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mykirbyroo
@mykirbyroo
Topics: 1 / Replies: 81
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RE: Hello Newbie of 7 weeks Ostomy here...

Hi, Mary!!! And welcome!!!!! My colostomy (Rosebud) and I get along very well nowadays. In early November 2013, I was diagnosed with Stage 3-C Rect...

9 years ago
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RE: Scopes and Colonoscopies ,

Barbara and Eric --- I have learned from the two of you that there are easier preps -- so being as I'm supposed to have a colonoscopy through my colo...

9 years ago
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RE: Scopes and Colonoscopies ,

Hi, Dona!!! Lucky you!!! I often think that the prep for my colonoscopy is the worst part about having my colostomy. That stuff is just awful! I'm...

9 years ago
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RE: Scopes and Colonoscopies ,

Oddly, I don't mind the prep for my colonoscopies. I have been taught how to irrigate my colostomy, so I just put my long irrigation bag on my skin b...

9 years ago
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RE: Scopes and Colonoscopies ,

Dona, now, THAT made me laugh: 'regular or pumpkin spice'. We are bombarded by almost everything being offered in "pumpkin spice". I'll be glad whe...

9 years ago
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RE: Whats yours called

To irrigate a colostomy, you MUST MUST MUST first see your ostomy nurse and discuss it with him/her. You may not be a good candidate for irrigation, ...

9 years ago
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RE: Whats yours called

Yes, when Rosebud is very active during the evening, I put on my long irrigation bag, clamp it off at the bottom, tape it closed at the top and sleep ...

9 years ago
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RE: Whats yours called

I sleep the sleep of the dead and don't move hardly at all. I'm always wake up still on my right side, and Rosebud has never gotten squished and had ...

9 years ago
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RE: Whats yours called

Rosebud is on the left side of my midriff, so I sleep on my right side, kind of half-laying on my stomach/right side - and I don't often cover up, so ...

9 years ago
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RE: Whats yours called

Google "waterproof bed pads". You'll get several sources that come up. Some as inexpensive as $16. Others as high as you want to go, depending on s...

9 years ago
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RE: Whats yours called

Nebraska, here, Marcie. Originally from the East Coast. Was never told about raw veggies. I eat raw fruits - apples, oranges, plums, bananas, grape...

9 years ago
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RE: Whats yours called

Oh, forgot to tell you that I sleep on a waterproof pad - it's a twin-size pad, so I fold the long ends over so I'm the only one sleeping on it. Seve...

9 years ago
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RE: Whats yours called

Raw veggies block me up something awful -- and the pain? Oh, WOW! Hurts like the dickens. I throw up, don't sleep, and have a super miserable time ...

9 years ago
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RE: Irrigation

Hi again, Zvitusk! Saw your post about irrigation and thought I'd give you my experience with it. My colorectal surgeon told me that I would be a gr...

9 years ago
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RE: Whats yours called

My colostomy (aka Rosebud) came into being on April 1, 2014 as a result of Rectal Cancer. She is a feisty little thing, but she and I are learning to...

9 years ago
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RE: Tips to sleeping better with an ostomy

Am sorry I didn't see your review of OstoBuddy, Eric. Or I would have been using the app much, much sooner. Guess I'll have to visit VeganOstomy.ca ...

9 years ago
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RE: Whats yours called

Another classy name for a stoma! Wish I was as creative!!!!! LOVE IT!!!!

9 years ago
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RE: Whats yours called

Very elegant name for your stoma, John! I like it very much! Mine is Rosebud Poopybutt and she's a permanent colostomy. Her name fits her, too!!!!

9 years ago
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RE: Tips to sleeping better with an ostomy

Hi, Ilona!!!! I'm a colostomate and I haul my bottle of water EVERYWHERE I go!!! It's been to the doctor's, the hospital, the grocery store, the pet...

9 years ago
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RE: Tips to sleeping better with an ostomy

Thanks for the advice about OstoBuddy, Bago. I saw that app somewhere and meant to install it on my phone, but, of course, my lame brain forgot -- bu...

9 years ago
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