In the meantime my wife has heard of all the new and exciting treatments in the USA - things have come a long way as none of the medications except Remicade were familiar to me. I couldn't get that one anyway because I had been stable for too long and wasn't a candidate for that super expensive infusion treatment.

Anyway, I wanted to ask this group if anyone that had Crohn's and got an ileostomy ever had to go back on newer medications. My GI doc said that I should come back if I had symptoms, but so far other than skin irritation I don't seem to have any bowel issues.

I may just get another ileoscopy just to confirm things, but I think that once you have been under the knife things will never be the same regardless of the science that has been discovered since the 1970s!

Thanks in advance

Dan

I know a few discussions and experiences have come up with using Hyperbaric oxygen therapy, and I wanted to share a link to a good source of information about the treatment. 

I'm pretty uninformed about the treatment, so I'll leave this one to the experts :) 

Mayo Clinic: Hyperbaric Oxygen Therapy

Because there are risks associated with the treatment (including fire), it's important to make sure that you are getting it done in a reputable place. 

I was just cleaning up my email and read a standard follow up email from my Humira Ambassador. It talked about possible side effects and basal cell skin cancer was one of the risks. That is what I had removed last week from my face. 

Has anyone else using Humira, or other biologic, experienced any of the possible side effects? 

I just came across this on Twitter a short while ago. Somehow I don't think Eric would plug himself like this, so I thought I would go ahead and do it for him. It's an episode of the About IBD podcast on which he is a guest and discusses his experience with alternative treatments for Crohn’s.Listen and enjoy.

When I was in the Emergency Room last night, the doctor gave me three prescriptions I have never used, and thought I would see if any of you have experience with these drugs??

1. Methylprednisolone (prednisone) This is a steroid

2. Dicyclomine: The doctor described this as like a muscle relaxant specifically for the bowels and said it will help with the pain

3. Ondansetron: This is an anti-nausea drug

Thanks in advance for any experiences you can share with me about these drugs.

It's a disgusting horrible way to prevent a more digusting and horrible problem of sepsis and other diseases.  If they ever invent a better way, I am sure that it would be introduced into the protocols.  Until then. ...

The danger of the NG tube lies in its placement in the stomach. If it is misplaced,  it can cause an ulcer or even worse, a perforation.  Something to worry about. 

If the emergency room doctors  ( or nurses) say that you need it, then you need it. Go through the insertion process discomfort even though it is unpleasant,  to say the least. 

I actually came across this medication when I was at the Advances in Inflammatory Bowel Disease (AIBD) conference in Orlando last year, but I had no knowledge of it at all.

It's designed to "enhance the absorptive capacity" in people who have short bowel syndrome, but can also include people who've had their bowel resected due to Crohn's Disease, trauma, strangulated hernia, and others.

I really don't know much else about the drug at this time, but it may be worth looking at if you suffer from nutrient absoption issues or rely on parenteral support.

If you've been on it, I'd love to hear your experiences! 

More info can be found at https://www.gattex.com/

Who, with what, where, when and how. 

What does it accomplish?  What are the limitations?

Any literature on the subject? 

HELP?