Community Forums

When to Change Your...
 
Notifications
Clear all

When to Change Your Ostomy Appliance

26 Posts
7 Users
17 Likes
3,048 Views
 LK
(@dlkfiretruck)
Joined: 6 years ago
Posts: 1449
 

@ Gerry W ...Welcome  to VO!  Agreeing to my ileostomy, just over 12 years ago was the best thing I had done for myself in a long time! Before that there had been about 8 bowel surgeries. Different people different situations.  Fear is normal but if your feeling high anxiety the day of surgery do yourself a favor & tell the nurse looking after you. Sometimes they can give you a little  magic  pill to help you relax better. Its well worth the honestly! Lol! 

I know you haven't really asked for advice but I would like to encourage you to get up go for walks  "with assistance", as soon as your told its safe after surgery. Its the best way to encourage you guts & whole body to wake up & get moving. Drink lots of fluids after to help wash the drowsiness away & stay hydrated.  Don't be a hero over the pain situation. Let the Nurses & Doctor know if its not under control & don't be afraid to say so. I think I've found the 1st 3 days to be the most challenging. Once over that hump you'll do much better.  

Go armed with a journal so you can write down questions & answers for the Doctor & information like keeping track of how your guts respond to foods once your eating again.

Stay in touch & let us know how your doing. Slow & steady wins the race! Lol! Maybe when your up to it you can start a new forum & tell us your story & introduce yourself to the group. We do like to give newbies a hearty welcome!  Any questions... know we are here for you!!  Hospitals have a guest internet you can sign into if your up to viewing Erics ever so helpful videos! All the best & be as well as you can be! 

I'll be praying for you! 

Linda

Linda


   
ReplyQuote
 Ki
(@Ki)
Joined: 1 year ago
Posts: 3
 

Hi, I have a question about pouch changes. When inspecting the back of the wafer when changing the pouch, is it normal to have a little bit of seepage? Not enough to make a leak, but just a little underneath the wafer/barrier ring. I've had some ostomy nurses say that this is totally fine and others say that it should always be clean and without any sign of output underneath. I guess I'm trying to figure out the balance between achieving a system that works but not trying for unrealistic perfectionism. I'm also wondering if in the photo you showed of your used wafers if you were using barrier rings. I've been seeing mixed reviews about whether the barrier rings are needed. I was given them in the hospital, but I'm not sure if they are helping or possibly actually unnecessary for my pouching system. Thanks so much for any thoughts.


   
ReplyQuote
VeganOstomy
(@veganostomy)
Admin
Joined: 10 years ago
Posts: 4176
Topic starter  

Hi Ki,

In my experience, a little seepage is pretty normal and if it's not causing damage to the skin, I wouldn't worry about it.

You may notice itching around the stoma when this seepage happens, so it may even be a good thing since it gives you a heads-up that your wafer will need to be changed soon.

In those photos, I was NOT using a barrier ring, although I will say that the swelling effect you see appears more exaggerated than what I get now. If your output is on the liquid side, the wafer will likely look like the photo.

If you suffer from leaks, barrier rings can be helpful, but I would prefer someone to find an appliance that works for them without needing to use extra supplies.

What is your wear time like with and without the barrier rings (if you've been using those for long)?

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
john68 reacted
ReplyQuote
 Ki
(@Ki)
Joined: 1 year ago
Posts: 3
 

Thanks so much for this response.
So far I've actually never tried just wearing a wafer without barrier rings. My first ileostomy surgery went horribly wrong (stoma ended up being flush and about 5mm in diameter. Saw a new surgeon and he said it was one of the worst cases of retraction he'd ever seen). With that one I never got a real sense of wear times because the situation was so messed up. Now I'm 6 weeks out from the revision surgery when the malfunctioned loop was changed to an end and I've been changing the pouch every other day and I've been using the barrier rings every time. I've experimented with different rings though and found certain ones hold up better than others for me. No major leaks so far, just the little bit of seepage I mentioned sometimes visible under the skin barrier when I change it. I guess since I was instructed to use the rings in the hospital I had assumed that it was just a part of the pouching system. My output is typically thick applesauce consistency, sometimes gets a little more liquidy at night. I want to experiment with other set ups, but it causes me a lot of anxiety too.


   
john68 reacted
ReplyQuote
VeganOstomy
(@veganostomy)
Admin
Joined: 10 years ago
Posts: 4176
Topic starter  

If you have the time to experiment, try seeing what it's like without the barrier ring.

I trust that your new stoma is no longer retracted and sticks out a bit? If so, it should be fairly uncomplicated to try new things.

I personally find that wafers have far better adhesion to my skin than barrier rings, so I can push my wear time to 7-10 days without leaks, where barrier rings would usually top out on my after maybe 4 days.

Post again with an update if you do decide to try new things.

Good luck :)

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
john68 reacted
ReplyQuote
(@Helene)
Joined: 1 year ago
Posts: 1
 

You may want to à stoma RN to assess if convex flange could be better for you. This helped me to forgo the barrier ring.


   
ReplyQuote
Page 2 / 2