Prednisone. I’ve got more than a few names for it, but it’s helped many people get out of an IBD flare. Unfortunately, it sometimes involves trading your soul to the devil, or at least trading one problem for another.
The prospect of surgery can be a highly stressful and scary thing, but it helps to be equipped with knowledge so you aren’t worrying too much about minor things.
When I learned that an ostomy was in my future, I spent most of my time learning about how it might impact my life, what limitations it might force on me and how others were coping with it. But there are still some things that I wish I knew before having my surgery.
Not many people know what IBD is at the time of their diagnosis, and I had a lot of questions about Crohn’s Disease when I was first diagnosed, but there are some things that I wish I had known sooner.
Today (May 19th, 2015) marks another World IBD Day. I know that some people see today as a special day for advocacy and as a reason to celebrate, but the past few weeks leading up to today have been full of anxiety, discouragement and upset for me.
It takes a team of medical professionals to help a single person, but patients are most often in contact with a nurse more than any one else on that team. From May 6th to the 12th, we celebrate Nurses Week, and I’d like the nurses who’ve played a role in my care to know how important they are to me.
Did you know that a mothers kiss can give a child IBD? Yes, it’s true, because I read it in a headline and saw the photos as proof! Unfortunately, what the headline and photo conveniently excluded was the fact that this might only apply to mice. Recent headlines about the causes and cures for Crohn’s Disease and Ulcerative Colitis have been making their rounds across social media again, and they often give a misleading representation of the data being looked at, especially when that data is coming from non-human animals.
I enjoy visiting support forums and local support groups, but for many years I tended to avoided them. The problem with most support forums (and this extends beyond forums that focus on chronic illness), is that the majority of people on them are having problems. Obviously, looking for support because of a problem is one of the reasons to be on a support forum, but sometimes the constant barrage of negatively and despair can make your own situation feel much heavier and more likely to trigger some negative emotions.
“Is your ostomy permanent?”
I’ve come across that question many times since having my ostomy, but it seems that when I answer that question (with a “yes”, obviously), I get told how sorry people are for me. This needs to stop! I feel incredibly fortunate to have my ostomy, and I don’t feel sorry for having one.