If you’re looking for IBD or Ostomy related sites, here are some of my favorites.
Legend(just a guide, some sites have a wide focus):
= Canadian (eh!)
= Ostomate/Ostomy-related focus
= Focus on general IBD (both Crohn’s and Ulcerative Colitis)
= Focus on Crohn’s disease / Blogger with Crohn’s
= Focus on Ulcerative Colitis / Blogger with UC
= Focus on J-Pouch / Living with a J-Pouch
= Vegan/Plant-based resource
IBD/Ostomy Organizations:
- Crohn’s and Colitis Canada
- Crohn’s and Colitis Foundation of America
- Ostomy Canada Society Inc. (formerly known as the United Ostomy Association of Canada Inc.)
- United Ostomy Associations of America, Inc.
- Ostomy Toronto
- The Phoenix Ostomy Magazine (by the UOAA)
Blogs/informational sites:
- The Stolen Colon
- Dan Sharp IBD
- The Crohn’s Colitis Effect
- OstomyOutdoors
- Living With Stacey Stoma
- Blood, Poop & Tears
- Inflamed and Untamed
- My Not so Normal Life with Crohn’s Disease
- Newbie Ostomy (blog, plus some great tips)
- Gluten Free SCD and Veggie (for those doing SCD on a v*gan diet).
- Guts and Glory (great IBD podcast!)
- Colitis and ME
- Uncover Ostomy (Jess is also a vegan)
- CrohnieBalognaIBD
- So Bad Ass
- Living Bigger With Colostomy (cancer survivor)
- Naturally Lauren (high-raw vegan with a jpouch!)
- Rectal Cancer My Ass (cancer survivor)
- Life, Lemons and Lemonade
- Colitis Ninja
- Belly Burdens (also dealing with fructose malabsorption)
- Food to Glow (great info focusing on cancer, but includes information on how to eat with an ostomy, many plant-based recipes, low-fiber recipes, etc.)
- AboutIBD (my friend Amber has a really great IBD podcast on her website!)
- MyOstomy (sponsored by Coloplast; a great collection of bloggers offering their own lifestyle tips and advice)
- A Bit About Ostomies (written by a Registered Nurse who’s working on becoming a stoma nurse; rates various ostomy-related sites)
- A Guide To Living With A Stoma (Amazing website full of resources on supplies, support groups and lifestyle. Highly recommended!)
- IBD Passport (IBD specific travel advice; developed by an IBD nurse)
- Gutless Wonder Woman (veteran health activist and ostomate!)
- OstomyConnection (lots of great articles, tips and advice from a collection of ostomates around the world)
IBD Research:
- Evidence Based IBD (great resource for studies relating to IBD)
- Inflammatory Bowel Disease News Today (lots of great information on current research)
All-In-One:
- Meet An OstoMate (find a fellow ostomate friend or partner. Also has a forum, blogs, etc.)
- United Ostomy Associates of America (UOAA) (articles, forum, events page, etc.)
- Crohn’s and Me (home of the Crohn’s Advocate magazine and other great info)
- GetYourBellyOut (IBD advocacy, support group)
Youtube Channels:
- Let’s Talk IBD
- Ostomy Story (tips, FAQ’s, vlog)
- UCandPSC (the video updates on his ostomy really helped me before getting mine)
- Thaila Skye (Ostomy product reviews, vlog, tips)
- Beauty and The Bag (lots of tips, FAQ’s)
- The Front Butt YouTuber (Lots of great ostomy product reviews!)
Support forums (I personally frequent these):
- VeganOstomy Community Forums (my forum!)
- Inspire Ostomy Support Group
- Crohn’s Forum (has an ostomate forum. Tapatalk app compatible)
- HealingWell ostomy forum
- Ostomyland forums
- Reddit: Crohn’s Disease
- Reddit: Ostomy
You can also see who I’m following on Twitter, Google+ and Facebook for more.
Updated Nov 28, 2017
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1 Comment on "IBD/Ostomy Resources"
Thanks for the reference here, sorry I didn’t see it before.