I was recording a video this afternoon for an upcoming product review, and I received a notification from Google+. Interested about why I’d be tagged in a comment from Megan, The Front Butt YouTuber, I checked out the post and subsequent video. Megan had posted an awareness video for ALS or Amyotrophic lateral sclerosis; you might know it as Lou Gehrig’s Disease.
Something happened recently that really angered me. One of the founders of the #GetYourBellyOut campaign, Sahara (Twitter @Sahara88uk) had recently come out of surgery, and while still recovering she posted a photo of herself on several social media sites, but the photo was flagged on Facebook and she was forced to remove it.
The awesome #GetYourBellyOut IBD awareness campaign is putting on a calendar contest where they will be picking 12 winners to … Read more
One year ago today, I launched the VeganOstomy Blog. I started it with the wish to share my experience of having an ileostomy due to Crohn’s disease while maintaining a vegan lifestyle. I’ve learned so much in the past year and hope that I’ve provided some entertainment and education along the way.
Through the blog, I’ve been contacted by so many wonderful people who are at a critical point in their lives. Some have Crohn’s disease or Ulcerative Colitis, and others have cancer, but everyone is a fighter. The strength I witness from people who’ve been to hell and back is truly inspiring. Without your stories, my efforts would be wasted. Know that I stand beside you in support, and know that you are not alone.
We have so many amazing advocates in the IBD and ostomy community, but one team of advocates really stands out with a campaign they’ve been able to turn into an international sensation, and that’s the #GetYourBellyOut movement.
Started in March 2014, the #getyourbellyout team is made up of four incredibly hard-working ladies: Victoria Marie (twitter @colitisandme), Gem Gem (twitter @wales28), Sahara (twitter @Sahara88uk) and Lorna (twitter @lornamary_1981).
Boy what a day! Sunday June 8, 2014 marked the 19th annual Gutsy Walk for Crohn’s and Colitis Canada. It was the first year I’ve been able to attend since my diagnosis in 2008 and the excitement really did make up for the lost time. We surpassed our local goal of $70,000 this year, and team VeganOstomy made up over $1500 of that.
I’m honored to have been asked to write a guest blog post for the Crohn’s Forum Blog. I’m an active … Read more
This year I have a chance to fight back against Crohn’s and to show that I still have plenty of fight left in me. Along with my daughter, Jasmine, I’ll be participating in this year’s Gutsy Walk, presented by Crohn’s and Colitis Canada on June 8th, 2014.