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Hey from Texas

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BigMike322
(@bigmike322)
Joined: 9 months ago
Posts: 90
Topic starter  

Hey guys, I'm a recent re-ostomate.  I had a loop ileostomy and reversal to a j pouch in the Spring of 2022. Unfortunately the j pouch died and turned necrotic.  Thankfully I was already in the hospital for liver issues when it happened (surgery on September 12, 2023).  I currently rock a holister 2 piece with a stealth belt.  I prefer the horizontal but I also have a vertical and use it when my output is thinner.  That's the short short version of my story.   


   
GoatHerder, LLNorth, LK and 2 people reacted
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(@john68)
Joined: 7 years ago
Posts: 2048
 

Hi Mike, Welcome to the forum. Sounds like you’re doing great 

ileostomy 31st August 1994 for Crohns


   
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BigMike322
(@bigmike322)
Joined: 9 months ago
Posts: 90
Topic starter  

@john68 Thanks.  I had some minor hiccups but things seem to be getting back on track.


   
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VeganOstomy
(@veganostomy)
Admin
Joined: 10 years ago
Posts: 4255
 

Hey @bigmike322. Welcome back. I'm sorry to hear that it's under unexpected circumstances, but it sounds like you have things sorted out now.

I've been wearing my vertical StealthBelt quite often, but only because I don't usually wear formal (tucked in) shirts, which is where I found the horizontal belt to be ideal.

Just your friendly neighborhood ostomate.
~ Crohn's Disease ¦ Ileostomy ~


   
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BigMike322
(@bigmike322)
Joined: 9 months ago
Posts: 90
Topic starter  

@veganostomy I agree 100%.  Vertical does not go well with a tucked in Polo which is what I wear at work.


   
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Kirsten
(@kirsten)
Joined: 10 months ago
Posts: 56
 

Hi Mike! Nice to meet you ????

I'm currently rocking the Hollister craptastic elastic belt ???? and I need to graduate to a stealth or something... Lol!


   
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BigMike322
(@bigmike322)
Joined: 9 months ago
Posts: 90
Topic starter  

@kirsten likewise.  

Do it.  I like my stealth belts.  There's is another one called gutted but I haven't tried it. Found it via Instagram.  


   
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 LK
(@dlkfiretruck)
Joined: 7 years ago
Posts: 1496
 

Welcome Texas from British Columbia,  Canada! I've not worn a stealth belt, but I do have a different question I'll post elsewhere. 

I too had a J-Pouch & I'm glad things are going well in your second time around! Don't be a stranger! Your experiences could well help another ostomate here. 

Linda

Linda


   
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BigMike322
(@bigmike322)
Joined: 9 months ago
Posts: 90
Topic starter  

Just had to dona bag change at work.  On thr bright side, I am getting quicker and more proficent ar it.  Last 2 bags lasted approximately 2 days each, the time  before that approximately75 hours, one before thst a little over 5 days (123 hours).  This one I can chalk up to a bad experiment I only used the convex barrier ring instead of the regular with the convex on top of it.  

I was wondering about close should you cut the barrier hole.  My stoma tends to move in and out a lot.  I know too tight is bad because when the stoma goes back in ai get stool under the wafer.

I've been trying to cut it around 30 lately.  It was 32 previously.  Today I did 32 because it is premarked on the hollister wafers.  I had precut this one a while back and I could tell it was way too small so I cut it to 32. 

2 changes ago I did approximately 30 with my regular setup except I but a small amount of holister paste on the right side of my stoma. (That's where the stool eventually goes)

Any comments or suggestions are definitely welcome.  I've been wearing my mostly vertically with a stealth belt (except for a few hours or so on Sunday it was horizontal)


   
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(@john68)
Joined: 7 years ago
Posts: 2048
 

Hi Mike, On the question of how close to cut the wafer - allow 2mm gap between the wafer edge and the stoma. For barrier rings they can be fitted to the edge of the stoma 

ileostomy 31st August 1994 for Crohns


   
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BigMike322
(@bigmike322)
Joined: 9 months ago
Posts: 90
Topic starter  

@john68 Thank you.  I thought the 32 was too big but it may be right or closer than I thought to right.  My stoma is fatter at the bottom and it likes to go in and out a lot.


   
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BigMike322
(@bigmike322)
Joined: 9 months ago
Posts: 90
Topic starter  

Well made it just shy of 6 days before I got the itch, so I'm very happy with this most recent evolution.  Hopefully this is a sign of things to come.  


   
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Kirsten
(@kirsten)
Joined: 10 months ago
Posts: 56
 

That's pretty great Mike! 


   
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