I dedicate this post to my friends who haven’t been able to catch a break because of IBD.
Through my blog, I’ve tried to share ways that can help improve the quality of life for someone with an ostomy. While I also have Crohn’s Disease, I handled my flares poorly, and so I can’t offer much help to those who are suffering with IBD at this very moment.
I have written about the horrible abuses that a disease like this can inflict on our bodies, and I’ve touched on how IBD has affected my relationship with those around me, but today I want to share a very open video I took at the end of a very bittersweet day at Canada’s Wonderland.
It’s often overwhelming for me to think about how far I’ve come on this journey, or to think about just how sick I was not so long ago, but I am reminded about how lucky I have been during days like that.
While an ostomy has spared me from a lot of physical suffering over the past few years, it hasn’t removed the fear I have of this disease – knowing that Crohn’s can return to (once again) take everything away from me, is a thought that hangs over my head nearly every day.
I struggle when I’m reminded that I’m not cured – IBD has no cure – and so, I strive to make sure that I accomplish something every chance I get. For some people, it can be as simple as having a shower unassisted, while others might choose to run a full marathon.
When I was recovering after my ostomy surgery, simply taking the stairs was a big deal after years of being challenged by them, but whatever your day brings, seek out these goals when you can, and don’t let setbacks drag you down.
Our victories might seem small to others, but they are HUGE to us.Eric, VeganOstomy