Sometimes we keep too much “stuff” around, and sometimes that stuff includes ostomy supplies. Many ostomates hold onto extra supplies until they pass their expiry date (yes, ostomy supplies DO expire), or we throw out perfectly good products that are of no use to us.
I was recording a video this afternoon for an upcoming product review, and I received a notification from Google+. Interested about why I’d be tagged in a comment from Megan, The Front Butt YouTuber, I checked out the post and subsequent video. Megan had posted an awareness video for ALS or Amyotrophic lateral sclerosis; you might know it as Lou Gehrig’s Disease.
Anyone with an invisible illness can tell you that at some point they were told that they “don’t look sick”. That comment often ranks first among a list of things you shouldn’t say to someone with IBD, but it never really bothered me. I know I likely stand alone in saying that, since being told that you “don’t look sick” when you’re life’s under constant assault because of illness can be hurtful, but hear me out…
Something happened recently that really angered me. One of the founders of the #GetYourBellyOut campaign, Sahara (Twitter @Sahara88uk) had recently come out of surgery, and while still recovering she posted a photo of herself on several social media sites, but the photo was flagged on Facebook and she was forced to remove it.
One year ago today, I launched the VeganOstomy Blog. I started it with the wish to share my experience of having an ileostomy due to Crohn’s disease while maintaining a vegan lifestyle. I’ve learned so much in the past year and hope that I’ve provided some entertainment and education along the way.
Through the blog, I’ve been contacted by so many wonderful people who are at a critical point in their lives. Some have Crohn’s disease or Ulcerative Colitis, and others have cancer, but everyone is a fighter. The strength I witness from people who’ve been to hell and back is truly inspiring. Without your stories, my efforts would be wasted. Know that I stand beside you in support, and know that you are not alone.
It’s all done. Over with. Finished. I was given my first ileoscopy yesterday and it was an interesting experience to say the least! I initially had some concerns with dehydration and managing high-output from the prep (read HERE), but I’ll have to admit that things went a lot easier than I expected. I took a lot of notes, so hopefully this will give you an idea of what to expect, but keep in mind that our experiences can differ greatly.