May 19th, 2017 – It’s World IBD Day again, and I’ve taken a lot of time to reflect on what it means to me.
It was a year ago today that my rectum was removed and my anus left to close up into a “Ken Doll Butt”, so I’ll be celebrating my ASSiversary today =)
Crohn’s disease often comes with a lot more than just an upset stomach, and having a pain in the ass (literally) is something I’ve had to face for many years. If you’re interested in reading about my history of perianal disease or the experience of having a proctectomy (the technical term for an ass removal), then I’ve written about it several times, and would like to direct you to those articles in this post.
IBD stands for Inflammatory Bowel Disease, yet a large percentage of us with IBD (estimated to be upwards of 40%) experience extraintestinal manifestations (symptoms outside of our gut). These symptoms can sometimes be as hard to deal with as the abdominal symptoms of IBD; for some, they’re even worse.
Since I frequent so many IBD forums, I often get to read about the experiences of newly diagnosed people, but one thing that struck me as odd was how many “veteran’s” with IBD had no idea that they could even have extraintestinal manifestations. Hopefully, this post will shed some light on the topic.