Caregivers (Ostomy) - Welcome to the VeganOstomy Community Forums!

Dialysis with an ileostomy, DOUBLE WAMMIE.

Rolf — Mon, 22 Oct 2018 20:48:29 +0000

As a newbie caregiver, I'm facing 2 issues. That's, I'm new to both these world's. I'd like to know if others here might be in the same boat. The dialysis procedure is 3+hours, not counting getting getting ready, getting there and back. I try to time everything from his eating on those days, to checking and really checking EVERYTHING, to avoid problems. Does anyone have any tips or tricks they'd like to share? Any insight would be great on how others manage this. On his dialysis days, the stress of thinking the worse could happen is driving us both insane 😨

Alzheimer's ostomy care

Crabernacle — Mon, 03 Sep 2018 13:57:02 +0000

Hi everyone. I'm new here and have a pretty urgent question.

My mother has Alzheimer's and recently became an ileostomate. While in the hospital and in rehabilitation she keeps picking at or tearing her bag off.

My question is, does anyone know of any products that I could securely put around the bag so she couldn't pick at it or remove it? Or just anything that could help with that? I will be emptying and changing it for her. Thanks in advance.

Best Support

BluChip — Sat, 07 Oct 2017 18:32:04 +0000

My daughter just had a proctocolectomy. She received little instruction on ostomy care at the hospital. The stoma and ostomy instructions were very rushed. Plus, there is nothing for family members whose loved one just had this surgery. How do we help our daughter in her adjustment to this new way of life? BluChip

Urostomy support (uk)

ShropshireLady — Sun, 23 Apr 2017 13:17:21 +0000

I'm my husbands carer, he came by his urostomy due to bladder cancer. We have found the Fight Bladder Cancer support group very helpful to us as we went through treatment and looked for advice regarding post-op issues. They are a UK based charity who raise awareness of this condition, and are involved in research towards alternatives to BCG treatment. Please have a little look if you need the latest advice on treatment options.

P.S, I've signposted this forum there too.

http://fightbladdercancer.co.uk/

https://m.facebook.com/groups/124453424252307