General IBD - Welcome to the VeganOstomy Community Forums!

Peristeen Anal Plug

Rainy12 — Sun, 10 Aug 2025 21:04:50 +0000

Hi , asking for my friend who is pre ostomy .Coloplast stopped making the Peristeen Anal Plug .It helped people who were incontinent .The replacement for it is not something that my friend gets on with, she is desperate to try and track down people that may have any old stock they no longer use or want .Thank you so much for anyone willing to look or help , postage will be paid if anyone has some or locates them .

Fecal implants

Tigerlily — Sat, 31 May 2025 13:49:16 +0000

I am seeing a lot in the media lately about fecal implants and how this may be beneficial for many issues like Crohns, Colitis, Short Bowel Syndrome. Here’s an article that popped up this morning:

https://www.cbc.ca/news/health/fecal-transplants-1.7547096

Wouldn’t it be fantastic if we could be helped by this? We are so lucky to live in this time of medical scientific discovery.

Laurie

Mucus Mucus Mucus!

AlexanderUK — Thu, 04 Jul 2024 15:38:55 +0000

Hi Everyone!

I seem to be cursed. I've had to have a third surgery on my stoma (my hernia slammed over my stoma opening and would not release it) and as my intestines got so dialiated they had to do an emergency job to shave down the hernia to get it out of the way. Luckily the stoma wasn't affected but unluckily they could not fit a mesh because of the awkward position and because of my other medical issues (making a high risk of failure / rejection). So They've used surgical thread to graft my guts out of the way of my stoma and bolt them to my skin. Thankfully that seems to have solved things for the moment but now I have another issue.

Things were going well for a full month. I've been able to eat normal food without side-effects. Stoma is working as expected. But now out of no-where I've been purging a tonne of rectal mucas. It's not like I'd mind if it was an occasional thing that happened... but this is every time I eat (RIGHT after), and all through the day and night. I'm getting maybe 3-5+ cups of the stuff in 24 hours along with cramps so extreme it leaves me winded.

Saw my GP and she put me on antibiotics (thinking that it might be an infection as the guts might be inflamed catching something nasty) but no dice. Any thoughts? I've not been diagnosed with IBS, Crohns, UC, or any condition like it - and I've previously been tested for the full spectrum of those (and more).

Cause of Crohns and Colitis

Tigerlily — Thu, 06 Jun 2024 13:44:44 +0000

Hey I just found this interesting article about a probable cause of Crohns and Colitis. It seems that it may be linked to a DNA defect.

https://www.bbc.com/news/articles/c1wwdd6v2wjo

It would be interesting to read the original study.

Laurie

Dietary yeast and Crohn's Disease

VeganOstomy — Fri, 10 May 2024 17:05:05 +0000

I'm not sure what rabbit hole I ended up in before finding these videos, since I've been watching the channel for years and love Dr. Greger's books, but this may be of relevance to anyone with Crohn's disease.

https://youtu.be/sB4Mmy7AZvI

https://youtu.be/x_ZZqRnjyXU

After watching those videos, I went back to look at my food diaries. Much to my surprise, the “worst year of my life” was filled with many meals, often daily, containing nutritional yeast.

Now, I do consume the stuff these days, and haven't noticed any issues, but I'm going to be more mindful about it.

Know your sh:t 📺 tv program

john68 — Tue, 07 Feb 2023 21:05:16 +0000

Hi Folks, I have been watching a programme with the above title. It’s basically all about healthy and not so healthy gut problems. It’s amazing what percentage of the population suffers from problems. In fact it said 1 in 350 people have a stoma half of those temporary but that’s still incredible to believe. Now that’s in the UK but am certain its similar all over. Also it had a Young girl featured who was living with crohns. The future with a bag terrified her (understandably) she was introduced to another girl her age. Both are 23 and the it was a real relief for the girl facing surgery to see and ask the questions she had. Shows how support and example can be so important. It’s a channel 4 program here in the UK. Definitely worth the watch if you can get it 👍

Living with Crohn’s Disease / Ulcerative Colitis || #GetYourBellyOut’s Mini Documentary

VeganOstomy — Mon, 30 May 2022 14:07:20 +0000

My friend is the founder of the #GetYourBellyOut organization, and I thought I'd share this wonderful mini-documentary about their benefits to the IBD community :)

https://vimeo.com/711391083

VIDEO: COVID-19 and IBD: Updates and Vaccines

VeganOstomy — Tue, 08 Feb 2022 21:35:37 +0000

Crohn's and Colitis Canada has just put out a great presentation about IBD and COVID-19. Well worth the watch, even if you don't have IBD:

https://youtu.be/bhm_OuYrJeY

Does your flatulence/ has your flatulence ever had a distinct smell?

bobj — Fri, 04 Feb 2022 06:58:15 +0000

This is probably the most bothersome symptom I'm suffering from. My farts don't typically smell like 'farts,' they don't smell especially foul, but they have the exact same smell regardless of what I eat. And no, I do not typically pass more wind than any other point in my life.

I cannot describe it, but if I were to take a guess at what it is, I'd gander it's probably one of two things: the smell of wind that has passed through sick intestines (the smell of intestines) or possibly the smell of air that has been saturated with blood. It's a very sick kind of a smell, and I am not so much worried over this as I am bothered by the perplexity of it.

Has anyone ever been unable to so much as simply 'sit down' without experiencing excruciating pain?

bobj — Wed, 02 Feb 2022 04:50:21 +0000

Serious question. Is this something indicative of what IBD sufferers experience?