Butt YouTuber, I checked out the post and subsequent video.  Megan had posted an awareness video for ALS or Amyotrophic lateral sclerosis; you might know it as Lou Gehrig’s Disease.  

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“But you don’t look sick…”

But you don't look sick ecard

Anyone with an invisible illness can tell you that at some point they were told that they “don’t look sick”.  That comment often ranks first among a list of things you shouldn’t say to someone with IBD, but it never really bothered me.  I know I likely stand alone in saying that, since being told that you “don’t look sick” when you’re life’s under constant assault because of illness can be hurtful, but hear me out…

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Happy 1st Blogiversary VeganOstomy! GIVEAWAY

1s year t blogiversary giveaway

One year ago today, I launched the VeganOstomy Blog.  I started it with the wish to share my experience of having an ileostomy due to Crohn’s disease while maintaining a vegan lifestyle.  I’ve learned so much in the past year and hope that I’ve provided some entertainment and education along the way.

What-you-do-makes-aThrough the blog, I’ve been contacted by so many wonderful people who are at a critical point in their lives.   Some have Crohn’s disease or Ulcerative Colitis, and others have cancer, but everyone is a fighter. The strength I witness from people who’ve been to hell and back is truly inspiring.  Without your stories, my efforts would be wasted.  Know that I stand beside you in support, and know that you are not alone.

Read moreHappy 1st Blogiversary VeganOstomy! GIVEAWAY

My first ileoscopy

Its-whats-inside-that

It’s all done. Over with. Finished.  I was given my first ileoscopy yesterday and it was an interesting experience to say the least! I initially had some concerns with dehydration and managing high-output from the prep (read HERE), but I’ll have to admit that things went a lot easier than I expected. I took a lot of notes, so hopefully this will give you an idea of what to expect, but keep in mind that our experiences can differ greatly.

Read moreMy first ileoscopy

#getyourbellyout – the campaign that changed IBD advocacy

getyourbellyout logo

We have so many amazing advocates in the IBD and ostomy community, but one team of advocates really stands out with a campaign they’ve been able to turn into an international sensation, and that’s the #GetYourBellyOut movement.

Started in March 2014, the #getyourbellyout team is made up of four incredibly hard-working ladies: Victoria Marie (twitter @colitisandme), Gem Gem (twitter @wales28), Sahara (twitter @Sahara88uk) and Lorna (twitter @lornamary_1981).

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IBD and Junk Food – “I can’t get no, satisfaction”

diet loses their minds

Several days after the BBC report came out that lifestyle choices (i.e. poor dietary habits, high antibiotic use) could increase the risk of IBD, the backlash is still being felt all over the internet by angry IBD’ers.  In my opinion piece, Diet and IBD: What the research says, I made it quite clear that there IS evidence to support a link between dietary choices and IBD risk factors.  It’s incredibly unfortunate that most of the people who’ve been upset seem to believe that they’re being told that dietary factors CAUSE Crohn’s or Ulcerative Colitis, despite the fact that Dr. Mitton made no mention to this whatsoever in the BBC report.

Dr. Sally Mitton has now been able to respond to the criticism:

Read moreIBD and Junk Food – “I can’t get no, satisfaction”