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Sex with an Ostomy: Tips for Better Intimacy (w/ video)  

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VeganOstomy
(@veganostomy)
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Joined: 5 years ago
Posts: 1983
February 14, 2017 12:50 pm  

Let's talk about sex!

For my full, in-depth article about the subject, please click on the link below.

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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VeganOstomy
 VeganOstomy
(@VeganOstomy)
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Posts: 449
February 14, 2017 1:07 pm  

Do you have any tips or experiences to share?


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FelicityG
(@felicityg)
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Joined: 1 year ago
Posts: 257
September 26, 2017 5:44 pm  

Apparently there are corset makers out there who do make corsets with ostomies in mind! They create an opening to enable access to your bag. These are custom items and the corset maker must meet you to do the measurements. You won't find these off the rack, most of those are not good for you anyway due to not being made to suit your particular body.

Crohn's Colitis, Ilieostomy, Proctocolectomy November 2017


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VeganOstomy
(@veganostomy)
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September 27, 2017 2:34 am  

That's pretty cool! I would imagine it's a very niche service for an already niche product, but I'm sure many corset makers would be accommodating.

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Jim
 Jim
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December 20, 2017 4:02 pm  

The only problem I have with intercourse after having my ileostomy is that nothing can be spontaneous anymore I really have to be prepared to have intimacy with my wife.


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VeganOstomy
(@veganostomy)
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Joined: 5 years ago
Posts: 1983
December 21, 2017 11:35 am  

Yes, planning with an ileostomy is important. Ostomates who have a colostomy (especially those who irrigate) are more fortunate in that regard since their appliance isn't being filled as often.

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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JH
 JH
(@JH)
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December 23, 2017 8:53 pm  

You're lucky man. I smell like crap 100% of the the time, can't eat, am a walking skeleton, spend an hour and a half irrigating everyday, haven't had sex in ten years and probably never will again. I'm 30. Its tough not to think about women all the time, but this ostomy is so gross and crippling, that sex is impossible.


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JH
 JH
(@JH)
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December 23, 2017 8:55 pm  

Anyway, I'm really glad that you didn't turn out like me.


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VeganOstomy
(@veganostomy)
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Joined: 5 years ago
Posts: 1983
December 23, 2017 11:09 pm  

That's rough, JH!

Sounds like you've got some underlying and ongoing health issues that are making life really difficult for you - do you have any access to a stoma nurse to at least help in some stoma-specific areas like the smell or irrigation? And can your doctor help to figure out the eating and weight issues?

I think that once you get on track, it'll be less of a burden.

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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JH
 JH
(@JH)
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January 6, 2018 7:59 pm  

Thanks for your reply. My only real health issue is the ostomy. Before the ostomy I was going to the bathroom 15x per day, but was actually very healthy and fit. Now I'm half dead. I've already paid $18K (US) for surgery, tests, WOCNs, etc. It's been 5 years of this. I'm just screwed.


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VeganOstomy
(@veganostomy)
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Joined: 5 years ago
Posts: 1983
January 9, 2018 10:25 am  

Sounds like there's still something going on, but I know it's expensive to continue with tests.

I've known a few people who were told that nothing is wrong, but they continued to feel terrible all the time. One friend was persistent and traveled across the country until a solution came up - now he's healthier than ever.

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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FRANCES WONG
 FRANCES WONG
(@FRANCES WONG)
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Joined: 11 months ago
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February 12, 2018 2:16 am  

Thank you Eric, I enjoy your detailed report. Fran


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