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Wearing a Hernia Belt with a Prolapsed Stoma

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(@nbnorth)
Joined: 3 months ago
Posts: 2
Topic starter  

My mom has a loop colostomy (double barrel) where her stoma and distal mucus segment are next to each other. Her distal segment has a prolapse. She has had a Parastomal Hernia since January and last Friday, her stoma was normal and then the next day the distal segment (mucus) prolapsed and swelled upto 5 inches. We monitored and then on Wednesday we went to see the Ostomy Nurse and asked for her advice on the prolapse and it had little spots of bleeding on it. She tried to massage it back in and that didn’t work. My mom has cancer and that is the reason for the Colostomy. She then referred us to emergency and after blood tests and CT Scans, they did not see any blockages in her bowel and the cancer was still there, so the surgeon said that he would not operate due to mom’s cancer and her chemotherapy treatment and that he wasn’t sure why mom had the prolapsed stoma. Mom does have weak stomach muscles and has been wearing a Nu-Hope Hernia belt, but she sneezes and coughs a lot. So he (surgeon) told us to monitor it and there was not too much that he could do and just keep an eye on the blood flow to the stoma. He suggested we try sugar. My mom’s friend, who is a nurse came over to the house and worked with sugar and massage to see if the stoma goes back, it didn’t really go back, but it did stop the tiny bleeding on it. So we are monitoring it and trying to support my mom, but she is emotionally and psychologically drained from seeing the prolapse. She said “things were going too well”.

So this is where we need some advice:

1) Can and should she continue to wear her Hernia Belt with a Prolapse?

2) She had been walking upto 1 km a day now and she doesn’t want to lose the momentum as she has been lying flat down for a week trying to see if that will make the stoma go back in. Should she begin to walk a little more?

3) The little blood spots that appear (her stoma is pink and her distal segment is darker red), how do we treat them? Our Stoma nurse said, apply some stoma powder mixed with Coloplast Cream and that should work? We have been applying cold packs as well.

It is tough to see my mom so down so I thought I would see if anyone could help me out with this.

Thanks….

 


   
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Tigerlily
(@tigerlily)
Joined: 4 years ago
Posts: 369
 

It sounds like your mom has had a really hard time. I don’t have a loop ostomy, but I did have a parastomal hernia, without the prolapse. I did continue to wear a hernia belt, and I did continue walking for exercise. However, I don’t feel that I could advise you; your mom’s situation is very nuanced. While we on this site can talk about our own experiences, we also recognize that our experiences are not the same as medical advice. Because your mom’s difficulties are so unique, I think it is best for her to consult her medical team for help. 

Please let us know how her medical team decides to proceed; that information could be very helpful to someone else here. I know how frustrating it is to not have answers, and the anguish of watching someone you love suffer and not be able to help is awful. In many ways, the role of the caregiver is just as difficult as the patient’s and often overlooked. Please keep checking in with us - we may or may not be able to give you concrete answers, but we will always listen to the frustration that you understandably don’t want to burden your mom with. I wish you and your mom all the best, and I have faith that the medical team will be able to alleviate her suffering, even if it doesn’t happen as quickly as you both would like.

 

Laurie

Just a semicolon


   
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(@nbnorth)
Joined: 3 months ago
Posts: 2
Topic starter  

We had to bring mom back to the hospital on Friday as the prolapsed stoma was bleeding too much. A new surgeon saw my mom on Saturday and was able to push the prolapse back in. He sent mom home as he said you need rest and you can’t rest in the hospital. He said that we should not wear the belt with the hole in it as the prolapse will happen again faster through a belt with a hole in it. He suggested that we use a belt with no hole in it that would provide consistent supports across the whole stoma area. We already had a CUI Unisex Anti Roll Mesh Ostomy Hernia Support belt and we applied it immediately when we got home. We usually go through myostomy website and they have a lot of products and are very helpful. Having a hernia behind it can push it out through the hole. He said that mom should always apply gentle pressure to her stoma when she is sneezing or coughing or even having a hardy laugh. They won’t do surgery at this time because of mom’s cancer. But we are speaking with her Oncologist this week to discuss treatments that need to change. This site has been a wealth of information and inspiration for our family, knowing that we are not alone helps us with our journey. 


   
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Tigerlily
(@tigerlily)
Joined: 4 years ago
Posts: 369
 

@nbnorth so, that trip to the hospital was helpful - the new doctor was able to push the prolapse back in, and advised that a binder hernia belt would be a better choice right now. The doctor was certainly right about home being the best place to get rest - being in the hospital is so stressful, and it’s impossible to get any sleep there. What is the plan to treat your mom’s cancer? Is this a new diagnosis or a recurrence? Waiting to hear the plan is the most stressful time; at least when there’s a plan you feel like you’re moving forward rather than stuck in limbo. My colostomy is the result of cancer. I remember how surreal everything felt. Your mom is lucky to have such a good advocate as you! Is it possible that we know your mom here already?

 

Laurie

Just a semicolon


   
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 LK
(@dlkfiretruck)
Joined: 7 years ago
Posts: 1496
 

Nbnorth ... I appologize for not being able to respond, (vision issues), but you have good advice from (Laurie), Tigerlily, I can't help but wonder how your Mom is doing & how you are doing too.  There IS a lot of stress with cancer but add a misbehaving Ostomy to it... well, very  naughty stoma!! 

I truly hope "things" settled down for you all but ofcourse esp. for your Mom who sounds like a real trooper! Hang in there! No questions here are a dumb questions & if we have no experience with your type of question, we are honest about that too. I'm sorry, I have no experience with what you are dealing with, other then life care for a family member with prostate cancer & end of life support & oh, how I wish I had this group of people here at that time!  My own ileostomy was so knew at that time too.  

Please, if you have time, don't be a stranger, I know I am & would venture to say we are interested to know how things are going for your Mom & you all. Your Mom is extremely blessed to have you on her Team!! 

Linda


   
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VeganOstomy
(@veganostomy)
Admin
Joined: 10 years ago
Posts: 4255
 

Posted by: @nbnorth

He said that we should not wear the belt with the hole in it as the prolapse will happen again faster through a belt with a hole in it.

I was going to say that even though I don't have a need for a hernia belt, when I wear one, it causes me to prolapse, even though I wouldn't prolapse under normal circumstances. It adds a lot of extra pressure on the stoma, so caution is advised.

I haven't used one without the hole, but as @tigerlily has already said, your mom's situation is unique and would require special attention to properly treat/manage.

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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