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Dialysis with an ileostomy, DOUBLE WAMMIE.  

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Rolf
 Rolf
(@rolf)
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October 22, 2018 4:48 pm  

As a newbie caregiver,  I'm facing 2 issues.   That's,  I'm new to both these world's.   I'd like to know if others here might be in the same boat.  The dialysis procedure is 3+hours,  not counting getting getting ready, getting there and back.   I try to time everything from his eating on those days,  to checking and really checking EVERYTHING,  to avoid problems.   Does anyone have any tips or tricks they'd like to share?   Any insight would be great on how others manage this.   On his dialysis days, the stress of thinking the worse could happen is driving us both insane 😨

Rolf Hogfeldt


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john68
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October 22, 2018 6:05 pm  

Hi Rolf, in your other post you mentioned about using tape on the outer part of the wafer as extra protection. A good ostomy seal starts with the stoma and works out ward. So many leaks mean their is a problem which you have not sourced yet. Their are any number of reasons for a leak. Over use of products, wafer cut too large, dip or hollow that needs filled. Have a look at the blog on Leaks to see the possible causes done by Eric. Can you give some details on product used and what you do. This will give a good idea to members what the possible causes may be. This can be sorted. :-) 

ileostomy 31st August 1994 for Crohns


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VeganOstomy
(@veganostomy)
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October 22, 2018 9:06 pm  
Posted by: Rolf

The dialysis procedure is 3+hours,  not counting getting getting ready, getting there and back.   I try to time everything from his eating on those days,  to checking and really checking EVERYTHING,  to avoid problems.   Does anyone have any tips or tricks they'd like to share?   Any insight would be great on how others manage this.   On his dialysis days, the stress of thinking the worse could happen is driving us both insane 😨

Hey Rolf,

It sounds like too much time would pass before his ostomy bag fills, correct?

A few options to consider:

- There are OTC and medications that will slow the bowel down temporarily. This needs to be taken under a doctor's advice, but it may offer some short-term relief during the dialysis. 

- There are high-volume ostomy bags that should be able to hold a considerable amount of output, which can give this person time for the dialysis without needing to worry about the bag filling. The nice thing about these high-volume bags is that on a two-piece appliance you can simply snap the larger bag on and then replace it with a more standard size bag when they are done. 

I've written about one of these such bags made by Coloplast, but most brands will have their own version:  https://www.veganostomy.ca/sensura-mio-high-output/

 

Just your friendly neighborhood ostomate.

~ Crohn's Disease ¦ Ileostomy ~


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Rolf
 Rolf
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October 22, 2018 9:31 pm  

Thanks John 68.   I really haven't tried a lot of products yet.   I believe some of it is me and my confidence level.   I was also told to maybe lay off of some of the barrier prep and stoma powder.   Don't mean to bore you with this, sorry.   Some of the staple scars are in the way when applying the wafer and he is "barrel chested".  Also because the operation is so new, some hair is growing back.  I'll have to get up the nerve to shave around the stoma area but with the blood thinners he's on, a small cut could be a big deal.  I could use an electric shaver?   I'm actually overwhelmed.   Thanks. 

Rolf Hogfeldt


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Rolf
 Rolf
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October 22, 2018 11:43 pm  

Eric, thanks.   I watched the video and will check with Hollister and my supplier to see if they have a larger size bags.   I'm also going to look into some of the gelling products to 👍

Rolf Hogfeldt


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