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glenn.giroir
(@glenn-giroir)
Joined: 6 years ago
Posts: 300
Topic starter  

Hello.  I was here a few years ago.  I'm just checking in again.  I had a proctocollectomy with a permanent ileostomy almost 5 1/2 years ago.  I've learned so much since then.  Life with an ostomy has been very good for me.  I'm fortunate that my ostomy performs almost perfectly.  The only food that gives me trouble are peanuts.  I can eat a few, but after that, it get a blockage right at the stoma.  No biggie.  Fortunately, cashews don't do this, and I love cashews. 

I've had my share of leaks and broken bags in inopportune times.  I've exploded bags at nighttime more than a few times, and I've even forgotten to close the outlet of my bags after emptying a few times.  I worry about smells in the bathroom like most of us, but have found that M9 drops are my savior.  I use very few products.  I'm a Hollister guy, and I use nonfiltered two-piece bags with only a flange.  I can get a week out of most bags if I take care of them.  I wear a hernia belt almost always (not at night) (5" belt from nu-hope), and a wrap from OstoMYsecrets.  This works great for me.  It holds everything in place and hides things perfectly.  All-in-all, my surgery has been a great success, and as with many of us, has saved my life (I was developing cancer in my colon) and has made my quality of life so much better than when ulcerative colitis was raging inside of me.  I still have peripheral symptoms like joint pains and skin issues, but way better than before surgery.  It's nice to be back at this forum.  I wish the very best for all of you. 

Glenn

       


Ulcerative Colitis (1995)
Permanent Ileostomy (2019)
Doing what it takes to enjoy life to its fullest.


   
LLNorth, LK, Tony H and 2 people reacted
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Tigerlily
(@tigerlily)
Joined: 5 years ago
Posts: 505
 

Nice to see you back here, Glenn. It’s been awhile. I’m sure your stories of leaks and exploding bags brought some rueful smiles to more than a few of us. The things we go through!! It sounds like you’re doing well, otherwise.

 

 Laurie 


Just a semicolon


   
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VeganOstomy
(@veganostomy)
Admin
Joined: 11 years ago
Posts: 4574
 

Glenn, welcome back! What an update!

Posted by: @glenn-giroir

I still have peripheral symptoms like joint pains and skin issues,

Yeah, my body pains have persisted well beyond my surgery. I can completely empathize.


Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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(@squeakyandliza)
Joined: 6 years ago
Posts: 1062
 

Hi Glenn. It is good to see you again!!


-Liza
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”


   
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bagbob
(@bagbob)
Joined: 4 years ago
Posts: 22
 

Glen. I'm happy to read your report. Stay healthy and active. ~BOB


ulcerative colitis since 2011
ileostomy 3-3-2021


   
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VeganOstomy
(@veganostomy)
Admin
Joined: 11 years ago
Posts: 4574
 

Hey @bagbob, I spotted the bike in your avatar! I'd be interested in hearing more about it, and how you find cycling with a stoma, if you want to create a new topic to discuss it  😊


Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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 LK
(@dlkfiretruck)
Joined: 8 years ago
Posts: 1662
 

Hey Glenn, it's good to hear from you again!  Its been a while but, so nice you checked in.  Don't be a stranger!!! 

I too am eternally grateful for my ileostomy, & over time I've had less leaks & skin issues.  Most of it is vitamin absorption problems to go with the SGS! 

What have you all been up to? 


Linda


   
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LLNorth
(@llholiday)
Joined: 7 years ago
Posts: 603
 

Hi Glenn,

I am happy to hear that you are doing well, and your picture looks like you are showing that pouch who’s the boss. My colostomy was just a little over 7 years ago, for colorectal cancer. I use a Hollister 2-piece also, and yes M9 drops are certainly life-changing! 

LL


Colostomy 4/30/18.
I love the smell of coffee in the morning. It smells like .... victory.


   
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