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Another Proctectomy Thread

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Tony H
(@tony-h)
Joined: 7 years ago
Posts: 294
Topic starter  

well the time has come for me to have a proctectomy ,(almost 90% decided ) , had the pre op assessment yesterday and  was told I should have a date in two or three weeks , if I go ahead I will be getting gall bladder removed at the same time , all will be done through keyhole (laparoscopic) surgery , no robot in my hospital , but surgeon has a great reputation ,

told to get as fit as possible and before surgery to take Nutricia Pre Op drink , never heard of this before ,

Anyway if I do go through with the surgery , hopefully it will be successful and my life will improve even more , 

as usual thanks for reading . 

 


   
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(@john68)
Joined: 7 years ago
Posts: 2048
 

Hi Tony, very best wishes to you. Sounds like you have done yer research. Take it easy ? 

ileostomy 31st August 1994 for Crohns


   
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VeganOstomy
(@veganostomy)
Admin
Joined: 10 years ago
Posts: 4255
 

Thanks or sharing, Tony. The advice to get as fit as possible is wonderful advice! Are you looking at any particular time frame to have it done (if you decide to)? 

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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(@squeakyandliza)
Joined: 5 years ago
Posts: 993
 
Posted by: @tony-h

told to get as fit as possible and before surgery to take Nutricia Pre Op drink , never heard of this before ,

 

Hi Tony,

I had a surgery in 2020 in a different hospital than my original surgery and most recent surgery. They had me drink a pre-surgery drink every day for, I think 2 weeks before surgery and told me to walk 30 min a day and cut out anything with added sugar for 3 weeks before surgery, and I did recover pretty quickly from that surgery. I don’t remember the name of the  pre-surgery drink but it was by nestle and I had to order it online. 

-Liza
Ileostomy 6/18/2018
“May your day be bright and your bag be light.”


   
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Tony H
(@tony-h)
Joined: 7 years ago
Posts: 294
Topic starter  

@veganostomy Hey Eric , they are talking about 3 or 4 weeks , so close enough , getting major doubts , will be getting gall bladder removed at the same time as there are some polyps there so thats a concern as well .


   
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VeganOstomy
(@veganostomy)
Admin
Joined: 10 years ago
Posts: 4255
 

@tony-h There may be a hidden benefit of removing the gall bladder, as it seems that people with IBD do have higher rates of stones, and there are some older studies that indicate people with ostomies (ileostomies) also have higher rates, so our risk factor is high already. 

Good luck with everything! 

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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LLNorth
(@llholiday)
Joined: 5 years ago
Posts: 543
 

I had my gall bladder removed a few years before my colostomy. It was life-changing, really; I could hardly believe how great I felt!

Colostomy 4/30/18.
I love the smell of coffee in the morning. It smells like .... victory.


   
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(@scgirl)
Joined: 2 years ago
Posts: 1
 

Hi Tony, 

I just had my colostomy &  protectomy on May 9th.  I did the pre surgical drink for 5 days before surgery (2x) a day. Also night before & AM (4 hours) drank an Ensure presurgical drink. 

I went home in 3 nights in hospital.  Recovery is going, but I am pushing myself.  

Good luck. 

 


   
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Tony H
(@tony-h)
Joined: 7 years ago
Posts: 294
Topic starter  
Posted by: @scgirl

Hi Tony, 

I just had my colostomy &  protectomy on May 9th.  I did the pre surgical drink for 5 days before surgery (2x) a day. Also night before & AM (4 hours) drank an Ensure presurgical drink. 

I went home in 3 nights in hospital.  Recovery is going, but I am pushing myself.  

Good luck. 

 

thanks scgirl , still waiting for a date for my op , our health service is still recovering from covid and being hacked by Russian hackers 


   
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cygo
 cygo
(@cygo)
Joined: 2 years ago
Posts: 93
 

Hi,

I had my surgery (ileostomy and proctectomy ) June 10 2022.

I followed my surgeons instructions to a tee, no deviations.

I had been training for three months prior. 

I was prescribed the pre surgical drink for 5 days before surgery (2x) a day. Also night before & AM (4 hours) drank an Ensure  pre surgical drink for 5 days before surgery (2x) a day. Also night before & AM (4 hours) drank an Ensure pre-surgical drink.  (Same as scgirl).

Friday AM surgery Tuesday AM release from hospital, I was able to walk and go up stairs.

I started walking the halls the first morning in hospital and this really helps.

Took home an inflatable waffle baffle mattress topper and seat pillow from hospital, these two items made all the difference for me. I still use the seat pillow while at computer.  

Could not drive for 3 weeks post surgery,  at the 3 week post surgery appointment my doctor gave me green light to do everything except lift heavy weights.

I started doing my training routine after the 3 week appointment with the exception of crunches, which I put off until I got my Ostomy Armor belt. ( I do not like crunches, lol)

It took until week 4 post op for the fatigue to go away enough to not want an afternoon nap.

This weekend will be 6 weeks post op and I am competing in field throwing events and other than having lost strength and distance during my down time I am confident my body is ready.

I am feeling pretty good now.

I am still careful with sitting but I can drive for 3-4 hours with normal leg stretch / bathroom stop.

I also am not jogging as it feels a little jarring on the butt incision, might be just mental but I am in no rush to start running as for now walking / hiking is working fine.  Thinking about getting my bike out and ready to ride, but again will use caution with that.

Hardest part has been to make sure I get the proper nutrients and hydration though I think I have that dialed in now. 

It will take time for full recovery but it does happen a bit at a time.  

Best of all to you.

 

cygo
Ileostomy


   
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GoatHerder
(@goatherder)
Joined: 3 years ago
Posts: 156
 

Congratulations! Sounds like you have everything well in hand.

Retired engineer, now goatherd
Ostomate since 2015: Mid transverse after cancer
Our goats always live at GoatsLive.com


   
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VeganOstomy
(@veganostomy)
Admin
Joined: 10 years ago
Posts: 4255
 
Posted by: @cygo

This weekend will be 6 weeks post op and I am competing in field throwing events and other than having lost strength and distance during my down time I am confident my body is ready.

How did it go?!! ?

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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cygo
 cygo
(@cygo)
Joined: 2 years ago
Posts: 93
 

@veganostomy 

Thanks for asking. :)

It went well, placed third in the Javelin and fourth in the shot put in my age group.

Both results qualify for next years Nationals (USA) which was my goal. 

 

cygo
Ileostomy


   
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VeganOstomy
(@veganostomy)
Admin
Joined: 10 years ago
Posts: 4255
 
Posted by: @cygo

@veganostomy 

Thanks for asking. :)

It went well, placed third in the Javelin and fourth in the shot put in my age group.

Both results qualify for next years Nationals (USA) which was my goal. 

Holy smokes! Congrats! 

Have you been an athlete your entire life?

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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cygo
 cygo
(@cygo)
Joined: 2 years ago
Posts: 93
 

Hi,

Thank you.

Not really,  I competed in high school sports and have kept active with outdoor activities most my life.

Last 15 years there have been a lot less activity (guess how old my kid is, lol).

I decided last winter to get back into shape and competing is a good way to keep motivated.

 

cygo
Ileostomy


   
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Tony H
(@tony-h)
Joined: 7 years ago
Posts: 294
Topic starter  

still waiting for a date for my op, will update when and if I get a date .


   
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(@john68)
Joined: 7 years ago
Posts: 2048
 

Hi Tony, Looks like the Health Service in R.O.I is as banked up as here in N.I. All the best in the meantime ?

ileostomy 31st August 1994 for Crohns


   
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Tony H
(@tony-h)
Joined: 7 years ago
Posts: 294
Topic starter  

@john68   , cant complain though , down through the years they have been outstanding for me , we are lucky to be living where in general , medical services are there when you really need them, and you dont need to be wealthy to access the best


   
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Tony H
(@tony-h)
Joined: 7 years ago
Posts: 294
Topic starter  

Well an update finally , got to meet my surgeon today and surgery is planned for either Wednesday or Wednesday week ,will know in the next few days , will keep updated when it goes through .


   
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Tigerlily
(@tigerlily)
Joined: 4 years ago
Posts: 369
 

@tony-h I’m sure you’ll be glad to have this behind you (no pun intended!). Sounds like it’s the right decision, especially given what John is now dealing with. All the best for your surgery and a quick recovery. Please keep us in the loop.

 

Laurie

Just a semicolon


   
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