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ROUNDED BELLY AND STOMA SECURITY

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Reggie Jones
(@reggie5401)
Joined: 9 years ago
Posts: 11
Topic starter  

Hi Eric and All,

I am not overweight, about 135lbs, but my belly is definitely not flat, has a little roundness to it.  I feel as if the extreme inside edge of my one piece wafer separates from my skin relatively easily, causing output (mostly liquid) to get on my skin, resulting in only about a 2 day wear time as the skin starts to itch to wear I have to change.  I always find some stool under the edge of the wafer.  I have no creases, just the surface of my belly is rounded, not flat.  Anyone have experience or information to contribute?  Thanks, Reggie



   
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Dona
 Dona
(@dona)
Joined: 9 years ago
Posts: 832
 

Hi Reggie, and welcome. I think I saw/read somewhere that some of the wafers are curved? I am sure Eric or someone will know. That might fit better. Good luck.


Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


   
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VeganOstomy
(@veganostomy)
Admin
Joined: 12 years ago
Posts: 4736
 

Hi Reggie,

My belly is rounded, so I can understand what you'e experiencing. 

The first thing is to try appliances that are soft and contour well. Products with tape borders or something like the Coloplast Sensura Mio may be helpful. 

Are you using any support belts or bands? 

 


Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
 

Hi ya, yep a wrap or belly band may help keep an even pressure to the wafer. also I find using a hair dryer on the wafer helps it flex and turns it up a little at the sides, be careful not  to over heat as it can get dam hot just a gentle heat. have seen a product called an equaliser. its a simple rubber ring which can be used when the wafer is fitted to get close to the stoma and you use it get in and hold down the edges to make sure contact is even.


ileostomy 31st August 1994 for Crohns


   
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Chris
(@chris)
Joined: 9 years ago
Posts: 143
 

Hey Reggie. I'm going through the same thing. I've only had my ostomy since June and All has been working well until just recently (when I said I never had leaks!!!) suddenly output has been getting past my eakin rings as though they have begun to adhere less. When I take my wafer off, there is always output on the mating surface of the ring. I seem to have been gaining weight lately, and I'm kinda leaning towards that being the real difference here. 

I just tried a paste without a ring this morning to see if that makes an improvement. I've never used paste before.  I might buy some convex wafers and try those too if this doesn't work. I don't have a flush stoma but it's "mouth" is definitely below and under - not centred- and, though it's not flush with the wafer, I'm thinking maybe the opening BECOMES flush when it retracts. Just a thought that I'm going to monkey with.

I already use the sensura mio wafer and I like it, but I haven't tried anything convex yet.

 

I'll let u know what I think of the paste.

 

Chris



   
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VeganOstomy
(@veganostomy)
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Joined: 12 years ago
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Posted by: Chris

I don't have a flush stoma but it's "mouth" is definitely below and under - not centred- and, though it's not flush with the wafer, I'm thinking maybe the opening BECOMES flush when it retracts. 

I can tell you from my own observations that this does happen to me. Even though my stoma is protruded, it will retract when there's a partial blockage or if I have output that's too thick to pass easily. And it does cause leaks.

Let us know that paste goes! 


Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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Illona
(@illona)
Joined: 9 years ago
Posts: 79
 

I'm now using Convatec Natura convex wafers with a Eakin seal and it's working well for me.  At first I was leaking all the time and it was terrifying for a newbie.  I tried everything, even that stoma paste but that caused burning.  Since I switched to the convex wafer with Eakin seal the only time I leaked was due to an error I made (not attaching the bag correctly, etc)

if you find the paste burns, there are other types of paste made without alcohol.  I have not had to try this yet though:: knock wood:::



   
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Chris
(@chris)
Joined: 9 years ago
Posts: 143
 

Well I leaked this morning. Sort of. So far, any leaks I've had haven't escaped the barrier extenders. Still a leak in my books however. Anyway, this morning I had a right full bag (like... REALLY full) so I think this leak might have been due to internal pressure as opposed to the curved belly phenomenon. I then did the same setup as yesterday with the paste for round 2.

I'll let you know if I last longer than 24 hours with this one. 

I drank an entire bottle of wine and ate a full large bag and of chips at around 10pm last night.. so I'm blaming that. I'll try not to do the same thing tonight.

re the stinging paste....  I got a sample from brava. I believe this is non alcohol base because it doesn't sting at all.

Reggie, have you tried anything else or received any success? I hope so. Do tell if so :)

 

 



   
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Robert
(@njewell1)
Joined: 9 years ago
Posts: 765
 

Chris

Your stoma sounds just like mine . Short and points down . For the first few months I also had problems with leaks but mine would get all the way paste the barrier and come out  . I finally went to see my ostomy nurse . She started me on the convex barrier ( I use Hollister ) and since then I haven't had a problem Knock on wood . Maybe the convex ones might work better for ya . And maybe tonight you could just skip the chips ! Haha

 


Proctectomy , Ileostomy , Ulcerative Colitis


   
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VeganOstomy
(@veganostomy)
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Joined: 12 years ago
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Posted by: Chris

I drank an entire bottle of wine and ate a full large bag and of chips at around 10pm last night.. so I'm blaming that. I'll try not to do the same thing tonight.

haha, what the hell? The wine is asking for trouble!

re the stinging paste....  I got a sample from brava. I believe this is non alcohol base because it doesn't sting at all.

The non-sting paste is nearly always alcohol-free - the stingy type nearly always has alcohol!


Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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Reggie Jones
(@reggie5401)
Joined: 9 years ago
Posts: 11
Topic starter  

Thanks for the tip on the equalizer, I will research it for sure



   
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Reggie Jones
(@reggie5401)
Joined: 9 years ago
Posts: 11
Topic starter  
Posted by: VeganOstomy

Hi Reggie,

My belly is rounded, so I can understand what you'e experiencing. 

The first thing is to try appliances that are soft and contour well. Products with tape borders or something like the Coloplast Sensura Mio may be helpful. 

Are you using any support belts or bands? 

 

I used to use the Sensura Mio and had gobs of leaks, had to use extenders, but my skin itched badly and leaks were common.   I have been using Hollister one piece 8331, with a filter and tape border, which is a drag drying, but I have had just one actual leak where it came out of the tape border, and it was minimal anyway.   What I get is output going under the wafer part a little bit,   some days more than others.  I also prolapse when not wearing an ostomy support wrap.  Since I use a one piece I have never tried a support belt.  I may order a box of the convex in the Hollister and see if it helps.  Thanks for the suggestions and input from everyone!



   
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Chris
(@chris)
Joined: 9 years ago
Posts: 143
 

Well, Im at day 1.5 with the paste - no noticeable leaking under the wafer.  I'm sorta experiencing the same leaking as you Reggie - it's just seeping under the wafer but hasn't escaped to the edge yet.  I ordered the convex wafers this morning (hopefully it works as well for me - and Reggie - as it does for Robert) and I'm going to throw one on as soon as they come in, with paste.

I leave next Wednesday for - what my daughter calls - Mortal Beach, so it'd be nice to have this a little under control by then.

Anyway, hope the convex works well for you Reggie.  But more importantly... ME! ;)

 



   
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(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
 

Hi Ya Chris,

Was just about to post as ye popped UP. Was going through the above and its just a thought. when showing or washing yes aren't using a gel/soap that's leaving a trace behind and may not be givin a good seal


ileostomy 31st August 1994 for Crohns


   
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Chris
(@chris)
Joined: 9 years ago
Posts: 143
 

Thats a great suggestion, but... I dont shower.

Kidding.. but when I do I always have my appliance on.  Maybe Reggie could be having that issue though?

I do use powder every time however..  which might give the same problem?  I'm kinda nervous to NOT try powder because my skin is always a little irritated and bleeding a bit where the stoma meets the skin.  I'm worried if I don't use it Ill get to a place I don't want to be.

 



   
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(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
 

I may be worth a shot to put on a little less and pat it gently away (check out Erics vids) So headin for the beach, washing or just on vacation lol


ileostomy 31st August 1994 for Crohns


   
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Dona
 Dona
(@dona)
Joined: 9 years ago
Posts: 832
 

Hi All,

About the soap. I use this stuff :

https://www.amazon.com/Purpose-Gentle-Cleansing-6-Ounce-Bars/dp/B005ALUKUY/ref=sr_1_3_s_it?s=hpc&ie=UTF8&qid=1506993311&sr=1-3&keywords=purpose%2Bsoap&th=1

Its a bar soap and was recommended by my dermatologist when I had some peristomal skin issues. and problems with my wafer not adhering well. It washes off completely ( it is not vegan). It has no scent. Comes also is a pump, but I prefer the bars.

Chris, consider showering naked! I know , I know. But if the timing is right, like when you are changing your appliance and not much output is happening, it works great. Get all the residue of the previous  application off.  I use kind of a plastic wash cloth, that is very soft rinses clean, and really helps clean that delicate area.My stoma really likes a bath.

And, if a bit of stuff escapes, it just washes down the drain to become one with the great sewer anyway.

I put the stoma powder on dry warm skin just near my stoma. I blow the excess away with the hair dryer. Good luck. It too me quite a while to get it right. My stoma is also often flush with my skin and the convex wafer really has helped.  I was leaking all the time ... driving me & my husband to distraction. ( Thats how I found the Bagmaster!!)Thank you Obi-Wan).. I also use a barrier ring. ( Hollister wafer/bag and an Eakin Ring...Hollister rings won't work on me)

Good luck ... I also helps to keep a record of every change. Its sometimes hard to remember exactly what went down.

 


Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


   
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Dona
 Dona
(@dona)
Joined: 9 years ago
Posts: 832
 

These are the wash towels I use.:

https://www.amazon.com/Self-cleaning-Washcloths-odor-free-backpacking-Compliments/dp/B004KSL96C/ref=sr_1_cc_4?s=aps&ie=UTF8&qid=1506994242&sr=1-4-catcorr&keywords=backpacking+wash+towel

These are soft, but as always, you have to be very careful near your stoma. As we all know it doesn't have 'feelings' and bleeds easily.


Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


   
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(@john68)
In Memorandum
Joined: 9 years ago
Posts: 2059
 

Yep Dona, I have always seen the benefits of doing my "change" as I call it this way. for me first thing in the morning works best. I in my younger day worked with heavy machinery and was covered in dust/ oil and their was no way I could get properly clean without stripping all back. at the start I thought this was going to be a problem with the stoma but soon seen it was a real benefit. put it this way any one having problems why not give it ago.


ileostomy 31st August 1994 for Crohns


   
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Robert
(@njewell1)
Joined: 9 years ago
Posts: 765
 

Chris

I forgot to mention when I started using the convex barrier I also started using the 1 inch wide support belt . I also use powder but I don't use any kinda seals or paste .


Proctectomy , Ileostomy , Ulcerative Colitis


   
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