Where Did I Go? (Sept 2018 Update)

So many of you have emailed me or sending me private messages asking where I’ve gone lately. Thank you for the concern! I’m hoping this post will answer some questions.

First off, let me say that VeganOstomy is one of the most important things in my life, and new content is on the way (I promise!).

Members of my Community Forums likely haven’t noticed my absence since I am still active there. But a few things have come up that have taken time away from working on the website and being able to advocate the way I would like. I do wish to remain private with some things, but I’m comfortable enough to open up about these, so here it goes…

Earlier in the year, I had a health setback that’s created an extra physical and mental burden on me. I haven’t shared much about it because we’re still not sure exactly what’s going on yet.

So, back in February of this year, I received two vaccines: one was a Hepatitis B shot and the other was Prevnar 13 (pneumococcal vaccine).

Several days after the shots I started to get body pains, which worsened and spread over the course of several weeks and months. Well, after over a dozen x-rays, an MRI, blood tests and specialists, we still don’t know what is actually happening in my body.

And this isn’t the first time this has happened. Back in Feb 2014, I had the “TDAP” (Tetanus, Diphtheria, Pertussis) vaccine and experienced the same symptoms beginning several days after that one.

In that case, the pains lasted nearly a year and then went away. The health department was notified of this possible adverse reaction back then and they suggested that I continue to have regular vaccines.

And I did, without trouble, until this year.

But this time, the symptoms haven’t been going away. Seven months later and they seem to be getting worse. My doctor’s appointments are still ongoing and I have a special appointment in November to explore what triggered this (so I can avoid it in the future).

That said, these chronic symptoms have been draining and make it difficult to move with the energy I’m used to having. It also creates more challenges as I still have to maintain all my work and family responsibilities on top of that.

But I’m no stranger to physical pain and I’m generally able to persevere through it.

What’s really grounded me to a halt, however, is witnessing a family member, who I love dearly, struggle with substance abuse over the course of the last year and having no power to alter their course.

It feels like I’m watching someone drown ten feet away from me and I have no way of rescuing them.

This has taken a significant toll on my drive to help others. I carry a huge sense of guilt every time I plan to make a new video or write another article to help others while knowing the one person I desperately want to help is out of reach.

Please, accept my apology for this absence.

There has been so much that I’ve wanted to share with you, but social media has been a source of anxiety, so I’ve avoided it. And my newsletter – well, quite frankly, I’ve been embarrassed that I have so little new content this year when my goal was to have at least 30 new articles/videos done for 2018, so I haven’t sent out any newsletters for most of the summer.

If there’s one thing I’ve learned through the last 10 years of having Crohn’s Disease, and 5 years of living with an ostomy, it’s resilience.

I will find a way through this.

57 thoughts on “Where Did I Go? (Sept 2018 Update)”

  1. Thanks for all the words of encouragement and thought, guys. I’ve received over 200 emails and messages since yesterday and won’t be able to reply to them all, but I do appreciate everyone’s support. 

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  2. Eric…thank you for responding to my thoughts. I hope it is discovered soon what is going on with your body. That kind of pain is ridiculous to deal with…and then some. I was diagnosed with Fibromyalgia in 96, 18/18. Then Ankylosing Spondylitis, it is a harsh disease also. My Rhuematologist figured it all out for me a few years back. I did not know whether to laugh or cry. So,I cried! I was sent to a Urologist for other issues later,and he too added to the list. I can not help but wonder how many of us out here have several different diseases that affect us from a moment to moment basis. As I read what others share, I often wish to have a long chat with them as it seems I am alone in so much that I go through. I even have trouble getting to doctors and hospital when I can not safely drive myself I stay home. When it gets bad enough I call the ambulance. Trouble is I am always right when I need to be admitted and I despise NG tubes. Eric, do not lose heart or faith. Keep strong and sure of yourself. You are in tune with your body and that is important. Bad side effects to vaccines, but at the same time, which is worse, the illness from not having them when needed and the effects that has on your health? Do not second guess yourself. You have a strong mind and heart. I hope this is all sorted out for you very soon. I am sure you are doing your best in regards to your family member, you are a caring soul. Just do not forget to look after yourself in all of this.  Linda 

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  3. TDAP, i had one of those last summer, they gave me a paper on and it said I might get some mild side effects, well it knocked me on my butt for several days, lots of weird pains.I’ve thought about your comments on feeding dogs vegan diets and how they did poorly.  the division from carnivores to herbivores does not seem that clear until you get to the herbivores digestive system.  being an omnivore doesn’t seem really suggest switching to herbivore is on equal ground to being omnivorous.   while the dogs survived on vegan,  they did not flourish.I didn’t buy the LA times article…….and who know how healthy those caged laboratory dogs actually were? I could not have supported that guys research. maybe your system already compromised, can’t handle vegan to “flourish" either?   offhand I know only 6 vegetarians , they all are very sedentary, non athletic and overweight as well.I do hope you well, vegan or meat eater   :).

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  4. Hang in there Eric. You are my hero and support for hundreds of your followers. I hope we can help you as you have helped many of us. Stay strong.

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