General Ostomy - Welcome to the VeganOstomy Community Forums!

Toilet paper

Chelly — Sat, 25 Apr 2026 21:44:42 +0000

I never really realized how much toilet paper us with ostomy's go through. I used to be at work for twelve hours a night, so I never paid much attention as I'd be using the toilet paper at work at night time.

Now that i'm retired, i'm spending way too much money on toilet paper. I can go through a 12 pack and and a half in 1 week. And sometimes more. It seems like I never stopped going.

there was always something in the pouch. Even though I rinse and get everything cleaned out as soon as I do it starts going again. I guess they have told me its high output ostomy. It's ridiculous.I feel like i'm spending all my money on toilet paper. I do rinse, but I have this thick output, and so I have to keep rinsing and use more toilet paper. Anyone else feel this way?

I've already gone through five rolls in two days. It's getting very bothersome expensive.

Phantom Stoma

Chelly — Sun, 19 Apr 2026 13:05:00 +0000

So as you most of you know, I had my stoma relocated to the other side. When I've been noticing is from time to time, it feels like I'm going on the other side. Like it feels like that stoma is still there and that its still having output and can feel it coming out. But that's impossible because they took that stone a down. I guess they would call it a phantom stoma.It's very strange though.

Rinsing

Chelly — Wed, 31 Dec 2025 21:56:40 +0000

How many here rinse with water at every empty? Reason I ask is im wondering how many have issues with things breaking down too fast by doing that.

Seems my rings melt quickly.

Hollister making improvement

Chelly — Fri, 19 Dec 2025 13:23:14 +0000

Hello,

I learned from my rep at my DME that Hollister is currently making changes to all of their products in which will take up into the next year to finish. She did not have info on what changes but I know a whole lot of you here wear Hollister. I use the rings. I was wondering if any of you have heard any news about this?.I'd be interested to know.

Twistomy

Chelly — Sun, 26 Oct 2025 00:02:06 +0000

While searching new products and devices I ran into something called twistomy online. It is an investigational device and it's has something thats inserted into the stoma and then has washers like that you twist into. It works with a mio convex base plate. It has a cap so no need to wear a bag. When you empty ypu place a mio bag onto it and twist open and out put goes into the bag and you throw the bag out.

Has anyone heard of this or have experience with this new contraption?

Soap

Chelly — Tue, 19 Aug 2025 10:59:50 +0000

I know I've asked this question before but they keep making changes to our soaps.

Has anyone found a good soap to use to clean the ostomy area? They tell us no oils or moisturizer or fragrance should be in the soaps in order to get a good seal.

I used to be able to use ivory but they are now lifting oil in it as part of their fragrance. Dial white has also kicked up fragrance and moisturizer. Plain water doesn't cut it.

Too scared to try

Amy — Mon, 16 Jun 2025 22:24:16 +0000

What are the things you have been too scared to do since having an ostomy?

Sometimes I think I am nervous for good reasons and other times I think I am overly cautious. Wondering if posing this question and maybe seeing other people respond to say "I tried that and here's how it went" would be inspiring?

I'll go first. I've been to scared to try running, eating salads, lifting up children, and going to amusement parks (i.e., rollercoasters).

Looking for young ostomates

Amy — Fri, 25 Apr 2025 01:47:48 +0000

Hi all! I'm 27 and looking for other young ostomates. I'm in the United States, Georgia to be specific. Looking for both local and virtual connections with others in the young-adult stage. I have a great local support group except everyone is over 50 and relatively inactive. And when I go through members on other sites who are local to me, I don't find anyone in my age group. Anyone have tips on meeting younger fellow ostomates?! Other websites or groups? Right now looking for friends and community, not necessarily a partner. Thanks!

Fourth hospitalization since December

Chelly — Sun, 23 Mar 2025 21:50:54 +0000

Hello all, it's been really frustrating . I've been hospitalized 4 times since December . Twice with bowel obstructions that had transition points and last 2 were ileus.

I'm really getting frustrated. The last hospitalization, they really dug trying to find answers . I'm malnutrition and acidy. They have really checked a whole lot of things but still.no clear cut answer. They do see a hernia in the left lower quadrant which is next to my stoma. I can visibly see that as well. I have a big piece of mesh across my abdomen and that will have to be cut through. I'm really scared about all of this. I hope my body can handle this surgery . I have faith in my surgeon that he will do his best but it's still all so scarey.

I saw my surgeon and we are going to open me up for sure. Have to set the date tomorrow. Hopefully it will give some answers to this uncomfortable and frustrating problem.

Help on double barrel stoma midway small intestine

DutchOzzie — Fri, 21 Mar 2025 09:46:23 +0000

Hello friendly Ostomy Community,

I’ve been happily living with an ileostomy since late 2019. As of 3 weeks ago my father in law ended up with a double-barrel stoma. He suffered from serious constipation, leading to necrosis in the small intestine and now an ileostomy about 3 meter (10 ft) into the small intestine. He is in a regional hospital with limited experience in stoma aftercare.

With my ileostomy I can eat/drink pretty much everything and have no issue with nutrient absorption. I would love to hear from other ostomates that have an ileostomy about halfway into the small intestine and in particular whether you require different food and/or additional supplements.

The plan for him is to regain strength and either re-connect everything or create a colestomy. My concern is that without supplements he may not regain enough strength for the next surgery.

Appreciate any experience or insight.