Sometimes, the most frustrating feeling that someone gets when faced with a chronic illness is the feeling of helplessness. Oftentimes that frustration is directed towards researchers and doctors who are doing their best to help us but don’t seem to be focusing on the areas that affect us the most.
This post has been on my mind for a while, but as I’ve just sold a phone that’s been with me through some of the most difficult times in my life, I’m reminded about just how fortunate we are to have access to these portable devices when we are sick.
I dedicate this post to my friends who haven’t been able to catch a break because of IBD.
Through my blog, I’ve tried to share ways that can help improve the quality of life for someone with an ostomy. While I also have Crohn’s Disease, I handled my flares poorly, and so I can’t offer much help to those who are suffering with IBD at this very moment.
Prednisone. I’ve got more than a few names for it, but it’s helped many people get out of an IBD flare. Unfortunately, it sometimes involves trading your soul to the devil, or at least trading one problem for another.
One of the things I do from time to time is to audit my diet to see if I’m getting in enough nutrients from the food I eat. It was especially important for me to do this while I was in a Crohn’s flare, but it also came in handy after my ostomy surgery.
In this post, I’ll explain how to do this.
Even with a properly managed stoma and predictable appliance wear times, there are still some challenges that an ostomate may face in certain situations.
Not many people know what IBD is at the time of their diagnosis, and I had a lot of questions about Crohn’s Disease when I was first diagnosed, but there are some things that I wish I had known sooner.
It’s been 14 months since my last blood test update on the site, and I thought I’d share my latest test with you guys.
Food. I enjoy it now, but I was tormented for years by the pain that eating or even smelling foods caused me. These fears meant that I’d often skip meals or stopped eating partway through a meal, and ultimately lead to a very weak, underweight and anemic me.