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mouse
(@mouse)
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Posts: 3
August 13, 2018 8:13 am  

Hi all,

I'm mouse, and I'm having (loop ileostomy) surgery this week.

It's exciting, because it'll give me more freedom after the healing process is up. It's scary because, well, it's surgery!

At the same time I'll be getting my anal sphincter muscle repaired. This was damaged, in the grand scheme of things, due to crohns disease, hence the need for an ileostomy.

I'm in my 20's, so this is my first actual major surgery I think, I've been under anesthetic a number of times but it was all for fairly simple procedures.

A bit scared would be putting it lightly, anyone have tips for quelling my pre-op nerves?

 


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VeganOstomy
(@veganostomy)
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Joined: 5 years ago
Posts: 1896
August 13, 2018 8:55 am  

Welcome, Mouse! 

Pre-surgery jitters are totally normal. I found that learning what I could helped to ease my fears and just getting my stuff in order (i.e. Making sure any upcoming bills are paid) also helped to keep me relaxed.

Are you already packed up for the hospital? Do you have anything to keep you comfortable while you're there? Music, books, etc.

Best of luck to you! Let us know how things go :) 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Bubbles
(@bubbles)
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Posts: 244
August 13, 2018 9:04 am  

Hi Mouse , 

Welcome . I prepared for surgery by looking at YouTube videos . Mainly Vegan Ostomy and The Front Butt YouTuber . Both are a great source of info . Make sure you leave the hospital with enough supplies . I was sent home with 1 changing . It took 2 weeks to get supplies in . So get stocked up with hospital. 


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john68
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Posts: 1093
August 13, 2018 9:08 am  

Hi Mouse, If any one said they weren't nervous some thing would be wrong, I was 24 when is had my ostomy and from my experience it won,t stop you doing any thing young folk like to do. Support is important no matter where is comes from and never be afraid to ask questions. I am in the UK as well and the NHS has some brilliant folk in it. All the very best and read this site/forum. Its very useful believe me. :-) 

ileostomy 31st August 1994 for Crohns


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Dona
 Dona
(@dona)
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Posts: 550
August 13, 2018 9:19 am  

Hello Mouse and welcome,

As others have said, its perfectly normal to be frightened of this. BUT know you will get through it to a healthier life. Everyone is scared.  My first thought as I came out of the anesthesia was 'HAPPY" like a shout in my mind. Done!.

And pretty soon, there will be that day when you are just going about your life and you forget you have an ostomy. It will happen.

Be well.

Onset of severe Ulcerative Colitus Oct.2012. Subtotal colectomy with illiostomy July 2015; Peristomal hernia repair ( Sugarbaker, mesh, laparoscopic) May 2017.


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mouse
(@mouse)
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Joined: 3 months ago
Posts: 3
August 13, 2018 10:17 am  

Thanks for the replies everyone!

I'm currently washing some clothes for the hospital stay, that's as far as I've prepared packing wise for the trip. I've written a list with the help of your guide of what to take to hospital, Eric! Thanks. :)

It's relieving to know it's normal to be a bit scared! I'm currently trying to fill the days up to surgery with positive distractions, it's hard to focus though. Just can't wait til it's done with really... :)

I already have a couple of visitors planned, and a rough schedule of what my stay will look like. I won't actually learn to change my bag til next week, after the surgery at the end of this week. So a weekend recovering and then the learning curve starts.

I'm trying to be optimistic, joking with my friends about my 'exorcism' bowel prep and so on, but I know anesthetic knocks my mood down big time in the days following an operation.

A bit of a ramble. :P


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Derek
(@derek)
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Joined: 4 months ago
Posts: 26
August 13, 2018 10:58 am  

Hi mouse.

Im originally from the uk but live in mexico now .

I just had my ostomy done two months ago.yes i was worried and all that goes with it.was supposed to take 3 days in hospital ,cost to me acceptable.turned out to be 10 days in hospital 5 times more expensive then i got sepsis,another 15 days interned and more expensive than the original op!!

The financial cost has changed my life much more than the ostomy.

Here there is no after care support,only tuition i got was from the surgeon who showed me how to put on and take off the appliances and how to clean the stoma and skin.

After that its a quick learning curve and i am still learning.erics videos helped tremendously and subsequent advice recieved here is invaluable but you will soon get into your own way of doing things and adapting to the situation.it is quite easy.

Good luck and dont fret ,prepare for your homecoming.

 


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Robert
(@njewell1)
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Posts: 657
August 13, 2018 11:07 am  

Hey Mouse like everybody is saying if you weren't nervous something would be wrong . One good part is when you wake up it will all be over but the healing and learning . Also like others are saying do your homework before so you will know more about what to expect afterwards . I wasn't as ready as I probably could have been so there were a few surprises afterward for me but its all part of the learning experience you will get it and you will do just fine . Oh ya I too have an Ileostomy . Also like they say support and being prepared is the key to everything . Anyway Mouse welcome to the group and Best of Luck with your surgery !

Subtotal colectomy and Proctectomy , Ileostomy , Ulcerative Colitis


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john68
(@john68)
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Posts: 1093
August 13, 2018 1:50 pm  

Hi Mouse, A point I meant to add to my post is getting a good spot on your tummy for the stoma. The surgeon will probably do this with you and what I mean by good spot is a site where the wafer will not be in a crease and the wafer will not sit over your belly button

ileostomy 31st August 1994 for Crohns


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sjlovestosing
(@sjlovestosing)
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Joined: 7 months ago
Posts: 105
August 15, 2018 7:47 am  

Hello Mouse and Welcome,

I recently had surgery and was scared as you are now. Eric is so right in saying to educate yourself as much as possible. Knowing what you are going into alleviates some of  your concerns.  This site is a gold mine of information and will be of great help to you as it has been to me. Also, the advice of all the other ostomates who wrote before me are invaluable.

After surgery and healing, it will continue to be a learning experience. I know that I am still researching and learning! Also, you will gain confidence as you find the routine that is best for you. Be patient with yourself and your healing - it does take a while before you'll be in that feel good place. 

Wishing you God's blessing and healing in all this.

Stella


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mouse
(@mouse)
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Posts: 3
August 15, 2018 8:49 am  

Thank you all! It means a lot to me to know there are so many supportive ostomates out there! :)


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