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Thanksgiving Ileostomy  


mmz
 mmz
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Thank you all for sharing your tips. As a new ostomate this has been a life saver! Eric, you have created something quite special.

I'm 63 years old, female, and fortunately started this journey in great condition.

6/10/20: annual poop card showed trace of blood. Doc doing exam said likely internal hemeroids but should get my 1st colonoscopy to be sure no polyps. With Covid, no local tests being done.

11/4/20; colonoscopy showed colorectal tumor

11/17; removal of 4 cm tumor and 3" of bowel with resection. Surrounding lymph nodes showed no spread, no need for chemo/radiation. Stoked!

11/25; Sepsis and shock. Airlifted for surgery Thanksgiving morning to flush leakage and re-suture of 1/3 of resection. Woke up in ICU with all kinds of tubes and an (hopefully temp) Ileostomy.

12/1; more pain. Tip of branch of an artery leaking. Angioplasty from groin access done to patch leak.

12/3; here we go again... back to surgery to re-flush, re-suture 1/4 of resection. Drainage pack for where abscess ate small hole from abdominal area into vaginal wall.

12/10; home at last. 20 lbs lighter - kind of a bag of bones. 

1/18/21; Still on big ileostomy exploring curve, but back at work (luckily home office), 3+ miles hilly walk most days, eating well. My husband went through hell not being able to see me in hospital due to Covid. He has been unreal support all the way.

If all goes well, ileostomy will be reversed in March. Doing my best to be prepared and strong for that and visualizing the best outcome. 

I have so much to be thankful for and veganostomy.ca is now on that list. Thank you!

 

me & my little volcano 🌋


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VeganOstomy
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Welcome and thank you for sharing that mmz. It's amazing how quickly things escalated then returned to (mostly) normal for you! I hope that you are feeling much better now and that your reversal goes well.

Please feel free to post any questions you might have, or explore the forums at your leisure. 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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john68
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Hi mms, A very warm welcome, Eric is sure right how quickly things can go wrong. I started my ostomy journey with a single page in a folder now it’s probably making War and Peace look like a pocket diary 📔 But on the up side it’s amazing how much the human body can heal. Yep this site is pretty special and the folks a helpful bunch from all corners of the Globe 🌍. So make use and all the very best 👍

ileostomy 31st August 1994 for Crohns


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LLNorth
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Hi mmz, and welcome. I hope that you are feeling well and healthy. You will find much interesting and valuable information on VeganOstomy - many thanks to Eric for this - and very nice, supportive people on the forums. LL

Colostomy 4/30/18. I love the smell of coffee in the morning. It smells like .... victory.


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mmz
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@veganostomy Thanks for the welcome. Yes, I'm still processing how I've gone to the brink and almost all the way back in the past 10 weeks. Thanks again for the many videos and tips you've created along with the rest of the gang. I owe a lot of my adjustment to the Ileostomy to these, and am finding comfort for my anxiety over the reversal as well. 

me & my little volcano 🌋


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mmz
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@john68 Thanks for the welcome and for sharing your experiences and tips. Sounds like you've had quite the journey! Here's to the continued amazing healing of your body.

me & my little volcano 🌋


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mmz
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@llholiday Thank you for the welcome and for all you share with this community!

me & my little volcano 🌋


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LK
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@mmz...glad to see you here. Thank you for sharing your story.  Anxiety was part of the reason I signed up here. Everyone is real and friendly, honest to the core! Support is so important for newbies even with an upcoming reversal. Do not be a stranger. There are plenty of questions asked about reversals you could help with.  If you wish, keep us in the loop as you go through your process to better health!! All the best to you & your hubby. It is very stressful not being able to see family when in hospital,  ICU! UGH🤦‍♀️🤦‍♀️🤦‍♀️!!! That  would be even more traumatic for both family & patient!! 

You have gone through so very much and came out a true survivor!! We are here for anything you need to ask. 

Linda


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mmz
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@dlkfiretruck Thanks for the welcome and for the suggestion to log my reversal journey. I know there are no guarantees, and after all the complications on the original surgery, I'm definitely anxious. Hopefully the experience can be helpful to others.

I am amazed and impressed when I read the histories of so many, yourself included, on this site and the fortitude it must take to go through years of these challenges! Thanks for sharing.

me & my little volcano 🌋


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mmz
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@dlkfiretruck   Interesting note on the Covid hospital visitor restrictions (which are super strict at the hospital I was in)...  A nurse told me that while it was hard emotionally on patients not so see their loved ones, she was seeing people recover quicker and better and go home in shorter times. She credited this to patients getting more rest without the commotion of visitors, staying healthier because even without Covid guests bring in their little sniffles and bugs, and being more motivated to get up and get moving so they can go home. Additionally, she thought the staff was able to be more attentive to the patients without the visitor distractions.

Most of my 10 days in ICU is a blur to me, but it may still gives my husband nightmares to recall, so this isn't to say Covid doesn't make it tough. Just good to also see the upside.

Goes without saying, this does not apply to terminally ill patients. I can't imagine the devastation for them and their families without personal contact!

me & my little volcano 🌋


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