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clarkjohnken
(@clarkjohnken)
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Joined: 3 months ago
Posts: 2
March 10, 2020 4:33 am  

 Ive had an Ostomy for a Couple of years. Its my second time having one. I have Crohns. I feel much better now. I stay pretty active and work at home here in Denver, CO. When i lived in Florida, I think the Heat and Moisture irritated my skin. But here in Denver the Dryer Climate seems to make this better. 

Ive been using Convatec Products Pretty much. The Hollister Brand does not seem to hold up as good. It has taken some time, but im finally getting use to the Ostomy and think i've figured out how to get it put on right. I like the "Slim" Rings. They seem to help also.


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VeganOstomy
(@veganostomy)
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Joined: 6 years ago
Posts: 2794
March 10, 2020 10:53 am  

Welcome to the forums! Thank you for that introduction and overview of the product that you used/have used. Excellent information! 


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LK
 LK
(@dlkfiretruck)
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Joined: 3 years ago
Posts: 773
March 10, 2020 11:18 am  

 clarkjohnken...Welcome to the best site ever!!!  So, your on your second time around eh! Thank you for sharing this with us.  May I ask how long between your stoma times?  I too live in a drier climate and have little trouble with things sticking right where they belong.  Most leaks I can blame on my own  human error! lol!   This is a good thing.  I'm sure your experiences will help others here as well, so, feel free to Chime in and help others figure things out a little easier.

All the best of health to you as you journey on forward in Denver and on VO! 

Linda


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john68
(@john68)
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Joined: 3 years ago
Posts: 1537
March 10, 2020 11:51 am  

Hi and welcome, the very best on your ostomy journey


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glenn.giroir
(@glenn-giroir)
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Joined: 5 months ago
Posts: 135
March 10, 2020 1:21 pm  

Hi and welcome!  Thanks for posting.  I hope things continue to go well for you!

 


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SqueakyandLiza
(@squeakyandliza)
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Joined: 1 year ago
Posts: 505
March 11, 2020 3:18 am  

Welcome!!  It is always nice to see a new ostomate join our group. I’m glad that you are getting off to a good start!!


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LLNorth
(@llholiday)
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Joined: 1 year ago
Posts: 190
March 11, 2020 11:42 am  

Welcome, clarkjohnken! Glad you are doing well. What is it you like about the slims?


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Lil Stomie
(@lil-stomie)
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Joined: 3 months ago
Posts: 15
March 14, 2020 12:15 pm  

Just wanted to say hi, I am new here! I'm 50 and got diagnosed with colon cancer in December '19, 10 days before Christmas. Have a reversible colostomy, and my doctor is optimistic that I will beat this cancer and get the colostomy reversed eventually...fingers crossed :-) 
I joined because it seems like every day I have another issue annoying issue with my bag or output or SOMETHING lol. Looking forward to connecting with others in the same boat!


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VeganOstomy
(@veganostomy)
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Joined: 6 years ago
Posts: 2794
March 16, 2020 11:07 am  

@lil-stomie

Welcome to the forums! Please, feel welcome to post questions about some of your issues and hopefully, we can solve it together. 

 


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john68
(@john68)
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Joined: 3 years ago
Posts: 1537
March 16, 2020 11:39 am  

Hi and welcome, the very best wishes for a recovery and going forward 👍


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Lil Stomie
(@lil-stomie)
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Joined: 3 months ago
Posts: 15
March 16, 2020 12:51 pm  

@veganostomy

Thanks so much for having me!!

 


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Lil Stomie
(@lil-stomie)
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Joined: 3 months ago
Posts: 15
March 16, 2020 12:53 pm  

@john68

Thanks so much! I am keeping a positive attitude as much as possible!

 


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LK
 LK
(@dlkfiretruck)
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Joined: 3 years ago
Posts: 773
March 16, 2020 1:01 pm  

@lil-stomie.. welcome to the group! You will have your good moments and bad but they too can be conquered! Thus is life! 

Hang in here, and know that no question is a stupid question, we have all been there. All the best and be as well as you can be.

 


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Lil Stomie
(@lil-stomie)
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Joined: 3 months ago
Posts: 15
March 16, 2020 1:03 pm  

@dlkfiretruck

Thank you very much, that is kind of you! I am glad to have found this forum, appreciate the support!

 


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Dona
 Dona
(@dona)
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Joined: 3 years ago
Posts: 774
March 16, 2020 2:11 pm  

Welcome Lil Stomie,

This does take some getting used to, but you will get really good at it. The first time you forget its there ( no matter for how long) it will be great! It really does get better. 

Ask all the questions you want.


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Lil Stomie
(@lil-stomie)
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Joined: 3 months ago
Posts: 15
May 1, 2020 2:32 pm  

Update: I just wanted to give an update on how I am doing since I first introduced myself on this forum! I have colon cancer, and they did a CT scan on March 20th and found out that my tumor is actually shrinking, and there is no sign of it spreading anywhere! I am really happy. They scheduled me for another scan on May 14th so fingers crossed! My doctor came right out and told me she is confident that I can beat this, and also have my colostomy reserved. So I am still feeling pretty happy and optimistic about this.


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john68
(@john68)
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Joined: 3 years ago
Posts: 1537
May 1, 2020 3:42 pm  

Hi ya, That is fantastic news, keep us updated 👍


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LLNorth
(@llholiday)
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Joined: 1 year ago
Posts: 190
May 1, 2020 6:49 pm  

Glad to know your good news! 🎉


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glenn.giroir
(@glenn-giroir)
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Joined: 5 months ago
Posts: 135
May 2, 2020 10:28 am  

That's great news!  


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Lil Stomie
(@lil-stomie)
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Joined: 3 months ago
Posts: 15
May 2, 2020 7:30 pm  

@john68 Thank you so much!


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