May 19th, 2016 is World IBD Day. While my feelings about this day haven’t really changed since last year, I do want to take the time to reflect on a few things that I’ve noticed about the IBD community.
Ahhh, colon prep! When I had a colon, this use to be something I did not enjoy doing (does anyone??), but it was a necessary part of making sure that I was properly cleaned out before my GI could scope me.
For the longest time, I remember fiber being the sworn enemy of someone who has Crohn’s Disease or Ulcerative Colitis.
In fact, the suggestion to go on a low-fiber diet when you have IBD is often one of the first ones you’ll hear – but is that the best thing to do?
This post has been on my mind for a while, but as I’ve just sold a phone that’s been with me through some of the most difficult times in my life, I’m reminded about just how fortunate we are to have access to these portable devices when we are sick.
I had an interesting encounter on the weekend that reminded me of the realities of living with an invisible illness or a hidden disability.
I dedicate this post to my friends who haven’t been able to catch a break because of IBD.
Through my blog, I’ve tried to share ways that can help improve the quality of life for someone with an ostomy. While I also have Crohn’s Disease, I handled my flares poorly, and so I can’t offer much help to those who are suffering with IBD at this very moment.
Prednisone. I’ve got more than a few names for it, but it’s helped many people get out of an IBD flare. Unfortunately, it sometimes involves trading your soul to the devil, or at least trading one problem for another.
Even with a properly managed stoma and predictable appliance wear times, there are still some challenges that an ostomate may face in certain situations.
Not many people know what IBD is at the time of their diagnosis, and I had a lot of questions about Crohn’s Disease when I was first diagnosed, but there are some things that I wish I had known sooner.
Today (May 19th, 2015) marks another World IBD Day. I know that some people see today as a special day for advocacy and as a reason to celebrate, but the past few weeks leading up to today have been full of anxiety, discouragement and upset for me.