The finalists for the 4th Annual WEGO Health Activist Awards have been chosen, and I’ve made it through as one of the “Best Kept Secrets“!
I’ve been a fan of the Trusted Therapies site after meeting both Co-Founders, Darren Bounds and Dr. Brian Bressler, at the IBD Hall of Fame event in Toronto. The information they provide about Inflammatory Bowel Disease is accurate and up-to-date. I love what they’ve been doing, and they get bonus points for being Canadian!
I had an opportunity to be interviewed live on a special edition of the IBD Round Table, hosted by Frank Garufi Jr. of The Crohn’s and Colitis Effect. There were so many great questions coming from both Frank and the viewers on the live chat, and I had a blast!
THE EVENT IS NOW OVER. BIG THANKS TO EVERYONE WHO WATCHED!
Join me on Thursday February 26th, 2015 for a special online event!
No matter how hard advocates try, it seems that everyone still confuses IBD with IBS. In this parody of the famous bunker scene from the movie Downfall (2004), Hitler is given the bad news….
“Is your ostomy permanent?”
I’ve come across that question many times since having my ostomy, but it seems that when I answer that question (with a “yes”, obviously), I get told how sorry people are for me. This needs to stop! I feel incredibly fortunate to have my ostomy, and I don’t feel sorry for having one.
As I listened to a podcast from my friend Stephen Dempster on the blog Behind the Times, he raised a good point that immediately got my tired brain working. He stated the following:
The question we should really be asking is not so much “Do you think we will ever find a cure for Crohn’s Disease?”, but rather, “Do you think we will ever find a cause?”
And it does raise a very important question, because how can we find a cure without knowing the cause (or causes…)? So I was immediately reminded of some of the theories I’ve heard over the past several years. Yes, none of these are to be taken very seriously, but it goes to show you that everyone seems to “know” the cause of Crohn’s Disease – it all depends on who you ask!
How do you cope when you’re stuck with a chronic illness or life-changing surgery? For me, it’s got to be humor; not just chuckling at random jokes, but deliberately making it a point to crack jokes or create memes about IBD or my ostomy. Why?
Jan 2015 – Jessica Grossman is the founder and spokesperson for the ostomy awareness campaign, Uncover Ostomy. Founded in 2009, Jessica and the campaign work to change the negative conversation surrounding ostomy surgery into an open and positive discussion. I’ve been a fan of Jessica and her campaign for about as long as I’ve had an ostomy, and she was one of the first people to inspire me to advocate for ostomates.
As the end of 2014 arrives, I look back at the year in amazement of all the wonderfully positive IBD and Ostomy awareness efforts I’ve been able to both witness and take part in; while I’m not back to perfect health yet, I’ve been so grateful to have had relief from years worth of illness.