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Belts and Wraps for Larger Pouch Sizes  

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Tony
 Tony
(@ileostony)
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May 5, 2019 8:46 am  

Hi all,

 

I've started using the Coloplast SenSura Mio Click # 18620 pouch with the #10502 barrier. It seems to me that most belts and wraps are made to accommodate smaller pouches than this 650 mL appliance. Does anyone have experience with larger pouches and specific belts or wraps that can be used without having to fold or scrunch up the pouch to fit in the pocket?

Tony
Crohn's diagnosed in 1995.
Spontaneous colon perforation and emergency end ileostomy surgery in 2018.
No colon - still rollin'!
No eyesight - life still bright!
Stomaversary - December 4th


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LK
 LK
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May 5, 2019 6:33 pm  

IleosTony... When you ask about wraps, do you mean the pouch covers? To wear over your pouch to hide its contents? 

Linda


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VeganOstomy
(@veganostomy)
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May 6, 2019 11:36 am  

Hi IleosTony, that's actually a great question!

I'm not aware of any "ready-to-buy" products that are designed to work with large bags like that, but some companies are quite accommodating and will custom make a belt/band for you. 

That said, have you been able to use the Coloplast Mio belt, which has four clips that attach to the baseplate? That should offer you some support right away. The item number for that belt is 00424 for the "XXL size" and 00423 for the standard size. 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Tony
 Tony
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May 7, 2019 1:48 pm  

I thought I had subscribed to this topic but hadn't and thus missed your reply until just now. Thanks for this. I'll see if I can get my hands on one of these.

Tony
Crohn's diagnosed in 1995.
Spontaneous colon perforation and emergency end ileostomy surgery in 2018.
No colon - still rollin'!
No eyesight - life still bright!
Stomaversary - December 4th


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Tony
 Tony
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May 9, 2019 1:12 pm  

Hi Linda @dlkfiretruck,

 

Either one would do. I'm looking for something I can wear when I'm out and about so I can wear the pouch horizontally and tuck in my shirt and for when I sleep, as I sleep on my left side, so the output will have mmore room to flow down via gravity.

Tony
Crohn's diagnosed in 1995.
Spontaneous colon perforation and emergency end ileostomy surgery in 2018.
No colon - still rollin'!
No eyesight - life still bright!
Stomaversary - December 4th


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john68
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Posts: 1398
May 9, 2019 1:22 pm  

Hi Tony, Sounds like the Stealth Belt would be worth looking at. From what I have read they tailor to each individual 

ileostomy 31st August 1994 for Crohns


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Tony
 Tony
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May 10, 2019 7:10 am  

I so would love to get my hands on a Stealth Belt product. They're just too pricy for me at this point, and I have more pressing financial obligations. I'll probably end up with something less expensive. I'll report back on what it is once I figure it out.

Tony
Crohn's diagnosed in 1995.
Spontaneous colon perforation and emergency end ileostomy surgery in 2018.
No colon - still rollin'!
No eyesight - life still bright!
Stomaversary - December 4th


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LK
 LK
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Posts: 668
May 10, 2019 4:16 pm  

Hey Tony...Would you consider going to the local clothing store, womens department and looking for one of those spaghetti strap or wider strap tops that are very elastic and some even stay up by themselves because of the amount of elastic. When I was growing up we called them tube tops. You could buy a larger size that might fit you, take the straps off and fold it in half thru the circumference, have it stitched together to make the tube like support you may be looking for.  Then make a hole/slit, where you would slip your pouch into so you have the support above and below the pouch to form a band. Last summer, I wore a  tight top like that while I was canning pickled carrots. I liked the support it gave and I did not tire as easily because of it. I use to do stretch and sew and I think this would be possible. What do you think?  You could take it to someone who does alterations and see what they can come up with . They would know how to make the hole/slit and sew it to keep the material from fraying. Check with a dry cleaners or a high school sewing teacher even. They may need to see a picture... What do you think? 

Linda


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Tony
 Tony
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May 10, 2019 4:19 pm  

Hi LInda,

 

That's a pretty clever solution and one I will be considering. Thank you for the very outside-the-box suggestion.

Tony
Crohn's diagnosed in 1995.
Spontaneous colon perforation and emergency end ileostomy surgery in 2018.
No colon - still rollin'!
No eyesight - life still bright!
Stomaversary - December 4th


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LK
 LK
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Posts: 668
May 10, 2019 4:22 pm  

Wow, that was fast. I was editing an error when you responded, then I saw your comment. It was just something I thought about at about 3 a.m.  Glad you like it. If I new what my health was up to, I would say PM me and I could do it for you thru the mail. No charge of course. Anything for osties!

Linda


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Tony
 Tony
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May 10, 2019 4:25 pm  

That's sweet. I would, of course, have to insist on remuneration. Bless your heart.

Tony
Crohn's diagnosed in 1995.
Spontaneous colon perforation and emergency end ileostomy surgery in 2018.
No colon - still rollin'!
No eyesight - life still bright!
Stomaversary - December 4th


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Marcie
(@shulmjs)
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Posts: 1510
May 10, 2019 4:26 pm  

Any store that carry's auto devices etc. U can find a support that slips on the seat belt.  

 

Linda, sorry your in the hospital again.  (I just got out myself) Not a great place indeed !!  Get those tests done now-- (as I did) so, u don't have to go through this all again.  Spring is near to come and hopefully, you will be up and about to enjoy it. M.

2014 - 3 strangulations of colon, Ulcerative colitis, removal of colon, illiostomcy named woooh Nellie..


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LK
 LK
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May 10, 2019 4:41 pm  

Postage maybe, you would have to send the top, or tops to have a few, if this works but I can't see it not being a good second. Think of the choice of colors, turquoise, pink, purples white....Lol. Also, depending on your circumference, and the elasticity of the top, if you can not find one to go around your waist, two could do the job and be stitched together. I would be bold enough to take one or to sizes into the change room and give it  try on and see how it is, if it works, take it home and wash it to see if they shrink and go from there. This is not a hard project and does not have to be totally perfect for a new sewer. Would you need a place to open near the top of the band to peek in once and a while and adjust things? I am sure Eric has a video on the stealth belt, I will have a look. If you have sewer, and they need help, I could help thru some pms also. We could go rainbow!

Linda


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Tony
 Tony
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May 10, 2019 4:50 pm  

Haha, yeah, pink. Just tell me it's blue and I'll never know.

Tony
Crohn's diagnosed in 1995.
Spontaneous colon perforation and emergency end ileostomy surgery in 2018.
No colon - still rollin'!
No eyesight - life still bright!
Stomaversary - December 4th


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LK
 LK
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Posts: 668
May 10, 2019 5:15 pm  

Tony, I just wtched Erics video. I do not remember seeing this product before, but what I am talking about is along the same lines. Stretch and sew material can be purchased at most material stores, here, we have fabicland. The material used here is much thinner and some have designs on it. I would do it double, so you have the tube formed, like a deflated tire, and then yes, I saw they do have a top opening for the adjusting and checking on the pouch but they use a single layer of material. A bit of small velcro would close that up, and the way I suggest would be ideal to lay your pouch sideways. Certainly not impossible. Material purchased  would give you a better choice of colors and most likely patterns if you wish. Ouch, the cost of one specially made! This can be easily done if your not looking for brand name products. You would certainly want the room to prevent as Eric pointed out pancaking, so measurements would be very important.  For sure, preshrink all material, even a pre-made tops.  If you are a church goer at all, maybe check with some women there and see who sews and who could help. Other wise, if you have no one who sews, pm me if you want. If I remember right, unusual for me right now, your married, so your wife can help with measurements also.  

Linda

Linda


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LK
 LK
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May 12, 2019 2:15 pm  

Hey Tony...My son was just upstairs here and he suggested that in the mean time if you need something to get you thru to purchase the widest tensor bandage you can find and give that a wrap around your waistline. I know they come as wide as 6 inches for sure, not sure if they make them wider. But, if you like the feel and elasticity of the tensor, they too could be sewn together to work for this project. I would be interested to know which avenue you take here and how it works for you. I hope you can find something to do the job.  Good luck with this.

Linda


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