No matter how hard advocates try, it seems that everyone still confuses IBD with IBS. In this parody of the famous bunker scene from the movie Downfall (2004), Hitler is given the bad news….
I enjoy visiting support forums and local support groups, but for many years I tended to avoided them. The problem with most support forums (and this extends beyond forums that focus on chronic illness), is that the majority of people on them are having problems. Obviously, looking for support because of a problem is one of the reasons to be on a support forum, but sometimes the constant barrage of negatively and despair can make your own situation feel much heavier and more likely to trigger some negative emotions.
“Is your ostomy permanent?”
I’ve come across that question many times since having my ostomy, but it seems that when I answer that question (with a “yes”, obviously), I get told how sorry people are for me. This needs to stop! I feel incredibly fortunate to have my ostomy, and I don’t feel sorry for having one.
As I listened to a podcast from my friend Stephen Dempster on the blog Behind the Times, he raised a good point that immediately got my tired brain working. He stated the following:
The question we should really be asking is not so much “Do you think we will ever find a cure for Crohn’s Disease?”, but rather, “Do you think we will ever find a cause?”
And it does raise a very important question, because how can we find a cure without knowing the cause (or causes…)? So I was immediately reminded of some of the theories I’ve heard over the past several years. Yes, none of these are to be taken very seriously, but it goes to show you that everyone seems to “know” the cause of Crohn’s Disease – it all depends on who you ask!
Hopefully, the title will make sense by the end of this post!
How do you cope when you’re stuck with a chronic illness or life-changing surgery? For me, it’s got to be humor; not just chuckling at random jokes, but deliberately making it a point to crack jokes or create memes about IBD or my ostomy. Why?
Lauren is a wife, mother, domestic goddess, blogger, plant-based foodie living life to the fullest after suffering for years with … Read more
Despite all the wonderfully positive stories you might see on the news or on blogs about IBD’ers who’ve overcome personal obstacles, it probably wasn’t always easy for them. Many of us haven’t climbed over those obstacles yet, and continue to live a life of pain and suffering. Many IBD advocates have attempted to bring these issues to the forefront, but our message about the true challenges we face when living with Crohn’s and Ulcerative Colitis usually goes unnoticed by the general public. I hope to bring some of those challenges to light in this article.
We’ve all heard about PTSD (Post Traumatic Stress Disorder), but have you heard of Posttraumatic Growth? Many of us with IBD or an ostomy have experienced this, even if we aren’t familiar with the term. It happens when a life-changing event causes a positive change in someone’s life. More specifically, it’s when something that would be considered traumatic happens in our lives, and our perspective on life changes for the better: We grow as people.
There’s good advice, questionable advice, and downright bad advice.