I dedicate this post to my friends who haven’t been able to catch a break because of IBD.
Through my blog, I’ve tried to share ways that can help improve the quality of life for someone with an ostomy. While I also have Crohn’s Disease, I handled my flares poorly, and so I can’t offer much help to those who are suffering with IBD at this very moment.
I have written about the horrible abuses that a disease like this can inflict on our bodies, and I’ve touched on how IBD has affected my relationship with those around me, but today I want to share a very open video I took at the end of a very bittersweet day at Canada’s Wonderland.
It’s often overwhelming for me to think about how far I’ve come on this journey, or to think about just how sick I was not so long ago, but I am reminded about how lucky I have been during days like that.
While an ostomy has spared me from a lot of physical suffering over the past few years, it hasn’t removed the fear I have of this disease – knowing that Crohn’s can return to (once again) take everything away from me, is a thought that hangs over my head nearly every day.
I struggle when I’m reminded that I’m not cured – IBD has no cure – and so, I strive to make sure that I accomplish something every chance I get. For some people, it can be as simple as having a shower unassisted, while others might choose to run a full marathon.
When I was recovering after my ostomy surgery, simply taking the stairs was a big deal after years of being challenged by them, but whatever your day brings, seek out these goals when you can, and don’t let setbacks drag you down.