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Pseudo Blockages, malabsorption and severe anemia...am I having fun yet?  

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LLNorth
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January 21, 2020 8:48 pm  

Linda, have you ever seen this movie, Silence of the North, which takes place  in Alberta?  If you have online access (in the hospital, I mean) I think you can watch it on YouTube. While you are laid up you might enjoy watching it - I have seen it a few times and really liked it. Thinking of you. Take care.  LL

here is a link to a description - 

https://www.imdb.com/title/tt0083079/plotsummary?ref_=tt_ov_pl

I love the smell of coffee in the morning. It smells like .... victory.


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sjlovestosing
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January 22, 2020 8:07 am  

Hi Linda,

I am sorry to hear about all your difficulties, but am glad that you finally found a doctor who actually listened to you and is trying to give you the help you need. My prayers are with you.

God bless 🙏

Stella


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LK
 LK
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February 4, 2020 10:46 am  

Hello all....well, it seems I have a date to be admitted to the hospital. I have been told that Feb. 10th is the day! Tho I dread being away from family and my two  puppies, the need to be is more  evident every single day.   

Yesterday when  I crossed  my yard and the yard of the elderly twin sisters next door to go for a visit, my knees began feeling like sponges and my legs  very heavy. These are not big yards by any means! Getting up the two  steps proved a challenge, and once in the house I quickly removed my coat and practically fell on their  couch to avoid hitting the floor! Floors cause bruises these days! 

It was the first time I saw their "Twin" thing in action, as they both at once said, "it's like that  eh, muscle weakness!" Lol! The looks on their faces as I dragged  my left leg where it belonged was none less then a  scrutinizing mother thing! I am 61 and they are 98. There is a fountain of intelligence and experience there most of us lack times two! Lol! You can not pull anything  past  these ladies! They have raised  six adopted  children  together  with one handicapped and blind! There mother  lived to 104 years of age! 

So, plans are made, I am as ready as need be and have been abscent from here learning about tube feedings.  Tho I have read your replies, my eyes are causing enough issues to prevent me from responding when I wish,  but,   I have also recently learned this is likely from the Ankylosing Spobdylititis with nerve root damage that I have. Lots of burning  going  on makes it hard to read with a screen in front of me even when darkened to the max.   

Dona, a yoga mat to go in the tub is a great idea. I will certainly look into it further. For now I have been using folded towels drowned beneath me and my boney butt! Someone also told me to see a hot tub store about something like that too. Maybe they will have a weighted one so there will be no floatation experiences to fight with when I have so little energy!  Tho, I admit that could be a fun "splish splash I was taking a bath" time with the right music on!!! Lol! 

JTVT...thank  you  for  replying. I don't mind answering questions at all. They will start with the TPN because my body has lacked full  nutrition  for about two years now.  The malabsorption issues have been interesting to watch the damage it does to my body as a whole but also in separate areas. Hair loss is attributed  to Anemia and absorption issues , fat loss along with many other things to the malabsorption. I mean this  has even affected the comfort of wearing my glasses and ear plugs at night. Something I did so my chain saw snoring hubby could avoid having his too large Uvala removed! Lol! ( I can tell you this now because he is deceased, but he was a great  big chicken! Lol!)  leaving me with sore ears in the morning where the plugs have always sat without issues. Lack of that bit of fat  put pressure  on  the bones and cartilage of the outer ear canal causing sores.

So the TPN is to get a good dose  of vitamins and minerals into me that  I have not been absorbing for two years. The G tube for the Tube Feedings is more permanent  and will be able  to run thru the  night, trickling in nutrition to  help  me  feel alive again. Once I am home it can  slowly run over 8 or so hours while I am sleeping. Hopefully this can fatten me up to some degree.  This  should allow for  more  of  a time for my guts to hopefully absorb the nutrition  it will bring.  When your body is slowly  starving you to death, you try what is offered to help you survive.  I'm pretty sure I can still eat with this feeding tube in place, but  I have learned most find it is so satisfying that they do not  need to eat. Having a rare disease has added to the complication of abdortion issues. Its been two years and it is very obvious to me  that I need  help. Oxygen does  not always get to all my muscles and it has added to the  weakness I already deal  with. It is exhausting to be malfunctioning like this for so long. Like any new  stoma patient, I want  my old life back, and yesterday is not too soon! 

LLNORTH...I love a good movie  and better yet, a good Book!  So I will be looking for  "Silence  of the  North". Thank you for the suggestion.

Stella, thank you too for your prayers. I sure appreciate them. It has  been some  what of a long  haul for  me and perhaps I needed  it to convince me it was time for help. 

We are only hunan and tho fearfully and wonderfully made by our creator, God,  it is high time to deal with these issues. I look forward to seeing my body hopefully repair itself from the added nutrition it will be recieving.  

Thank you Eric for the opportunity to learn and to share as we go thru   a most interesting turn of events in our lives. Such great insight you had in starting this amazing site! Keep up the great work! 

I will do my best  to continue the updates here. Tho, if I can't, for whatever  reason , I will  be asking a friend to do so for me.  Thank you all for  your support,  good wishes  and prayers. 

Linda

 

Linda


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john68
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February 4, 2020 11:03 am  

Hi Linda, it’s hard to have to get up and leave all behind but it’s a means to an end. The very best 

ileostomy 31st August 1994 for Crohns


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SqueakyandLiza
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February 4, 2020 1:26 pm  

Linda,

I can only imagine how difficult it was to type that update with your eyes bothering you so much. But I am so glad that you did. I’m sure that many people here have been worried about you, and are as relieved as I am that you will finally be getting the help you need. 

Two years of suffering getting progressively worse is awful!!  It is about time that you finally have a doctor who recognizes what the problem is and has a plan to fix it. 

I am looking forward to hearing how the planned course of action is going. You deserve to feel normal again and I’m hopeful that this will work for you!!  All the best. 😀

-Liza
“May your day be bright and your bag be light.”


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LK
 LK
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February 7, 2020 5:23 am  

John and Liza 

Thank you for your kind words. Tho it is hard  to leave home and my little dogs and family, the events of the last few  weeks make me very aware it is time to accept the help if offered. Anemia alone has me taking so many sudden naps a day  its crazy.  I am so thankful to my new GI for recognizing my need here, same for the needed support I can get here thru VO.  The opportunity to talk about what is happening does help a lot. 

Thank you everyone! 

Linda

Linda


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sjlovestosing
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February 7, 2020 8:35 am  

Linda,

My prayers are with you and so is God. He has never left you for a second. Think of Him as enveloping you in His love, mercy, and peace. "Cast your cares upon Him for He cares for you."(from 1 Peter. I can't remember the exact verse - but you probably are ahead of me on that one!)

Take care and God bless,

Stella


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LK
 LK
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February 7, 2020 2:49 pm  

@sjlovestosing

Hi Stella.  Thank you for your prayers, I rely on them too. Tho I have God before me, beside me and behind me, my faith in him can not fall. Ever the omnipresent God, I know he's got this as I am in his hands. Should my body fail me, I have no worries or fear. 

Thank you....

Linda

Linda


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SqueakyandLiza
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February 14, 2020 3:39 pm  

Hi everyone,

Linda asked me if I would come and post an update here. 

She finally got the call yesterday afternoon that they have a bed ready for her at the hospital in Kelowna, so her son was going to be driving her up there this morning. 

She hasn’t been complaining here, but she has been going through a really tough time. She has been so weak and malnourished that I don’t even know how she has been taking care of herself. Her son and his family have been a godsend helping her out. 

She will be in the hospital for several weeks from the sound of it. I know she will be checking in here and posting updates when she can. It will probably be easier as her strength starts to come back. 

I’m sure she would appreciate prayers, from those inclined to do so. And good wishes and encouraging messages undoubtedly mean a lot to her.  Let’s show our Linda our support and how much we appreciate her here on VeganOstomy. 😀👍

-Liza
“May your day be bright and your bag be light.”


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Dona
 Dona
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February 14, 2020 3:56 pm  

Thanks for posting the update Liza.

Linda... sending you all the best. Please let us know how you are doing when you are able to.  Hopefully you will get the care you need and get stronger soon.

Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


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john68
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February 14, 2020 4:40 pm  

Yes thanks Liza, Linda is a real lady the World could do with more like her! Best wishes Linda 💪🇨🇦👍

ileostomy 31st August 1994 for Crohns


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LLNorth
(@llholiday)
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February 15, 2020 1:46 pm  

Best wishes, Linda 💐

I love the smell of coffee in the morning. It smells like .... victory.


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SqueakyandLiza
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February 17, 2020 4:52 am  

Hi guys,

I have another update from Linda. After getting to the hospital Friday, her room was not vacated, so she had to spend some time in a hallway alcove with a curtain around it. She has been through the ringer already in the 2 days she has been there. An iron infusion, super low blood pressure, several blood draws, a couple transfusions, lots of tests, something that made her really loopy, and a stretch where they teeter-tottered her bed so her head was low. She said she had the giggles yesterday, so she is in good spirits, but very tired. It sounds like she is getting good care and the nurses are very nice and it sounds like they are enjoying having her there. 

She is in a room now, and sent me a picture to attach. I know she is reading posts, even when she doesn’t have the energy to reply. I’ll post more updates as I get them. 😀

1581933128-C233BFC2-1024-45A6-998E-9D47D6F492BA.jpeg

-Liza
“May your day be bright and your bag be light.”


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john68
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February 17, 2020 5:28 am  

Cheers Liza, Linda the very best wishes🙏

ileostomy 31st August 1994 for Crohns


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sjlovestosing
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February 17, 2020 7:26 am  

Thanks, Liza for the updates. Linda, wishing you all the best and God's blessings.

Stella


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Dona
 Dona
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February 17, 2020 12:47 pm  

Wishing you well, Linda. Looks like you are in  a place with good care. And looks like you have a lot of good stuff dripping into you. Sending good wishes.

 

 

Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


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