Once in a while, the media or a government agency will say something that deeply offends ostomates.
I had an interesting encounter on the weekend that reminded me of the realities of living with an invisible illness or a hidden disability.
We’ve all heard about PTSD (Post Traumatic Stress Disorder), but have you heard of Posttraumatic Growth? Many of us with IBD or an ostomy have experienced this, even if we aren’t familiar with the term. It happens when a life-changing event causes a positive change in someone’s life. More specifically, it’s when something that would be considered traumatic happens in our lives, and our perspective on life changes for the better: We grow as people.
Anyone with an invisible illness can tell you that at some point they were told that they “don’t look sick”. That comment often ranks first among a list of things you shouldn’t say to someone with IBD, but it never really bothered me. I know I likely stand alone in saying that, since being told that you “don’t look sick” when you’re life’s under constant assault because of illness can be hurtful, but hear me out…