Community Forums

Notifications
Clear all

Granulomas?  

  RSS

glenn.giroir
(@glenn-giroir)
Registered
Joined: 5 months ago
Posts: 135
February 15, 2020 8:05 pm  

Hi Everyone.  Since the swelling has gone down in my stoma, I've been noticing bumps, mostly at the junction with my skin, but some on the stoma.  I just assumed that this was the normal appearance of a stoma since I am new at this.  But, I've googled it and I think that I may have granulomas.  I have no discomfort and they are not interfering with my appliance.  I've had no leaks in my 10 weeks as an ostomate, just one blowout at night due to gas buildup.    I know that this is really a question for an ostomy nurse, but I do have a deductible on my insurance, and if it is nothing I'd hate to deal with the expense of a visit.  Anyone have any experience with granulomas? 

Thanks for listening,

Glenn

       


LK liked
Quote
SqueakyandLiza
(@squeakyandliza)
Registered
Joined: 1 year ago
Posts: 505
February 15, 2020 11:08 pm  

Hi Glenn,

I have had a lot of granulomas, both on my stoma and like you, on the edge of skin by the stoma. My ostomy nurse has “burned them off” by using a stick, like a long matchstick with silver nitrate on the tip. Even though the stoma has no feeling, she always squirts it with some liquid lidocaine to numb it a bit. It is a super quick easy process. There will be a bit of black coloration for a day or two in the spots she touched with the silver nitrate. I would imagine it should be included with your ostomy appt, from an insurance standpoint. At least with mine it is. 

Good question. I hope this helped. 😀


LK and glenn.giroir liked
ReplyQuote
john68
(@john68)
Registered
Joined: 3 years ago
Posts: 1535
February 16, 2020 3:41 am  

Hi Glenn, I was bothered with them a while back, Although they may not be a bother now I would get them looked at. Make sure that now the stoma is shrinking that you are getting a good fit. These little gems like nothing better than some of yer output to thrive on. I remember you saying that your stoma has a good spout so make sure that under it the wafer is not leaving skin exposed. Convatec make a paste which can be a help call Ora base. It’s pretty much like what is put on mouth ulcers. Silver nitrate can be used to burn of as Liza said. The ones at the edge can get sore so don’t ignore.


glenn.giroir, LK, VeganOstomy and 1 people liked
ReplyQuote
dieffenk
(@dieffenk)
Registered
Joined: 6 months ago
Posts: 28
February 24, 2020 11:24 pm  

Hi glenn, I had surgery on October of 2019. I developed granulomas and I got a prescription for the silver nitrate sticks. They are better , it seems to take quite a while to get rid of them altogether. Have you been seeing improvement with yours?


glenn.giroir and LK liked
ReplyQuote
john68
(@john68)
Registered
Joined: 3 years ago
Posts: 1535
February 25, 2020 2:25 am  

Yes outside having the granulomas removed the silver nitrate is the most effective. Just a word of caution! That it should be used with care. 


ReplyQuote
glenn.giroir
(@glenn-giroir)
Registered
Joined: 5 months ago
Posts: 135
February 25, 2020 9:28 pm  

@dieffenk

Hi Kevin.  I need to see my stoma nurse, since I don't really know what normal looks like at this point.  I have no pain, but have a few red bumps on the stoma itself.  Then where the stoma meets my skin, it is pretty lumpy.  I think it is where the stitches were.  No problems with leaks or pain, and things seem to not be getting worse. My surgery was Dec 09.  So, I'm still seeing my stoma change a bit.  This is all so new to me...

 


ReplyQuote
dieffenk
(@dieffenk)
Registered
Joined: 6 months ago
Posts: 28
February 26, 2020 6:00 pm  

@glenn-giroir

hi glenn, all new to me as well. I too have a couple of bumps right on the stoma, the doctor thought it might be a couple of lesions from my still active crohn's. They bleed a little too, but he wasn't concerned about them, and just keep a eye on them.

Ya this is quite the process isn't it? I have had quite a few surgeries, but this has been the hardest to adjust to, physically and mentally. But everyone says it will get better, but it does take quite awhile.

 


ReplyQuote
glenn.giroir
(@glenn-giroir)
Registered
Joined: 5 months ago
Posts: 135
March 6, 2020 12:31 am  

Update.  My stoma nurse says that I do have granuloma tissue where my sutures were.  No need to worry at this point as long as I'm getting a good seal.  If I have problems, we'll talk about removal. This was the first time I've seen her since all of the swelling from surgery has gone away.  Her other comments were, "your skin looks great, stoma is healthy, and you really do have an outie!"  I've suspected that.  It's about 2.5 cm (maybe a bit more) above the surface of the skin. Gives me a good spout that kinds of points down in the bag as it relaxes.  


ReplyQuote
dieffenk
(@dieffenk)
Registered
Joined: 6 months ago
Posts: 28
March 8, 2020 11:59 pm  

@glenn-giro

HI glenn, that is good news. I'm glad you are seeing a nurse, it helps to have some support. I am seeing mine this week. It is getting a bit better, and it does take quite awhile,but hang in there, I have seen some darkest hours, and I believe this experience is handled in so many different ways. By different personalities. My wife and I just did a long weekend for the first since surgery in October, and we did well. So I believe you will have a similar time with this. Kevin

 


ReplyQuote